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SEEKING INFORMATION

8 Mar 2018 16:41

Hello Really need to share. In October 2017 I was having back pains.They Actually started in September 2017. I went to the doctor to get an MRI after them thinking it was a pinched  nerve. I had my first lower back MRI Oct 18th they found a mass over my right ovary. Well 2 days later i had my second MRI over my pelvic area. It was confirmed there was a granulosa cell tumor malignant . I was told they are slow growers, mines was about 10cm. After a pelvic ultrasound, ct scan, biopsies. It was determined I needed surgery so I had a full hysterectomy. It was located on my right ovary but to be safe , take it all i am 53 years old.  I had surgery Nov 22nd my number after surgery was a 7. It was decided cancer was gone so no chemo or pills just observation every 3 months. My 1st appt was Friday results yesterday showed my numbers jumped to 30. I have to go back April 6th in 30 days for follow up blood work. 

Any suggestions or advice? Can this be food related?

What can I do or what should I ask my doctor?

Thank you in advance

 

Re: SEEKING INFORMATION

9 Mar 2018 16:43 in response to Sbenge

Dear sbenge,

Thank you for posting on Cancer Chat.

I am sorry hear about your situation, you have been through a lot in the last few months.  When you mention the number 7 and 30 , I think you are referring to the CA 125 blood test, that is sometimes used to monitor women with some types of ovarian cancer after surgery or cancer treatment. 

As you know granulosa cell ovarian cancer is usually treated successfully for many women.  Following surgery to remove the cancer, women may be followed up by their specialist teams. This might include having blood tests to monitor tumour markers. There are a few types of tumour markers associated with this type of ovarian cancer, but none of them are completely accurate (on their own) in looking for signs of recurrence. 

We have some information for this type of cancer on our website, click here   to see it.  I am not sure if you are living overseas, so I should tell you that this information is about how it is treated in the UK.

I can appreciate your concern about the increase, but this does not necessarily mean that the cancer has come back.  If it is the CA125 test you had the level you have been told about is still relatively low, so you will need to see how the next test goes. 

You ask if food can affect the level.  I cannot see any evidence that any type of food can affect the level.

I hope this has been helpful. Please do get back to us if you have any more questions or call us (if you are in the UK) on 0808 800 4040. We are here from Monday to Friday, 9am to 5pm.

Take care,

Caroline