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Recently diagnosed with breast cancer

5 Oct 2019 16:23 in response to Lorz

 

Hi Lorraine,

Did you manage to go ahead with surgery or not?

I sincerly hope that you did.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

5 Oct 2019 16:28 in response to Jolamine

hi yes ty so much for caring yes got my operation on Tuesday morning 2 hours the surgeon said did quite a bit of work inside breast took away fair bit of breast tissue went into same wound said only it’s a bit bigger about 5 inches got dissolving stitches also paper stitches waterproof dressing on stitches come ou on Friday I get my nurse to do it my surgeon off for 2 weeks holiday go back in 3 weeks was worried about my treatment until he explained it was safe enough as he was still doing work on breast I know I had to be cancer free he said wait until your test comes back from lab how are you my friend ? Kind regards Lorraine x

Recently diagnosed with breast cancer

5 Oct 2019 16:31 in response to teacherj

 

Hi Jayne,

I am glad to hear that your bone scan was clear. I hope that your meeting with your surgeon on Monday goes well and, that he’ll be a bit more communicative than he was last time you saw him.

It is always a good idea to draw up a list of any questions you have to ask him before each visit. This ensures that you don’t forget anything important. I hope that you will still just need the mastectomy, but if treatment changes, it is all still doable, just more of a challenge.

Fingers crossed.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

5 Oct 2019 16:51 in response to Lorz

 

Hi Lorraine,

I am so glad to hear that all went ahead. It's just as well that you got it done before your surgeon went off on holiday. I can appreciate that you now have a worrying 3 week wait for the results from pathology, but sincerely hope that this will turn out to be good news.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

5 Oct 2019 18:07 in response to Jolamine

ty very much yes a bit on edge until I hear him saying breast okay treatment ty again for grpetting back to me it makes a difference Lorraine x

Recently diagnosed with breast cancer

7 Oct 2019 17:32 in response to BigJean

Hi Ladies , 

I had mammogram and ultrasound last Friday . Didn’t get to see the doctor but asked the girl doing the ultrasound could she give me some results. She said my lymph nodes weren’t enlarged anymore. Nothing was said about the mammogram. So rang the breast nurse today and she told me I had response to chemo today in the breast and lymph nodes .  She didn’t elaborate on what type of response but I’m taking that as good results . 

Im meeting with breast surgeon tomorrow to discuss surgery. Another sleepless night for me but trying to be as positive as I can . 

Thanks all for listening. I feel like I’m back to the beginning all over again, I’ve pains in my shoulders I know this could be due to stress but very emotional today . 

Sorry again for long post .

take care everyone 

j xx

Recently diagnosed with breast cancer

7 Oct 2019 18:57 in response to BigJean

Hi

What fantastic news, hopefully you will get more details tomorrow on how big the response has been.  It’s hard to believe isn’t it, i was the same when I was told that mine had shrunk.

I also developed pains as well, I’m convinced it’s in my other boob, I guess that’s just natural and will probably be with us forever now, wondering if every ache and pain is cancer.

Hope the session with the surgeon goes well, I’ve got my third meeting with a surgeon on Friday, I’ve been referred to the plastic surgeons as my preferred option is the DIEP, however my surgeon doesn’t think the plastic surgeon will do it as I will need radiotherapy afterwards.  If he won’t then I will opt for the LD flap. I’m interested to hear what options you have and your thoughts after you’ve met with your surgeon. 

Will be thinking of you. 

WL

Recently diagnosed with breast cancer

7 Oct 2019 22:20 in response to BigJean

 

Hi BigJean,

This must be a great relief to hear that, after all that you have had to put up with, you have made some progress. I'm delighted to hear this.

I hope that all goes well tomorrow when you meet up with your surgeon to discuss surgery.I know that it is difficult to stay positive all the time, but the more positve you can be the better the treatment tends to be.

We all tend to find extra aches and pains at this time. Hopefully, this is all due to stress. Sorry to hear that you have had an emotional day today. Isn't that strange, when for a change, you've got some good news to celebrate? Not to worry, we all have good and bad days.

Fingers crossed for more good news tomorrow.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

9 Oct 2019 07:55 in response to Jolamine

Hi Ladies , 

Well met the surgeon yesterday he’s very happy with my response to chemo . 

He told me I will be having a mastectomy and lymph nodes removed with no reconstruction for the time being . He said I will probably have lymphodema which he told me is very common. 

The surgery is scheduled for 2 weeks, I’m ok with loosing the breast I think the thought of being put to sleep is freaking me out a bit . 

I hope all is well with you ladies . 

Take care 

j xx

Recently diagnosed with breast cancer

9 Oct 2019 09:51 in response to BigJean

Hi

 

I am really chuffed that you have had a good response to chemo. I find it interesting how different surgeons are happy to take different approaches, mine is happy to do recon straight away, even though I need radiotherapy and lymph node removal,  I was originally told I would have to wait. 

When did you have your last chemo session?

I have the same fear of being put to sleep, I've not met anyone who doesn't worry about it. Just think in two weeks the next phase will be done. You are completely nailing it.

x
 

Recently diagnosed with breast cancer

9 Oct 2019 10:47 in response to Woollylamb

Hi WL,

Good to heat you are doing well too . It is strange how different surgeons opt for different things . He did say something about my BC being quite invasive can’t fully remember what else . He said in time he would reduce the other one . They aren’t small I’m a 34 E !!! I didn’t question him about not doing reconstruction! 

I too will be having radiotherapy afterwards . My last chemo was 20th September. 

Have you got a date for surgery yet ??  Only good thing is it will be done before Christmas will be really looking forward to that . 

Take care 

j xx

Recently diagnosed with breast cancer

9 Oct 2019 12:09 in response to BigJean

Hey

no date yet. I had my last chemo on 11th sept,seen them surgeon twice and he referred me to the plastic surgeon as my preferred option is done by plastics. Seeing him on Friday , he may say no to doing it with immediate recon. Got a ct scan to check my tummy blood vessels as they take the fat from there and put it  in the boob and connect the blood vessel back up. I'm desperate to get a date as I would like to be in reasonable health for Xmas too.

how are you feeling after chemo, I'm still struggling with fatigue and my fingertips are numb.

wl

Recently diagnosed with breast cancer

9 Oct 2019 13:28 in response to Woollylamb

Hi , 

Hopefully you will have a date soon and fingers crossed all goes well with your meeting on Friday . 

Im still very tired after chemo and still have aches and pains . Luckily I didn’t have any numbness in finger tips . 

Let me know how your meeting goes on Friday will be thinking of you . 

Take care 

j x

Recently diagnosed with breast cancer

9 Oct 2019 17:56 in response to BigJean

 

Hi BigJean,

I'm delighted to hear that your surgeon was so happy with your response to chemo. I understand that they don't usually do a reconstruvction at the time of surgery if radiotherapy is planned after your surgery. I have never had reconstruction, but have managed well without it.

I also have lymphoedema.and, this is manageable. I attend a lymphoedema clinic for 2 weeks in every 12 and have manual lymphatic drainage followed by bandaging. Those 2 weeks ca be a bit awkward, as I look like the Michelin Man with both arms bandaged from fingertip to shoulder. I get some very strange looks and questions as result, but I can cope with that. In between I have elastic compression sleeves, which I wear all the time. Unfortunately, despite this I never get rid of it. One part of my arms will go up while another goes down, so at least I'm maintaining the status quo.

I shall be thinking of you as you undertake your surgery and hope that it all goes well.

Kind regards,

Jolamine xx

Recently diagnosed with breast cancer

9 Oct 2019 18:01 in response to Woollylamb

 

Hi Woolylamb,

I hope that all goes well with the Plastic Surgery guys on Friday. Don't be surprised if they decide not to do your recon at the same time as surgery. If radiotherapy is planned after surgery they tend to leave recon until later.

I hope that it all goes ahead for you.

Kind regards,

Jolamine xx