Hi Sjoh,

I am so very sorry to hear what you are going through. I lost my grandpa to mestatic bladder cancer a couple of weeks ago (after we had the all clear in February). He battled for 3 years and on initial diagnosis was told it hadn’t spread through his bladder walls so accepted treatment, it now transpires that this was incorrect and it had begun to spread, so whilst for the past three years he had successfully beaten the bladder cancer, the rouge cells had taken on a life of their own in the background. 

It is utterly heartbreaking to see somebody you love deteriorate in this way and my heart goes out to you. My grandpa also lost a huge amount of weight and looked totally emancipated when he passed, but I can assure you that we tried everything to help him maintain weight, and keeping him comfortable was something we endeavoured to do despite the loss of weight so if you would like any information on that I would be happy to share experience. 

In the end just being with him and loving him was so precious, and he passed 5 weeks after his terminal diagnosis (they suggested he had 1-2 at the time so this was a blessing for us)

This disease is terrible, but if you need anybody to talk to I am happy to answer any questions or just listen to a vent.

Sending love and sympathy xx 

Brain Tumour Final Stage

Hello, my partner was diagnosed with stage 4 brain tumour 18 months ago.  After the first operation all went really well until February when the tumour returned a lot worse.  My partner has been laid in bed now for almost 3 months, it is so upsetting, she has now lost her sight, cannot stand up or use one arm, she cannot really communicate. It’s the worst cruel thing I have ever seen happen to anyone in my life.  She is only mid 50s strong, fit,?never drank or smoked.  I am absolutely heartbroken by what Ivan seeing happen to my wonderful partner who I have loved for so many years.  How long can this go on for?  Any helpful advise would be much appreciated.?

Hi RSL,

Apologies for the delayed response to your message, I’m very sorry to hear that you are going through this. 

It is hard for anyone to say how long this could continue for, and as obvious as it sounds taking teach day a step at a time is the only way to manage. 

The main thing for myself caring for my loved one was to ensure there was no pain and he was a comfortable as possible, again seemingly obvious but is something I now hold on to. 

All the best and here if you need to talk/vent. Sending love x