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Post Prostatectomy - best pads to use

18 Jan 2011 17:23

Hi everyone.

It's been two weeks since my RRP, and I'm at the stress incontinence stage of my recovery.  Currently, I'm using 2-3 "Tena for Men Level 2" pads each day. I find these are comfortable and they cope extremely well with my drips, but they do have two downsides: 1. I can only use them with Y fronts and I much prefer to wear boxers; 2. I have to lower my trousers and pants to pee. This latter point means that I'm going to have problems going out and using a public toilet.

Does anyone have any experience with any other products?  Has anyone tried "ManeZe lined dribble pouches"?

Best wishes

Bob

Re: Post Prostatectomy - best pads to use

19 Jan 2011 21:44 in response to telemando

Hi Telemando

I have heard of nobody wearing the Maneze product you describe. Mainly the men I have contact with use the Tena in the absobancy you describe. I was wondering if this is something you have  discussed with your District Nurse/ Local Continence Care Nurse?  Either or both should have the information you are looking for, or at least advise you more thoroughly. our GP or Hospital should be able to give you contact details for them.

The majority of men post RP/LRP have gone down this route and received fantastic advice over this matter, and, in a large number of cases, had the pads supplied to them.

Hoping this is of some help for you.

Best of luck.

With regards and best of wishes

jadziadax

Re: Post Prostatectomy - best pads to use

19 Jan 2011 22:16 in response to jadziadax

Hi Jadzia

I phoned the company selling the Maneze product and they said they'd post me a couple of free samples to try out.  I thought that was very generous of them.  When I've tried them out I'll post a brief report comparing them with Tena for Men. 

I'm seeing my GP on Friday, so I can discuss this with her.  She may well refer me to the continence care nurse.  We'll see how it goes.

I'd also like to congratulate you for the support you offer to everyone who's affected by Prostate Cancer.  The world needs more people like you!

Bob (Telemando)

Re: Post Prostatectomy - best pads to use

21 Jan 2011 16:49 in response to jadziadax

Hi Jadzia

Following your advice, I now have a contact number for the local continence nurse.  I phoned today and explained my situation.  She said that they wouldn't be able to see me for eight weeks (!) but she would put some useful information in the post.  I'm a little disappointed at the delay, but on reflection I suppose it gives everyone time to see if my problems will resolve quickly (I sure hope so) or whether it might be a longer term problem.

Bob (Telemando)

Re: Post Prostatectomy - best pads to use

21 Jan 2011 21:04 in response to telemando

Hi Bob

8 weeks.... ? That's ridiculous. Can you hassle them a bit? Ask if they do clinic days? Explain that you were under the impression that due to the nature of your surgery, you had assumed that the hospital would have done an immediate referral. Ask if there is anyone else that you can see for advice? Can the District Nurse help out? She may well be able to also help with supply of pads, or know how to get around the system?

Sorry for all the questions, but knowing the NHS as I do, you don't get anywhere by being passive. Sorry also that I cannot offer any better advice for you. In my experience, you have to be a bit 'pushy'.

Wouldn't you wonder how people cope with a worse level of incontinenvce following these operations? How do they manage if the person meant to be helping them is not available for 8 weeks?


There is a decided lack of interest/knowledge in men with Prostate Cancer, and related issues. I had one man tell me once that when he did see a Nurse about continence issues, she more or less told him that he was being lazy.....the mind boggles !


Try your District Nurse. Depending on where you live, depends whether you can contact her direct, or whether your GP has to arrange it. In any case, its worth a try. Go for the sympathy vote, explain how difficult it all is, say that the Continence care Nurse can't see you for 8 weeks, and that you are at your wits end....not exactly a lie, but you might get somewhere.


Best of luck, and do let us know how you get on. Always around if you want a chat about anything, or further information about anything.


Take care of yourself.


With regards and best of wishes as always

jadziadax

x


Re: Post Prostatectomy - best pads to use

23 Jan 2011 23:26 in response to jadziadax

Hi Jadzia

It's always a pleasure to talk to you.

Of course, you're quite right. 8 weeks is completely ridiculous. My first step is to email my GP and see whether she has any advice. I'm don't what to do after that, but I'm sure I'll think of something! It looks like there's a massive hole in the system. Prostatectomy patients should automatically be referred to the continence service, because it is inevitable that there will be a period of incontinence following surgery. 

All the best

Bob

Re: Post Prostatectomy - best pads to use (update)

12 Apr 2011 11:47 in response to telemando

Hi everyone

I thought I'd give an update. I'm now about 4 months since my RRP and I'm generally in good health and recovering well. My incontinence problems have significantly reduced so I no longer need to use the Tena pads. I've discovered that I can now use the female pads for periods (!) that can be bought in any supermarket. They are thinner, more comfortable, and much cheaper.  I use one pad during the day and another at night, but the pads never get drenched.  I still have issues with stress incontinence, and this was particularly bad a couple of weeks ago when I went down with a cold and was coughing and sneezing repeatedly, but mostly I just get a few small drips each day.  I'm doing the Kegels exercises and I'm hopeful I will continue to improve.  I'm longing for the time when I can throw the pads out completely, go back to wearing boxers during the day and sleep naked! Then I'll know I've recovered.

Bob

Re: Post Prostatectomy - best pads to use (update)

13 Apr 2011 12:18 in response to telemando

Hi Telemando,

     I had a prostate removal and had the same problems you descibe. I found Boots own brand ok, they do make a oblong shape pad, which I find I can move 'aside' when standing at a public loo. Do you find certain drinks  like caffine can make it worse? And after 2 pints of larger I need a loo every 10 minutes!!! I find if I am at home I can sometimes 'train' my bladder to wait until I am ready to empty.

Hope things continue to get better for you.

George

Re: Post Prostatectomy - best pads to use (update)

13 Apr 2011 13:42 in response to georgemcc

Hi George

I haven't tried Boots own brand. I'm very pleased with the Always Ultra that I'm using - even though it's a product for women!  I have tried Molimed Protect; this is a little bulky but has an ingenious "pocket" design to stop the male organ from wandering about when sleeping.  I've also tried Molimed Active but couldn't really get on with it.  I still have some left and I'll try it again if my problem improves.

As for drinks, even before I had my operation two pints of lager would be enough to send me to the loo every 10 minutes!  The Continence Service nurse advised me to cut down on caffeine (which is difficult for a tea/coffee head like me).  This has certainly helped, but I'm now running out of supplies of de-caff tea and coffee so I might try going back to the real thing.

You didn't say when you had your op.  Was it recently?

Bob (Telemando)

Re: Post Prostatectomy - best pads to use

30 Aug 2011 22:58 in response to telemando

Hi Bob,

its JIm here, ive been sending you e-mails but they keep on coming back to me saying that i am not authorised to use private chat, i don't know why and im trying to get this sorted, i will have to contact the administrator

Just want to ask how you are, i hope your well

Jim

Re: Post Prostatectomy - best pads to use

30 Aug 2011 23:22 in response to JDundee

Hi Jim

Nice to hear from you. I am recovering well from my surgery and I've been completely pad-free for 4 months or so.  However, I had my third post-surgery PSA blood test last week and I'm sweating on the results.  I'm 99% sure that it will be <0.1 but it's difficult to silence the nagging doubts - I do want to stay a fully paid up member of the zero PSA club.  Looks like this is the cancer survivor's nightmare - worrying about whether or not it's going to come back!  Still there are many people here who would swap with me in a heartbeat so I know I must count my blessings.

I'll try contacting you and I'll send you my personal email so we don't need to communicate through the cancer chat system.

All the best

Bob

Re: Post Prostatectomy - best pads to use

31 Aug 2011 07:16 in response to telemando

Hi Bob,

Good to hear your results are that low, I know exactly what you mean when you wait for the result. I find I can go most of the day without a pad it is just after around 4-5pm I feel I might dribble. My GP has put me on Vesicare 10mg which is anthother name for solifenacin succinate which are supposed to treat an over active bladder!!!!!!!

I have an appoinment at the end of the month for my PSA.

You are right when you say we have to count our blessings, but one minor thing is they will not let me carrying on being a blood doner, shame I used to like 'doing my bit'.

All the

Re: Post Prostatectomy - best pads to use

31 Aug 2011 08:18 in response to georgemcc

Hi George

When did you have your operation? Mine was 21 December 2010. 

I find that some evenings (around 9 pm) I get the feeling I might have had an accident although when I rush to the loo to check there's usually nothing to find.  I'm hoping that this will eventually resolve itself over time.  On the very rare occasions that I leak, it's a single drop not a pint!

I had heard that there were medications for an over-active bladder, but it hadn't occurred to me that they might be useful following a prostatectomy. Do you find it helps?

Good luck with the blood test. Shame they won't let you donate blood any more, though.  I had to stop donating many years ago when I started having regular acupuncture, although I think they may have relaxed that rule a little now.

Best wishes

Bob

Re: Post Prostatectomy - best pads to use

31 Aug 2011 08:42 in response to telemando

Hi Bob,

     Mine was around the same date in 2008,in Guys in London.  Yes I get the same feelings, you rush to the loo only for a very small amount to appear.   I do find the tablets help but they do not last all day so I still have to worry about leaking on public transport on the way home from work.Why not ask your doctors opinion?  Do you find you still get tried easliy or is it just me getting old? (62)   After the blood test I am having a consultation with another doctor to see if anything can be done regarding me being unable to preform the sex act since the operation. All quite difficult to talk about, but it might be easier to talk with a different doctor.

Re: Post Prostatectomy - best pads to use

31 Aug 2011 10:36 in response to georgemcc

Hi George

You're dead right about tiredness.  For three months after surgery I spent most afternoons napping.  I still feel the urge to sleep creeping over me on regular occasions, but fortunately I can go to work to have a rest Wink

It seems early days to be thinking about bladder tablets, but it's definitely something I'll ask about if I'm still having problems by the anniversary of my operation.

My little soldier still refuses to stand to attention, although sometimes there's the odd stirring. I've tried Cialis and Viagra to no effect, and the Viagra made me feel terribly ill! I know there are other treatments but once again I think I'll wait until the anniversary of my operation before pursuing them. I had to inject myself with Clexane after the operation, so the thought of injecting myself down below to get things moving isn't as daunting as it once was.  Mind you, I think a sense of humour helps a lot when dealing with prostate cancer.

Can I ask how often you get PSA follow ups? I'm still on 3 monthly checks and I'm wondering when they start spacing them out.

Nice to speak to you. Feel free to PM me if you want to talk privately, assuming that Cancer Chat's private message system is working.

Bob