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Recently diagnosed with breast cancer

24 May 2019 10:01 in response to Jolamine

Hello to all the girls on here 

reading all your experiences is good for preparing what may be ahead  good luck to everyone on this journey  all I know is I’ve never sat on couch so much 

I’ve had a lumpectomy followed by second operation last Thursday to improve margins and remove all nodes as one was positive  I was discharged home after 3 nights and was upset as everyone was saying u must b delighted to b going home but this was only upsetting me as I was thinking no I’m not happy as this journey is only beginning.  

 I’m recovering from this and drain is coming out today and I’m getting results ...  I know nodes are clear as nurse told me on phone but margins  were not ready yesterday. I don’t what I’ll do if I need more margin work ??  It’s all a big scary journey 

My arm is aching and has a heavy feeling following the lymph node clearance I’m really trying to exercise a lot has anyone experience with this procedure  Mejules  looks like you are recovering from this too I’m just hoping I will be able to get back running again 

sorry for the big mumbled rant 

swiperbaby  

 

Recently diagnosed with breast cancer

24 May 2019 10:21 in response to Swiperbaby.11

Hi there, I'm sorry you are in this situation, but wanted to reassure you about the issue with margins.  I had 3 surgeries to get clear margins at the start of last year. Stayed in hospital overnight after the first, but same day return home after the next two. It was very doable, and I recovered very quickly from the actual surgeries. I found the worst effect was having three general anaesthetics in a short space of time, which left me very tired and with muddled thinking. However, I returned to work within a week after each surgery.  I found the best thing was to do the arm exercises regularly, go for lots of short walks, and sleep whenever I felt like it, no matter what time of day.  All the best, hopefully you will have clear margins now, but if not, remember - you can do this!

Recently diagnosed with breast cancer

24 May 2019 10:46 in response to Blackcat01

Black cat 

thank you for your positive answer and reinforcing that we can manage all these steps when they r broken down   It’s just mad having all these surgeries tis a  bit scary  I’m also running out of things to tell my girls why I need another operation  another cyst !! They r 11 and 13 

 

Recently diagnosed with breast cancer

24 May 2019 11:16 in response to Swiperbaby.11

Hi swiperbaby

sorry to hear what you going through. As you know I had node clearance but only on Monday. I have pain in my arm and totally numb under the armpit. I too am doing the exercises given  but finding it hard. I too am a runner or rather a slow plodder and I can’t wait to get back to it for my own headspace. At moment as I have drain in as they leaving it a few more days they have suggested short walks. I totally get your need to run. 

I cant speak about margins hun as I had a masectomy and haven’t had results yet. Get mine in over a week. 

Thinking of you and feel free to rant anytime. Ladies on here are lovely and supportive even when they are they having their own struggles. 

Take care x

Recently diagnosed with breast cancer

24 May 2019 11:36 in response to mejules

Hi mejules. Great name by the way 

I asked for mastectomy after first lumpectomy and surgeon said not yet wait and see how this goes  so fingers crossed it’s good 

I overdid it yesterday I went for a walk through fields with kids and had to climb gates and roll under electric wires and I paid for it last night I was all sore in my shoulder blades and arm 

my lady run was before first lumpectomy and boy do I miss it  I’m not ready yet for walks but Chen this drain is out and I’m not stronger I’ll walk the roads  before the next hurdle maybe radiotherapy or chemo I’ve yet to b told 

mine is invasive lobular stage 2 oes pos her2 neg   So I’ll b on tamoxifen as well at some stage  

take care and mind yourself plenty ibuprofen I find these good with gapapentin for nerve pain. 

Take care all 

Recently diagnosed with breast cancer

24 May 2019 18:58 in response to Swiperbaby.11
Hi Swiperbaby, As someone who has been battling breast cancer for 10 years now and has had 2 bouts of primary cancer, resulting in a lumpectomy and a double mastectomy, I know just how overwhelming this all is. There are so many unknowns at the moment that your head must be reeling. Hopefully, after your visit today, you’ll know more and be ready to start your journey in earnest. Believe it or not, things will settle down emotionally once you move on to the next stage and start treatment. When I had my first surgery, my pathology results said that my margins weren’t clear, but my surgeon assured me that there was no need to go in again, as he had realized this at the time and taken further tissue away. A year later I found another lump in the same breast and had a double mastectomy. I was seeing another surgeon by this time and, we both suspect that if my margins had been clear the first time, this wouldn’t have happened. Of course, we’ll never know for certain. For all the inconvenience and additional surgery, it is worth doing it now, rather than at a later stage. It is good news that your lymph nodes were clear. The best thing you can do at the moment is to do your exercises regularly and get yourself back to good health as soon as you can. I hate to say it, but you may find that the discomfort in your arm a permanent feature. I still find my arm heavy and aching from time to time. There is no reason why you cannot get back to running again. How soon will depend on what further treatment you have and how you react to it. I sincerely hope that all went well today, that you’ve got rid of your drains and are ready to move on. Please keep in touch and let us know how you get on. We are always here for you. Kind regards, Jolamine xx

Recently diagnosed with breast cancer

25 May 2019 07:21 in response to Jolamine

Hi Jolamine 

thanks for your advice and honesty  You have come a long way with this. Yes with anything left in margin  you would not rest easy.  I’m like that now but the surgeon was clear that my boob was so busy it was like s time bomb   He said at their meeting 5 other surgeons recommended mastectomy so I guess I’m off to theatre again.   The op it self apparently will. Easier then nodes so at least that.  I will prob need to tell kids at this point as up to now I’ve been saying cysts and gland removed.  

The mri showed other boob ok but I’m beginning to worry now as all this was not seen on mri. 

 I’ll run again for sure just maybe not for a bit but loads of walking in the fresh air will suffice for now.   

Do u think I’ll need radiotherapy if I have a mastectomy   

It’s nice to b drain free for now 

i hope the op is soon they said June 10 but sooner hopefully.   

Regards 

‍♀️

Recently diagnosed with breast cancer

25 May 2019 09:56 in response to Swiperbaby.11

 

Hi Swiperbaby,

You are really going through the mill aren't you? If it's of any consolation to you, I found my double mastectomy easier to cope with than my lumpectomy. You don't always need radiotherapy after a mastectomy (I didn't), but if your boob is that 'busy', your oncologist may decide to do a belt and braces job just to be absolutely sure. Your should draw up a list of questions for your next visit, as your oncologist will know what was decided at the MDT meeting. I still do this for every appointment, even after attending the clinic for 10 years.

I have mucinous cancer and that doesn't always show up on mammogram or ultrasound. My routine mammogram missed my lump, although it did show up on mammogram and ultrasound at the breast clinic. I paid privately for a thermoscan, just to reassure myself.

You are probably best to tell the kids as soon as you can. They are old enough to be aware that something is amiss and, you don't want then finding out by overhearing something that they shouldn't. A cancer diagnosis affects the whole family and, you are best to approach this with a positive attitude, where you can all fight it together.

So, you have another wait until 10th June. Let's hope that this is a case of third time lucky. I don't envy you the wait. Do your best to keep as busy as you can to distract yourself.

I shall be thinking of you on 10th and hope that all goes well.

Kind regards,

Jolamine xx

 

Recently diagnosed with breast cancer

25 May 2019 11:22 in response to Jolamine

Hi Jolamine, 

thank you so much for your kind words and encouragement. I’ve decided I’m going to take your and WL advice and have it shaved off as you said I will feel more in control of it then . 

Had second AC yesterday v long day in hospital was there at 9.30 didn’t get out till 4.30 was v busy . Felt grand yesterday just tired . Fell grand again this morning taking all anti sickness tablets so far so good . 

Can I run something by you ladies ???

my friend also recently diagnosed with BC , she’s a few weeks behind me starting treatment she’s the same type as I have . She was offered clinical trial along with her treatment. 

I met her at the hospital yesterday she’s in great form and I’m very happy for her . 

She kinda got me a bit depressed yesterday, I I was talking to her about my meeting with the oncologist and how mine went , I told her he told me mine was curable. My husband also was there too so I wasn’t dreaming it !! 

She said he would never say that because people would be suing the hospital if that was the case . We are both under same oncologist. 

I just felt v down after she said this to me . I don’t think she meant it in a bad way but it just got to me . 

Sorry to rant on . 

Take care 

j xxxx

Recently diagnosed with breast cancer

25 May 2019 17:12 in response to BigJean

 

Hi BigJean,

Shaving your hair sounds like a good idea. As you say, it puts you back in the driving seat.

I'm so glad to hear that you feel better this time around. I see where your friend is coming from, but I'm not sure that she is right. I know that we live in a litigous world, but both of my surgeons assured me that my cancer was curable too. I also had my hubby with me, so he heard this as well.

With the way that a cancer diagnosis wrecks our emotions, oncologists are happy to give us any good news they can. We know that there is no guarantee and, I think that it might be difficult to sue on this basis.

Try not to let this get you down. You are feeling very fragile at the moment and it is very easy to upset you as a result. There are many people on here who have had the same reassurance and, are still with us many years down the line.

We are here any time you want to rant.

Kind regards,

Jolamine xx

 

Recently diagnosed with breast cancer

25 May 2019 17:39 in response to BigJean

Hi Jean. 

 

If it makes you feel a bit better, my breast surgeon says he never says curable, only treatable. 

Recently diagnosed with breast cancer

26 May 2019 10:22 in response to BigJean

Hi 

I am so pleased to hear that you feel much better on this cycle.  Let me know how your head shave goes. Mines booked in next Thursday assuming I feel ok from Chemo; if it goes ahead!!!!  

In terms of your friend, you heard what you heard, there are loads of people having loads of conversations about their own personal circumstances. Mine said that I should have normal life expectancy, that to me is a good thing so I’m going to hang onto that.  The whole suing thing is interesting as I was talking to my breast nurse about complimentary therapies as I think I’m going to try reiki and she said done be upset if they get you sign a disclaimer as some people are worried that they will get sued, how ridiculous, but it’s the world we are in I guess.  

Try not to overthink it, as I say to my boys when someone says something to them that upsets them blow up your virtual balloon put inside and let it float away (pretending to blow up a balloon and let it go is optional).

Take it easy and look after yourself.

X

Recently diagnosed with breast cancer

26 May 2019 10:30 in response to Woollylamb

Hi jolamine

I hadn’t realised you had been battling for ten years I’m so sorry to hear that but what I can say is how I find you so positive and caring to all us asking so many questions along our journey and even when I was having a meltdown at the beginning saying I know it was stage four And it had spread you were always so understanding yet rationale about my feelings. For that I always read your comments on WL and bigjeans threads too. You are an awesome lady and thank you for taking time out of your own journey to try and alleviate our fears.

 

Recently diagnosed with breast cancer

26 May 2019 21:00 in response to Woollylamb

Hi WL , 

im in much better form today . Not going to let it get me down. Feeling great after chemo this weekend taking plenty of anti sickness tablets and they working great .

am getting my head shaved tomorrow my hair coming out very quickly today and it’s annoying me now , 

hope you start your treatment this week and you best of luck with your head shave too . 

Talk soon xxxxxxx

Recently diagnosed with breast cancer

26 May 2019 21:02 in response to rileyroo

Hi Rileyroo , 

thank you for your reply . My breast surgeon too said treatable ,which I was very happy with but the oncologist did say curable. 

Xx