Newly diagnosed

Hi All

I'm so rubbish at this kind of thing!

I was diagnosed with lung cancer about 10 days ago, I'm oddly calm which is unsettling but i don't know if it's "head in the sand" syndrome or an inability to accept the enormity of the journey I am having to face?

I am having a PET scan this week along with the breathing test to determine which treatment I wil have, although a lobectomy has been mentioned, the test results will be reviewed on the 15th May, I'm hoping I won't have to wait to long before I am told.

I guess keeping busy will help until then.

  • Hi K53

    I'm very sorry to hear of your diagnosis of lung cancer.

    I myself received my diagnosis calmly but was then unsettled by the wait between each investigation and result. I then found everything was more intense, meeting family and friends and so on, which to some extent filled those days.
    So, yes, I think keeping busy is a good strategy. Come on here and have a chat might also help and of course avoid Dr Google.

    Kind regards

    David
     

  • Thank you Dafra

    Sorry your going through the same!

    It is unsettling, I have to remind myself this is real, just waiting in between appointments seems to drag on forever, but like you say, It will become more intense once the decision is made.

    I'm so glad I found this site last night, it's lovely to have the suppport and a place to turn to with people who get it. Family and friends are the toughest to break the news to, I'ts exhausting!

    Regards

    Karen

  • Hi Karen

    I'm also newly diagnosed with lung cancer. Just doesnt seem real. Had PET scan ( thats a weird one!!!) and told no spread but advising lobectomy. Everything moving very fast and I keep thinking I will wake up!

    This site is the best- we are not alone

     

    xxx

  • Hi Karen

    I have to apologise for giving the impression I was diagnosed with lung cancer. I just meant that my diagnosis time and wait experience was similar. I have melanoma spread to lymph nodes but my sentiments of the post are correct

    It may be hard to tell family and friends but I think you will find that the support you get from a select few is worth the world

     

    Kind regards

    David

  • Hi Mushti

    Your right, it is a weird one,I had my PET scan yesterday, now in limbo until next week, the wait is the hardest part, keep having to remind myself this is actually real. 

    So happy for you there is no spread, such a relief, Do you have a date yet?

    Regards

    Karen

  • Hi David

    At the end of the day, we all have cancer, we're all here for that connection and from where I'm sat it's priceless.

    It's the oddest thing, I feel frightened to tell friends, worried what thier reaction will be, but at the same time feeling guilty for bringing this on myself, I've still to tell a lot of people, but putting it off until I have all the results and dates, (head back in the sand)

    Regards

    Karen

     

     

  • Hi Karen

    I'm booked in for surgery on 24th May. This is happening so fast and I feel so out contol. Like you, I dont know how to tell people, who to tell  or how. I feel stigmatised and to blame for my condition  - an embarrassment to all my friends who think they will live  forever and illness is somehow our fault. I have let myself down somehow.

     

    I am scared  beyond words but  will face this  - the staff at the Leeds Cancer Centre are amazing.

    Thinking of you on your journeyt - please keep in touch

    Love

    xx

  • Hi Karen

    Don't feel guilty please. I think you have great control waiting until diagnosis is clearer.  You are unfair to yourself bearing this alone. Anyway others here will give you support. Try and post any outcome. I'm sure I'm not alone in finding people here you want to care about.

    Kind regards

    David

  • Hi Mushti

    It's torture isn't it, we are strong though and can face this head on, technology is so advanced these days, we will get the best care they have to offer, and lobectomy is the best option for us, so i've been told.

    I don't have a date yet but think it will be sometime in June.

    I've no idea how many people in my life need to know, Ive only told my immediate family, and a few close friends, all of which have been supportive and not crittercised my choice to smoke, had they been different, I would question the relationship and keep my distance, we have enough to worry about.

    The irony of giving up smoking when our stress levels are sky high? 

    Self preservation kicked in when I had to tell my childern, I played it down to minimise the backlash, I've not had it yet but due to fly down for a vist in 10 days time and I know it's coming, but I find out on the 15th what the results are and the plan of action so no hiding after that.

    Sending you hugs xx

  • Hi David

    Thank you, that's so kind of you to say that, I think it's more a case of not accepting this is actually happening, but all will sink in next week.

    I've not ventured out of this chat yet, but I'm sure there will be lots of people to find and support each other. I was nervous chatting like this so thank you for being there.

    I will let you know how it goes on Tuesday.

    Kindest regards

    Karen