Hi, not been on here for a while since I was diagnosed with vulva cancer in February. I had the op in March too remove the tumour which included losing a part of my vulva,was hard too accept (women thing I guess) but slowly with the help of my partner I came to terms with it. Tumour removed,thought great its over I've beaten it I'll now be ok,everything will go back too normal.
Apart from now 5mths later I have lymphedema in both legs which are expanding fast,also have lymphoedema between my legs due too lymph nodes being removed. I thought I'd won,yet this is so hard too deal with. I'm struggling too walk/sit/stand. I'm only 44 years old,a Grandma too two beautiful girls,one aged 2 and the other 3 mths,yet I feel like I'm getting worse,trying too run round after especially 2 year old,makes me ache so much if my legs aren't burning or tingling badly,their aching like crazy,my feet feel ice cold,yet not cold too touch,next minute there burning and tingling like mad. I can see the fluid under my skin,especially on my knee caps...
I'm scared,I scared of what lies ahead. I work (just) I do 4 hours a day at Primark but struggle daily. I do where my compression stockings every day,also have a compression pouch i wear between my legs but I don't seem too be getting better,I'm noticing the changes daily. I'm scared,it's weird,the cancer I dealt with,didn't really cry or anything just got on with it,yet lymphedema reducing me too tears most days. Im on 600mg of ibuprofen every 4hrs,plus co-codamol and amtripilyne (not sure how too spell it) too help me sleep at night. Yes they knock me out but during the day nothing seems too help. Anyone else have the same as me and any advice x