Persistent, unrelenting post chemotherapy nausea after Ovarian cancer - desperate for help

Hey, I'm new here so first of all hello to you all. Secondly, I've set this account up on behalf of my mum so I hope this is okay. She's not in a good emotional place right now, as you'll read below, so I'm taking this side of things on.

Last year she was diagnosed with ovarian cancer. Luckily it seems it was contained within a cyst which was removed and followed up by several sessions of chemotherapy. They also removed her ovaries. So far it looks very hopeful. She's in remission and has been 'downgraded' to 6 monthly checkups. So physically, all signs point to a full recovery.

However, while her chemotherapy is finished (has been for a few months now) she's experiencing persistent nausea. It's been about 2 or 3 months now, every day. It's making her lethargic, depressed and unable to function. Her appetite is reduced, she's lost about 11lbs and of course this is now leading to psychological effects as she's imagining the cancer has come back, and the worry itself is probably enough to make her sick.

So far, there's no underlying cause. She's been tested for bacterial infections, they've done bloodwork and of course CA level tests. There's an endoscopy to come on Monday but I get the feeling this will not reveal anything either. She's been on various anti sickness medications but for the most part, they do nothing. At best they work for one day but are useless thereafter.

Has anyone had any experience of this? We're all going crazy here. She's sicker now than during her treatment and I'm worried what the worry and depression will do to her considering her system is still weakened from the cancer and the treatment.

Any feedback, stories, help, etc. would be greatly appreciated. Thank you all for reading.

- Paul

  • Hi pookie

    I am glad to hear that your mum looks good on the scans but the nausa must be hard going.Did the chemo hit her very hard ?

    I throught i would mention one thing that surprised me.I have had health problems before and if i tried to ignore them and do exercise i just felt worse but with chemo if i took gentle walks even when i felt terriable it helped a little-it felt like it was moving things round.It is supposed to take a year to get over the effects of chemo and that has certainly been true for me.I hope you find the answeres you need.

  • Hey Grumpy, thanks for your reply. The chemo actually wasn't too bad. She didn't lose her hair, and for the most part she was just a bit groggy. This is the frustrating thing. Up until this nausea her recovery was, by all accounts, remarkable. This is such a huge setback.

    Light exercise is an idea but it's so hard to get her to do it at the moment. I've been doing a bit of reading into increased bloodflow helping to normalise the digestive system. But she's so worn down with the nausea that if I suggest getting out and walking, she says she's too weak. But my instinct tells me that staying immobile will just make her worse, and so the whole thing will feed back into itself. I'll see if I can get her out today.

  • Hi pookie

    I have found that if i make my goals tiny and achievable  eg. to the end of the street i can usually do more than i think i can. I was thinking i would mention "advanced multibillion dophilus "It  probably goes under different names but it is the same thing as the priobiotic in yougurt only massively stronger.I did not think to mention it  because for me getting my digestion started was the issue but perhaps it would also help with nausa.it does do wonders for the stomack.I would add that you would probably need to check with the doctors that it is ok with any medication she is on.

  • Yeah this is the thing, she's on and off a few different things, which I know sounds like the culprit but the sickness is there whether she takes one thing, or another, or nothing at all. I've read maybe two other posts on the internet of people, specifically with Ovarian cancer who experienced this chronic nausea *after* the fact, but no solutions. I've also read other posts about chronic nausea simply not going away, or being attributable to...anything. All very confusing.

  • Have you tried the wrist bands you can get for travel sickness. I know they work for that and supposed to work for morning sickness. So they may work for nausea caused by other things.  May be worth a try.

  • Hi Paul

    I'm sorry to hear your poor Mum is so sick.  As someone who was continually sick throughout investigation, chemo and after surgery, I can sympathise.   I wore travel wrist bands for month but don't know whether this helped or not and had various anti sickness drugs, including a syringe driver.  In the end, I found it did ease gradually and although several years on, I still get bouts of nausea, I find I have a good quality of life.

    Things which did relieve my symptoms were drinking cool drinks through a straw, ginger, to eat little and often (and try to eat even when feeling nauseous), sit upright after food and rest for a while, use a couple of pillows in bed, sip peppermint oil and last but not least, try not to worry too much.

    Your doctor is doing the right thing by having your Mum tested and I hope this will be all clear.  I hope it won't be too long before she gets rid of this horrible sick feeling which takes the pleasure out of the day and is so depressing.

    Please let me know how she goes along.

    Love

    Carrie

  • Hi all, I appreciate this thread is 8 years old but my mum is experiencing almost exactly the same issue as the situation described by Pookie and I wondered if anybody has any additional advice or suggestions please?

    She is due to have a CT scan this afternoon but initial blood tests have come back clear so we're at a bit of a loss as to the possible cause. 

    Any suggestions or advice would be much appreciated. 

    Thanks. 

    Paul.