More confused after Biopsy - Conflicting opinions on pain

I have had pain in my left breast for quite some time (around a year). I always feel like a burden when I go to see the doctor so stupidly left it in the hope it would disappear. Around 6 months in I started to notice my left nipple would invert when it’s not stimulated. Now when stimulated it’s hard but remains inverted then I have to almost massage it out (5 times out of 10). The pain has gotten worse and I finally bit the bullet to go to the doctors. I regularly check my breasts but to be honest I never really know what I’m doing, before I went to the doctors I did a check (with the help of a Youtube tutorial) and managed to pinpoint where the pain is coming from.

It was a fairly large lump at the bottom of my breast. Very hard, round and painful (the only way I can describe it is like someone putting a lit cigarette out in my chest).

I went to the GP who said:

- It’s mobile which is a good sign but to be sure he’d refer me to the hospital

2 weeks later at the hospital I saw a consultant who did a similar breast exam to my GP. He said:

- I’m only 26 so I didn’t really need to be there (maybe he was trying to be reassuring but it didn’t come across that way)

- The lump was ‘almost certainly’ a cyst because of the pain

- He’d send me for an ultrasound to give me peace of mind

 

I saw another physician a little over an hour later, she did an ultrasound and saw:

 

- A very firm lump which she immediately confirmed to not be a cyst

- She said it was dense and quite ‘vascular’

- A doppler scan showed me all the veins going to and from it (I think that’s what it was)

- She said if it wasn’t so painful (the scan made me cry) she would have said it could be a fibroadenoma but the pain means she ruled that out.

- She attributed the nipple inversion to blocks ducts which she confirmed on the ultrasound and said this was normal.

She did a Wide Bore Needle biopsy and afterwards I was sent back to the waiting room to go and see the consultant once more. I was also told that I’d be brought back to hospital after a week to talk through my results/next steps.

 

The consultant then said (without having looked at the images she’d taken or the voice notes):

 

- When I said it’s not a cyst he said “It’s a fibroadenoma then, nothing to worry about”

- I asked whether he’d concluded this from the scans, he said he doesn’t have them yet

- He said it will take up to 3 weeks to get to results and that if I have a fibroadenoma (which he echoed it was almost definitely) there won’t be any next steps.

 

I was already terrified to begin with but now the confusion has made things worse. Personally, I don’t think anyone should be able to say it’s almost definitely something without having looked at the scans or really taking the time to listen to my symptoms.

Sorry for the massive back story but while I’m waiting for the results I wanted to know whether anyone has had:

- A case where their Fibroadenoma was painful

- Conflicting opinions/information from doctors  

- Had something that’s benign/painful which isn’t a Fibroadenoma


I have so many questions and if it will really take up to 3 weeks to have any answers I would just like to know if there are others out there who have experienced similar. I know breast pain is common but I know the difference between it being disruptive and debilitating.

  • Welcome to the forum confuseddotcom.

    I'm sorry about all the conflicting information you've received. It must be very frustrating and mind boggling to be told all these different things but hopefully everything will be clearer once the results have come back.

    I think our lovely [@TwinTwo]‍ has had experience of fibroadenomas so hopefully she will pop by when she can to share her wisdom and experiences with you but you may find it help to chat with the ladies on this discussion about this as well. 

    All the best, 

    Steph, Cancer Chat Moderator

  • Hi there,

    What you're going through does sound really confusing and it isn't fair on you that they are giving you all this mixed information.  Mind you, when we have lumps our minds tend not to process information as well so it would be really helpful for you to take someone with you to these appointments so you have a second set of ears to take in the information.

    I had fibroadenomas for years.  Mine were painful but not majorly so.  I've also had an infection in the breast (which, because of the fibroadenomas) they investigated further.  It was very itchy and painful.

    The good news is that cancerous breast lumps usually aren't painful.  That's doesn't rule it out obviously but the pain is a good sign in that sense.  While statistically your age also makes it far less likely to be cancer they should never tell a patient that they're "too young".  That's not how statistics work!  It's less likely that you would have cancer but when faced with an individual they cannot possibly presume that person is too young to have it.

    There are some cystic conditions you can get with the breast that cause pain.  They are also more prevalent with age but that doesn't rule out someone in their 20s having them.

    By the looks of it they are giving you your biopsy results around 7 days after it was done, that's good, it's often 2-3 weeks for biopsy results.  While the biopsy results may not tell you what it is, they will hopefully rule out cancer (which is presumably your biggest fear).  Scan results can take a few weeks simply because the radiologists have so many scans to go through, but it is best that they do this rather than rush things.  Even if your worse fears are realised the 3 weeks won't make any difference, in fact when people are diagnosed with cancer it can be many weeks before any treatment commences so don't worry about this delay in diagnosis (easier said than done I know).

    I'm not sure what else to say, hopefully you are getting your biopsy results around now (sorry, I'm having slight eyesight changes with chemo which is causing headaches so I'm not on my laptop much just now).  Please let us know what they say.  And please do ensure you take someone (best to go with someone calm and logical) along to any appointments you have.

    We're all here for support while you're going through this.  Hopefully it won't be cancer but, if it is, you're in the right place for support.

    Wishing you all the best.

    LJxx

  • I had a biopsy 9 days ago and my breast is painful the results say I have breast cancer which can be treated also that my biopsy has been sent to Oxford for more tests to see if it is negative or positive which confuses me she also said it was a mass 20mm she said they put it down as a 3 as it could be quick growing which is worrying me so much there is no lumps to feel and I went because my breast was painful although I have always had painful breasts has anyone had this sort of results