Mum has raised ovarian tumour markers but no ovaries!?

hi

Strange but true!?   as mum has had bloating I suggested I take her to GP. The GP agreed she was bloated and as colorectal team had ruled out any more cancer (which she had localised in 2017) He did bloods I guessed it may be for tumour markers but nothing was said.

In 2016 I vaguely remember her having an op and 1 shrivelled ovary removed.

Since 2015 she had a bleed on the brain now causing dementia  and then part of colon removed due to localised cancer , so you can see why trying to remember everything is difficult!

The GP was sending her for an ultra sound scan under the 2 week rule as CA125 levels were raised, until I mentioned the op when she looked at mums notes it said both ovaries were removed?? So now not sure what to do she has emailed the gynae team.......and I'm left wondering is it a typing error  or what? Trying to talk to gynae secretary today to see if she'll read the notes out to me as I do have power of attorney for mum now...

Has anyone else come across the test CA125 meaning something else please?

thanks

annielou xx

  • Hello annielou

    I'm sorry to hear about the situation with your Mum. I hope that you've been able to speak to the secretary today and that they've been able to give you some information. 

    Whilst a CA125 test can be used to help diagnose ovarian cancer a raised CA125 level can be caused by a number of conditions. If you are able to give our team of nurses a call I'm sure that they would be able to give you some more information about this that will hopefully help answer some of your questions. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I hope this helps. 

    Best wishes, 
    Jenn
    Cancer Chat moderator