Ovarian/Endometrial now non curable

I started this journey in July 2019 with so much hope. I thought we had caught it early enough and I was going to be okay.  Now I'm told it's non-curable and life limiting.  Looks like I'll be lucky if I have a few more years and those years are probably going to be filled with one treatment after another.  I'm on my own, have a high pressure job and I don't know if I can do this.  I'm so scared of what the next few years are going to be like.  The deterioration, the needles, the pills, the fear.  I don't know if it's worth it. My head is spinning. 

  • Hi lovely, 
    I'm so sorry to hear you are going through this. My mum has incurable endometrial cancer, after a recurrence early this year. Even though my mum's cancer is quite advanced; she is in no pain at all and lives a normal life. She has been on chemotherapy to slow down the growth but had her last one cancelled because her tumour markers increased and so is waiting on scan results. 
    Im not a medical professional, just talking from experience and obviously still, everyone is different. But 'incurable' cancer sounds more terrifying than it is, some people on this forum have lived over 10 years with an 'incurable' diagnosis. 
     

    I noticed you said you're in your own. My mum is on her own too and she by far, finds this the hardest part. Please try and keep busy and talk openly with people you love. Or even reach out to cancer support groups, such as 'Maggies.'
     

    All the best to you x

  • Hi FJH95,

    Thank you so much for your reply.  I'm sorry to hear that your Mum is going through this too! Fingers crossed that we will both beat the odds!  I'm just trying to stay as positive as I can and make the most of the times when I'm feeling well.  I've only shared my recent news with one close friend as I'm waiting to hear the outcome of a scan and next steps before telling family, employers etc.  My friend has been a great support but she referred to me as 'dying' the other day.  It was really hurtful when I'm doing my best to convince myself that my life is worth living for as long as I can.  She didn't meant anything hurtful by it but it was as though she felt she had to give me a reality check because I didn't sound upset enough.  Relationships can be tricky through all this.

    I think Maggies a good shout - thank you.  I'm going to reach out to them.

    Thank you again for your reply, I really appreciate it and I hope your Mum is doing well.

     

    S

  • Hello

     

    how are you and his is your mum?

     

    unfortunately my mum also has incurable endometrial cancer... she's receiving chemo and I'm desperately hoping it works to control the nasty cells 

     

    look forward to hearing from you xxx