My husband was diagnosed with MPNST, a rare type of sarcoma and he was already stage 4 when we got the diagnosis 2 months ago.
2 weeks ago it spread to his neck which fractured and he has also fractured his humourous. He is now terminal and has been given a prognosis of 3 months.
Our sarcoma specialists will not operate on his fractures as feel there is too much risk and he has not responded to the first chemo they tried.
He is 36 and I am 32, we got married 8 months ago. They want to leave him in a collar and a brace and that is no quality of life. Does anyone know if anything that we can try to extend his prognosis as we can’t help but feel no one wants to help. I appreciate it is rare but surely someone knows something?!
I am also struggling with thinking about life without him. Any advice would be appreciated.