Has anyone had their oncologist recommend this new drug yet? I would like to hear from anyone who knows about it as it is something that I will be asking for. thanks in advance,
I've had a look on the forum and we've not had any other members post about this treatment but I did remember reading a BBC News article about Phesgo just last week and my understanding is that this is a fairly newly approved treatment.
If you'd like to have a chat with one of our team of nurses I'm sure they will be happy to talk things through with you. They're available Monday to Friday from 9 am to 5 pm on 0808 800 4040.
I had my first Phesgo injection last Wednesday. The injection itself took around 5 minutes to administer & wasn't too uncomfortable. I had a bit of a lump on my leg afterwards, and a sore leg that night, but I would/will be happy to have it again in a few weeks. Hope that's helpful. x
I had this injection yesterday, it stings when they put the first bit in and then I didn't feel it after, maybe there's some local anesthetic in it? It made a small lump on my leg and the injection site was tender for a few minutes.
By the time I was going home no lump and no pain. I slept fine and don't feel any different this morning.
I just had my first injection of Phesgo Monday. It stung a bit going in but that was all really. I just finished a course of EC and I'm having Phesgo with a side blast of doxetaxel so no idea which drug is causing what side effects but so far I've had a few new ones this week mostly tiredness and muscular and joint pain and intermittent diahorrea. I was already getting flushed face, dry mouth, ulcers, constipation, hot hands, feet and scalp from the EC and that seems to have continued as well. overall the injection was fast and made for less time in the chemo chair which I'm all for. Hope that helps.
Hey I've had my first phesgo today, it made my eyes water for the first minute but it was ok really a bit of an achy leg tonight but nothing bad really. I'm having it was pacitaxel which I also had today having finished my EC 3 weeks ago. The nurse said that tiny little 8 minute injection costs £9,000!!
I've not had any hairloss with my Phesgo treatment, I'm also having bone strength injections. My hair is actually growing back really quickly and very thick!
Hi I've been on trastuzumub and pertuzumab since March, my last 3 times I've had the phesgo injection in alternate thighs each time, injection only takes 5 minutes now and stings for a couple of minutes when needle comes out , nurse rubs it for a minute or two then it's fine. However having had 10 of 17 so far , I've been having horrendous itching of scalp forhead , arms , and part of my neck which is causing great stress and irriratability, I think in some patients it does something to your skin barrier , I'm just trying out a steroid cream for a few days to see if I get any relief . apparently its the pertuzumab part of the injection that causes this problem along with diarrhoea. Keep smiling x
I've been taken phesgo for three months. Previously I was on Herceptin. I find Pheso not as refined, the side effect are certainly a bit harsh, my hair is thinning, my bones are becoming a problem, the others I can deal with.
