Hi - my husband has peripheral neuropathy - his feet and legs feel as if he has an uncomfortable sock on them and he has loss of/different sensation in his fingers. Apparently this is a side effect of oxaliplatin which was used on his previous course of chemotherapy. He has gabapentin pills but they don't seem to make much difference. Does anyone have any ways of dealing with this? does it ever go away?
Hello yog. I don't personally know anything about this but I typed the words "peripheral neuropathy" into he blue box above your post which reads "Search forum". Among the posts there (I haven't read them all) there are mentions of others having the same problem which may be useful - I haven't read all the responses. I am sorry I am not savvy enough to provide a link for you (someone tell me how to do this, please!) but if you take the same actions that I have described it may be that this post can help you.
Welcome to the forum Yog although I'm sorry to hear your husband has peripheral neuropathy.
I just wanted to put you in touch with two other members - @Jolamine and @Willowsambo - as they have experience of this and may be able to provide you with some tips and advice on how to manage it.
We have some information about peripheral neuropathy on our website but our cancer nurses are just a phone call away if you would like to chat to them about this as well. Their freephone number is 0808 800 4040 and are available Monday - Friday between 9a.m - 5p.m.
I hope this helps yog and that you and your husband are able to find a way of dealing with this soon.
Steph, Cancer Chat Moderator
Welcome to the forum. I had similar side effects from oxaliplatin but they faded away over time as my body recovered. It was a while ago now but from memory the cold/numb feeling was gone altogether after three or four months.
I have it in my feet, legs and pelvic area and increasingly in my fingers. I've no tips on handling it, I'm afraid, it's just something that's a part of me now.
Having said that, my legs and feet are worse at night and sometimes I take extra morphine before bed. Seems to work a bit but doesn't entirely get rid.