Hello Luc50,

I'm in a similar boat.  I am 52.  Hadn't had a period for 18 months, then had bleeding.  Went for an ultrasound and also had a hysteroscopy at the same appointment.  The ultrasound detected the thickness of my uterine lining was at 8mm.  The hysteroscopy showed fibroids.  They took a biopsy and I was told I would get the results in 1-2 weeks time.  It's 2 weeks today and after ringing I was told they have a backlog of typing and so no letter has gone out and they can't give me any information as yet.  My bleeding stopped just under a week ago so I'm pleased about that but the waiting game is tough.  Without having the bleeding, I have been able to forget about things a bit but on the whole have had a pretty rubbish few first weeks with dark thoughts and lots of crying.  I'm now trying to carry on with a positive attitude as there's not much I can do until I get some results.  It is very worrying but in the meantime I keep trying to keep myself informed so that when I get to talk to someone medical, I will at least understand what they're talking about.  I have also started to eat better and tried to lose weight - have lost half a stone in the last two weeks - as I understand that oestrogen excess can be caused by being overweight.  Have you had a hysteroscopy?  Not a pleasant experience!  If you haven't yet, and you have to have one, I only read after having had mine that it helps to take a couple of paracetemol before you have it!  And make sure you have someone who can drive you home afterwards!  I'm presuming that if my biopsy shows that it's got abnormal cells, then I'll be heading for a hysterectomy but if they're not abnormal, it'll be hormone treatment first.  Seems like you've had a different suggestion as to what happens next with your treatment but I would have thought they'd have to see the results of your biopsy before recommending a hysterectomy.  Or maybe they mean a hysteroscopy (the camera) first rather than a hysterectomy?  Anyway, I wish you all the best and to hear from you again.:)

Ho ladies.

I've been down this route and believe me the waiting is by far the worst. Once you know what you’re dealing with, whatever that is, it is much easier. I was diagnosed with endometrial cancer in April 2018, had a hysterectomy, further surgery for removal of lymph nodes and three sessions of internal radiotherapy. I got my all clear in April of this year and am on regular checks now. 

Just to say if you have  any questions now or in the future just ask and I’ll be happy to answer them based on my experience.

Sending a virtual squeeze from my hand to yours.

Sundial

Thank you Sundial. Much appreciated words of wisdom and reassurances.

I wish I had found this forum before! Have been feeling rather alone with my thoughts and worries despite friends' and family support.

You’re welcome. Everyone on here is really supportive. Stay with us. There is always someone to talk to. Family and friends are great support but we sometimes don’t want to worry them with our fears. People on here just know what it’s like.

Sundial

Hi thank you for sharing this with week . I had the hysterectomy done yesterday and biopsy . Waiting a week for results . The doctor said in his opinion all looked good inside when he went in in with the camera . He had to scrape a lot of black  blood away but that may have been from the recent bleeding I had . You are the right the waiting is the worst I know I won’t settle till I know what I am dealing with . He also said my womb was really small of it was something sinister in the lining then it could be removed very easily . I hope your results come back ok I am trying to occupy my mind this week easier said than done sometimes x

Hi thank you for the reply . I am just waiting for the results after biopsy and hysterectomy. What were your symptoms sis they say anything to you after the hysterectomy. Consultant  told me as far as he was concerned all looked fine in there bar black blood he had to scrape away probably due to the recent bleeding . Obviously that can’t know till they get the results from the womb lining but he said there were no build up of tissue etc or anything that looked sinister in his opinion . Obviously I am still a bit worried till I get those results .

Hi

I had a hysterectomy. My surgeon said everything looked as he expected but they’d got it all out. I had already been told at my hysteroscopy that there was something suspicious in the lining. It was a shock however when they upgraded the original biopsy grade from 1 to 3 after histology. Surgeon says it sometimes happens. 

I had no other obvious symptoms apart from four bouts of post menopausal bleeding. In retrospect I did have a sore left hip and years of severe constipation. However they told me I had a large cyst on the ovary they removed from that side and that was probably the cause. Those symptoms have now disappeared. 

The bleeding was misdiagnosed three times and it was eighteen  months after the first time that I was referred to the hospital. That probably explains the upgrading. However I was lucky it hadn’t reached the lymph nodes and I only had three sessions of internal radiotherapy to reduce the risk of reoccurrence.

Hoping that your results come through soon and are good.

Sundial

Hello ladies,

May I ask whether your post menopausal bleeding felt like a period or was it just bleeding with no other symptoms? I'm nearly 53, last had a period in 2017 and yesterday started with brown discharge, a vague period pain feeling and a headache which won't shift - I always got these type of headaches with a period. I am thinking it is just a very, very late and hopefully last period. 

Prior to this I had been having phantom period pains for months, including pain down the front of my legs which I used to get prior to my periods. I had an ultrasound scan on my womb last year with no evidence of any abnormality. The phantom period pains eventually went away. 

Thanks for reading.

Hi

i was 64 when I had my hysterectomy and hadn’t had a period for 10 years. I had no pains just bleeding. 

Sundial

Thanks Sundial

I am nearly sure mine is just a very late period. They don't mention pain as a symptom for uterine cancer, just unexplained bleeding. I'm wondering whether to bother going to the GP. It is the period headache which has more or less convinced me it's nothing to worry about.