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Post-mastectomy with reconstruction swelling - how long?

21 Nov 2018 18:19

Hi All,

I'm two weeks post mastectomy with reconstruction (fixed silicone implant).

I don't have any pain around the area of the operation, but in terms of how swollen the breast is... well it feels like my skin is literally going to burst open like something out of Alien!  It's as if someone has opened up my breast and put in the largest bowling ball my skin can possibly stretch over.

I did have my lymph nodes removed but there is actually very little fluid buildup in the underarm, I assume this swelling is just natural inflammation all around the breast due to having had surgery in the area?

Does anyone have experience of how long the swelling took to go down?  Someone told me it can be months, I don't have clothes to go over it though it's that big.  I've already stretched two of my good t-shirts just by wearing them, I don't want to ruin any more clothes.  The bras MacMillan gave me can't be worn anymore as they are pulled so tight they dig in all around.  I want to be back at work soon but can hardly go in wearing the two pyjama tops I wore for post-surgery in the hospital Laugh yet they're the only things that will fit over my alien breast.

Thoughts?

LJx

Re: Post-mastectomy with reconstruction swelling - how long?

23 Nov 2018 22:19 in response to TwinTwo

I'm sorry you're having a bit of difficulty post op LJ.

I've had a quick look through the forum and found that @Cydonia ‍ and @DBird ‍ have recently had similar surgery so hopefully they'll stop by to chat and share their experiences with you when they can now that I've mentioned them in this post.

You may be able to get some tips and advice from the breast cancer ladies on the good and the bad thread so do drop in and say hi as I'm sure they'll do all they can to help as well.

Fingers crossed the swelling starts to go down soon.

All the best, 

Steph, Cancer Chat Moderator

Re: Post-mastectomy with reconstruction swelling - how long?

23 Nov 2018 23:10 in response to Moderator Steph

Thanks Steph, that's great.

Surgeon did say this morning, in a bemused way, "I'm not sure it can get any bigger!"

Laugh

It's a humorous sight at least.

LJx

Re: Post-mastectomy with reconstruction swelling - how long?

6 Dec 2018 11:56 in response to TwinTwo

Hi, 

 

I've just seen this post. So I'm now four weeks post op I had a diep reconstruction which is where the use your tummy fat rather than implants.  Mine is also still swollen but only slightly so I'm not too sure what help I can be I'm afraid.

 

Did you have all of your lymph nodes removed? Have you spoken to your reconstruction nurse/s? Mine is brilliant and aways has the best suggestions as she's seen it all before.

I've literally only just started wearing tops I can pull over my head and arms for the first two/three weeks I was wearing tops that I could button up it was soo much easier.. I wore boyfriend shirts but a baggy man's shirt would be just as good and they're so comfy! Especially because of tummy stitches at first they were incredibly tight so trousers were a massive no so I was rocking shirts and leggings for the most part. Maybe you can give the shirts a try, maybe with a vest top under--then you don't have to attempt to button the shirt up across your alien boobs lol primark or ebay are good for these.

 

Have you had your post op check ups at plastics yet? They may be able to let you know more about swelling and liquid build up. I would be slightly concerned about the amount of swelling. Are you still wearing the bras?

Hope some of this helps. 

Dbird. 

Re: Post-mastectomy with reconstruction swelling - how long?

6 Dec 2018 15:44 in response to DBird

Thanks Dbird,

Since posting they've had me in and drained it.  They then set an appointment for the following week (Tuesday just passed) to assess again but didn't drain it.  They don't want to do it too often as it could introduce infection.  Seeing them again tomorrow and I think they probably will drain again tomorrow.

My radiotherapy referral has been sent now so I need it to go down as soon as possible so I can start radiotherapy.

It seems to be just one of those things to do with the lymph node removal (I had all 10 axillary nodes removed) and mine is just a more extreme case than usual.  Sod's law for me :-D

LJxx

Re: Post-mastectomy with reconstruction swelling - how long?

6 Dec 2018 15:50 in response to TwinTwo

Yes I was going to suggest they drain the fluid! Lol wait so you're having radiotheraphy after your surgery? I thought they liked to do that all before??

 

Sorry I would have replied beforehand but this website doesn't like to tell me when I've  been attached to anything - however today it's being on its best behaviour! 

I had three nodes removed and I cant feel the lower part of my armpit properly, is that the same for you? Still feels like there's a local anesthetic there!

Well I personally would blame your alien boobs on it all lol

Re: Post-mastectomy with reconstruction swelling - how long?

6 Dec 2018 17:11 in response to DBird

Yeah.  Basically I have to have chemo as soon as I was diagnosed as it was already spreading.

Then after chemo I had to have the surgery asap as the chemo didn't seem to have been very effective and clearly some of my lymph nodes were still looking likely to be cancerous.  In the end they removed 10 lymph nodes, 4 of which had tumours and another 4 had been cancerous but the chemo had killed those cells off.  They weren't going to know until after surgery if i needed radiotherapy or not so it was all a case of doing the surgery I wanted long-term and hoping no radiotherapy was required.

Anyhoos, it is Laugh  Hopefully it won't upset the skin too much so won't affect the reconstruction too much.  It's mainly an aesthetic risk so that doesn't bother me much (albeit it will my awesome surgeon!) but there is a risk it will bring the life of the implant down to 2 years.  Hey ho.

With the fluid build-up I have no sensation in my armpit or down the back of my left arm.  After draining I get sensation back everywhere except for a large area of the armpit.  It's weird for putting deodorant on but isn't the end of the world.  Honestly though, when the fluid is huge I get an itch on the back of my upper arm that I can't scratch because there's no sensation there, it's the weirdest and most annoying thing!

Alien boob is doing well with its increase today.  Got two Christmas parties at the weekend so might be vain for once and actually ask that they drain it tomorrow so I can wear nice clothes.

Oh the things we go through :D

LJx

Re: Post-mastectomy with reconstruction swelling - how long?

6 Dec 2018 17:58 in response to TwinTwo

Lol be vain!  Sorry I feel like I was being really nosey when I was asking now! See I find putting deodorant on absolutely fine but shaving is still really strange I can barely feel it so I'm really conscious when shaving now! 

Re: Post-mastectomy with reconstruction swelling - how long?

6 Dec 2018 18:03 in response to DBird

Not nosey at all, I'm finding it all rather amusing what I'm having to go through to be honest Laugh

Shaving is, indeed, a bit precarious, and as I currently have cording it's pretty much impossible!

Re: Post-mastectomy with reconstruction swelling - how long?

6 Dec 2018 18:07 in response to TwinTwo

Haha I had cording too! It was rather frustrating seeing as I was doing all my exercises religiously!

My cords popped the second time I did the stage two exercises! So don't worry too much about it! They may pop on their own or the physiotherapist will help you out with that. The pop is very interesting doesn't hurt  you hear and feel it and then you're like yes my arm can now do this *lifts arm fully straight in the air get in!