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Recently diagnosed with breast cancer

26 May 2019 21:11 in response to Jolamine

Hi Jolamine, 

i just want to say how much an inspiration you are . I too like @mejules ‍ didn’t realize how long you have been fighting this . 

You always take the time to reply to our posts especially mine lately!! , while you are going through this yourself . I want to sincerely thank you for all your advice and amazing support. 

Im in really great form , haven’t felt nauseous all weekend extra anti sickness tablets working a treat . Im not going to let it get to me what my friend said . 

Ive decided to get my head shaved tomorrow as it’s coming out quite quickly. 

Thank you again . 

Take care 

j xx

 

Recently diagnosed with breast cancer

27 May 2019 03:06 in response to mejules

 

Hi Mejules,

Thank you for your kind words. I lost my mum to breast cancer 22 years ago and, thought that I was prepared should the worst happen. Little did I know about how I would feel, until it happened. I had a massive meltdown myself when I was first diagnosed and got tremendous help from a group of people on the site, all sadly no longer here.

As a result of this, I know just how scary all the waiting for results can be, alongside all the lifestyle changes, financial worries, etc. A cancer diagnosis carries a lot of baggage with it. It is for this reason that I do my best to try and ease some of the uncertainty and fear surrounding our cancer journeys.

It is always good to hear that my efforts have been appreciated and, I thank you once again for taking the time to let me know.

How are you feeling now? I hope that the soreness is settling down. Do you still have your drain in? I hope that all goes well when you get your results this week. Are you are bringing someone with you to your appointment? This is always a good idea, especially when you are going to get your results.

Kind regards,

Jolamine xx

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

27 May 2019 03:19 in response to Jolamine

 

Hi BigJean,

I am delighted to hear that you are doing so much better this time and, that you haven't felt nauseous all weekend with your new tablets.

You're quite right to put what your friend said behind you and to just get on with things. As usual Rileyroo has come up with some good advice. You don't need negativity in your life now. Stick to being positive and it will make your journey so much easier.

As to your hair. I'm sorry to hear that it is coming away quite fast now. This tends to happen. I am glad to hear that you have bitten the bullet and are going to get it all shaved off tomorrow. I think that you will find it easier doing this as opposed to having it come out in clumps.

Thank you for your kind words. It's always reassuring to hear that people find my posts of some help.

Kind regards,

Jolamine xx

 

Recently diagnosed with breast cancer

27 May 2019 08:53 in response to Jolamine

Hi jolamine

you truly are inspirational to us x can I pick your brain again as bit confused as to what they will be telling me when I get my results from my op. I was kind of hoping that they will say the masectomy went well and all out. What other results will I get? X

drain is due out tomorrow thankfully. Getting abit more movement and feeling back to my arm but still numb in the armpit and underarm .

take care me lovely xx 

Recently diagnosed with breast cancer

27 May 2019 09:29 in response to mejules

hi Mejules 

Glad you are recovering and getting the drain out helps it made me feel more normal again

your q is interesting as yea it should b the end so I’ll b interested in what people say as I’m having this done in next week or so  

my armpit and arm are still numb I’m exercising but I wonder should I also visit a physio for extra support ?

im still taking gabapentin for nerve pain and ibuprofen as it gets uncomfortable r u taking pain relief 

when can a person drive after this op my arm still weak but advice really appreciated.  

Good luck with results thinking of u 

Swiperbaby

Recently diagnosed with breast cancer

27 May 2019 09:48 in response to Swiperbaby.11

Hi swiperbaby

i know I have to have chemo and radiotherapy but yes like you thought resullts would be to say they took it all out. I know with lumpectomy they have to have clear margins etc but surely there is no clear margin with my op?

i stopped the pain relief when I came out of hospital thinking I was ok haha needless to say by the next day I was popping the pills on a regular basis. I’m just taking paracetamol and ibrofren and it seems to be doing the trick. The nerve pain is a shocker when it happens. I’ve actuallt been known to let out a little yelp  

when do you get your results? Mine is 5th June x 

with regards to driving I was told when I can do an emergency stop and be in control of the car. My mom had a lumpectomy and waited a week and was ok to drive but I think it’s the node clearance that seems to be worse. I was hoping to do short journeys by end of this week x 

take care x

Recently diagnosed with breast cancer

27 May 2019 10:33 in response to mejules

Hello

my breast nurse said the same thing when you can do emergency stop  I drove day 6 after lumpectomy but this s different thing as I’m having tightening down inside of arm I need to do more physio I know here doing it now and it’s hurting when I push the stretch but if I don’t do it I’ll end up with poor range of movement    I plan to drive in a few days I’m heading for a walk now 

My margins ended up terrible this time and I’ve been told I need mastectomy my nodes were clear I have one badie but after node clearance the rest were good thank god I was more worried about this I’ll get over the mastectomy now 

 

Regards s

Recently diagnosed with breast cancer

27 May 2019 15:25 in response to mejules

 

Hi MeJules,

You've caught me out with this question. It's been so long since I had my mastectomies that I cannot honestly remember. If I'm  correct, all post-op tissue is sent to pathology and, is again analysed to ensure that it concurs with your biopsy results and to see that the entire tumour has been removed. If any lymph nodes are removed at the same time, this is when you'll find out if any more are infected.

I can recall getting a lot of details about my lumpectomy, but not much at all about my mastectomies. Perhaps someone else can answer this for us?

I am sure that you will be glad to get your drain removed tomorrow. I still have discomfort in my arm and underarm after all this time. I think that most of us do, but we can cope with it.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

27 May 2019 15:32 in response to Swiperbaby.11

 

Hi Swiperbaby,

I was referred to a physiotherapist after I came home following my lumpectomy, but left to my own devices following my double mastectomy. It certainly helped me to see the physio and, I didn't need to attend for long.

The nerve pain can certainly stop you in your tracks, but watch out for the side-effects of Gabapentin. I had to stop it when I found myself getting forgetful and having difficulty in concentration.

As far as I know, you can drive as soon as you can safely do an emergency stop. However, you are possibly best to confirm with your consultant, preferably in writing, that you are safe to do so, as we live in a very litigous society.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

28 May 2019 12:18 in response to Jolamine

Hi jolamine

no drain out today. They decided to leave it in til Friday as still too much coming out. 

I asked about what results I will get next Wednesday and the cancer nurse said in effect it should be it’s all out and how many lymph nodes were infected. The less nodes affected the less chance of reoccurrence so I’m hoping it’s low. Also they will be able to say if it there were precancerous cells in the chest wall , what grade and what stage. Not going to lie thought it would only be good news hereonin and start the chemo/radiotherapy so bit of a reality check for me. Just got to wait for results next Wednesday and take it from there . 

Hope you are ok x 

Recently diagnosed with breast cancer

28 May 2019 13:27 in response to mejules

 

Hi Mejules,

I'm sorry to hear that you have to wait until Friday to get your drain out. I know that this is disappointing when you were expecting it out today, but you will probably benefit from keeping it in for a few more days, if there is still a lot of fluid coming out.

I'm glad that you asked the nurse what to expect of your results next Wednesday. It is always wise to ask your care team about anything you don't understand.

Here's hoping that it is all good news for you then.


Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

28 May 2019 18:24 in response to BigJean

Hi everyone 

Thought I would let you know that I started Chemo today, my wound still isn’t healed but we decided we needed to get going otherwise delaying it further could impact on the outcome for the cancer. 

Bigjean, my onco said today that mine is treatable and curable... thought I would let you know as it is language they would use.

I have had a really long sleep, and I’ve got a lot of tablets to take and I have to do some injections for 5 days starting Thursday, not really looking forward to that but needs must. And regular visits to the nurse to have my dressing changed. 

How did the head shave go? 

Take care.

WL

Recently diagnosed with breast cancer

28 May 2019 19:10 in response to Woollylamb

 

Hi Woolylamb,

I'm glad to hear that you are on your way at last. Here's hoping that your wound heals up soon.

I hope that all goes well with your chemo and that you don't have the same bother as BigJean had to start with. Be good to yourself and rest/sleep when you need to.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

28 May 2019 19:11 in response to Woollylamb

hi WL 

good news you have started your chemo And good to hear your cancer is both treatable and curable.

hope your wound heals quickly and chemo doesn’t swipe you off your feet too much me lovely x

 

take it easy and take care of you x

Recently diagnosed with breast cancer

28 May 2019 19:22 in response to Woollylamb

Hi WL, 

great to hear you have started on your treatment. 

Thank you for your words of encouragement too that your oncologist said . 

I tool the plunge and got my hair shaved, I felt much more in control as it was very upsetting as it had started to come out quite a lot over the weekend. It feels a bit weird with the hair gone but hey it will grow back . 

Take as much anti sickness tablets as you need and get plenty of rest and drink lots of water. 

Take care of yourself. 

Xxxxxx