No answers

How does it help to he here in this chat room? No one has answers. But it helps to know others seem to feel and experience same fears and exhaustion that I do as a caregiver. I became some what panicky 2 days ago to the doc office, seriously my husband and our family have been patient with all these doctors and their personnel... But enough already with us waiting nearly 2 in half months for final outcome of a full report, because some of these doctors did not review Bobs case before we drove all that way to these doctors! 

I feel like I cannot handle this anymore...and knowing he still faces surgery for gallbladder and then finally treatments. After waiting so long had it given cancer time to advance further in his body? 

They say the cancer is aggressive and at stage 4, then why have we waited 2 1\2 months for 5 doctors to stop lolly gagging and get his treatment going? 

We are scared, frustrated, weepy, agitated, and yet we manage to wait longer, giving each other love and support through this sad journey. 

I know we will get through this, but meanwhile.....

  • Hello again.  That is bad, to drive all that way for no useful purpose.  And when you are so worried already about the delay in getting things moving.    And you are right, all we can do here is sympathise and tell individual stories; if we could remove all the stress and answer all the questions it would be great but we can only try to help each other and occasionally suggest something that we have found useful.  But we do depend on the medics to do their bit and do it in good time.  The people involved are our loved family members for heavens sake.    I have no idea how you can improve the service in your hospital when things don't go as expected; I remember you saying in an earlier post that you had to travel a long way to get to the hospital as there were not many places to choose from in your state. .  I think this forum is helpful in that  at least those in distress know that they are not the only person to go through this.  It is so nice to just hear from you from across the Atlantic.  And I hope things improve.  Annie

  • I understand your frustration. With my dad, it took weeks for doctors to give him any results when I thought he should be seeing someone once a week. I think I was expecting this to be like it is in movies, but it doesn't seem that easy. I'm not sure if doctors are lolly gagging or if they are actually busy with other things. It sucks because to your loved ones they are just another patient, but to you they are everything. Feel free to come on here and vent with aything you want. Even if nobody answers, it feels good to type out all your frustrations. Hopefully his doctors start tackling this head on and he gets treatment going.

    Cassidy

  • Thank you Cassidy...sorry for my long complaint, I want to remain focused on was is good. My husband seems well, my kids hug us often and my grandchildren are my sunshine....I sing that to my 4 yr old grandson. He hugs me all the time, I take care of him 3 days aweek.  So you see, I should not complain.  The drive to the cancer institute just makes me nervous as traffic half way there is heavy, I live in a smaller area and in 4 minutes your out of town. So larger cities get my anxieties up is all.  

    Thank you for encouraging me.hope you have a great week

     

  • Hi Annieliz...thank you for your encouragment.  Driving in large cities make me so nervous. I have only driven in a large city maybe twice in the 47 years I have driven, living in a small town or its considered a small city we have avoided cities and prefer country driving and country stores,  But I will persevere. Just need to get use to it.   Just flustered with all the time that  it has taken, I am just worried about him, being told how a fast growing cancer it is. We are getting closer to treatment options, told it may take another week to get it approved by insurance, if not then we have to appeal and search ways to get this plaid for. 

    Any way have a great week you and yours.  

     

     

     

     

  • As my hubby has stage 4 lung cancer in the last year we have experienced every feeling you are venting. We are now one year on after chemo and radiotherapy and back to being left to cope for three months not knowing if it's growing again.  So my sympathy is with you both.  It's hard but you need to take each day as it comes, good days have a laugh, go out, see friends and family.  Bad days stay home, eat properly and care for each other.  Try not to get angry it's wasted energy you need every ounce of strength to get through it.  Vent on here someone always gets in touch.  Read other posts to see how they cope.  I write under Stay Strong.  Contact me if you feel down.  Caz.

  • You don't have to feel bad for complaining. I honestly think going on here and typing out your frustrations would be a lot better than being upset and frustrated in front of your husband and family. I think everyone on this site understands the upsetting emotions we have dealt with. But I'm glad there are good things going on with your family because that is what's most important. It makes me glad to know you have a lot of love in your life. 

  • Hello again; A week's break - which was lovely - got a bit elongated after I injured my back  so I was away from home longer than planned.  On the mend now though.  I am used to driving in London but get a bit flustered when in the countryside sometimes.  The local people all know every inch of the roads where they live and like to zoom around - I would doubtless do the same - but I know they sometimes get frustrated when they are stuck behind me on a narrow windy road and they cannot get past.  As I don't know the roads and cannot see around the coming bends I am much slower than them.  But that is hardly a major issue (although sometimes it seems to be one when a long string of traffic has built up behind me and there is nowhere to pull over to let them pass!)

    How are things going?  Are the doctors getting a bit more organised now and giving your husband the treatment he needs?  How is he?  It must help to have a strong family group and I trust this is helping you cope with all the worries and difficulties.  Annie