Mixed up

Hi Again 

just wondering if some one has been in the same position as to where I am now. I have just been to see my consultant who has said that my tumour is 4 centimeters grade 3 which is hormone related and HER2 negative. He has said he does,not think it has went in to the lymph nodes but wants to do a lumpectomy and has said he is not sure whether he will get all clear margins, but because of the size of the tumour I may need to have a mastectomy futher  down the line. also because of the size of the tumour and having a lumpectomy that I will have to have radiotherapy. He has said that once the tumour is analysised that the grade could possibly could be downgraded to stage 2. He then went on to say that depending on what the pathology comes out that I might need chemo. My op is plannd for this Thursday, but my head is spinning with all this information please help ️

  • hi there I’m much the same my lumpectomy is next Friday 11th October my doctor told me exactly the same might need chemo or radiation therapy they don’t know exactly until the pathology results come back around 3 weeks after surgery on my biopsy results it indicated stage2 18mm tumour ER positive Her2 negative they hope to get clear margins on the first lumpectomy but if not achieved they’ll be a second one to remove more tissues also they don’t think my nodes are affected but will take 2 out in theatre and test to make sure and if needed take more out there and then I know it’s slot to take in isn’t it just a whirlwind of doctors telling you things that’s not really sinking in I’ve taken someone with me to appointment for a 2nd pair of ears to listen in case I missed something 

    Good Lück 

    i hope all goes well for you in surgery please keep us updated xxx

  • Thank you for you reply it's giving me peace of mind to know,that others are at the same stage as me. It is information overload my head has been spinning since being diagnosed two weeks ago. I am at present also having problems with my arm a dull ache down it and keep thinking is this something to do with my cancer, has it spread, which my husband said he doesn't think it is. I am trying to stay positive, but it is hard at times, you hear that word cancer and you think that's it, but I have spoken to some people who have been really helpful, I am trying to keep my mind off the what ifs and what might be and hopefully once the op is over and I have the results my mind might be in a better place. It is a waiting game I suppose, not sure how's you feel, but I hope you op goes well and wish you luck x

  • Thanks yes I feel exactly the same mixed bag of emotions scared of the surgery and the anxiety is bad  I’m trying to keep busy but feeling more tired than usual don’t know if it’s the cancer or just mentally overloaded  and speaking with people and the appointments has been draining I’ve had aches in my shoulder  and  overthinking incase it’s spread I don’t think it has but very worrisome I really didn’t realise how common breast cancer is until I was diagnosed a lot of women going through the same try to stay positive as I’m trying to do so and good luck for Thursday x

    Best wish’s marie 

  • I am sorry to hear about your diagnosis, hopefully seeing all the post will show you that you are not alone.

    It is scary when you find out and takes time to adjust but you will. I got my diagnosis 2 weeks ago and go for surgery this Friday. I was all over the place until a few days ago but now things are happening things do feel more settled.  Early diagnosis and treatment is driving the speed at which treatment takes place so please be reassured by this. Talking to the BC nurses helped me, you might find it helpful too. i wish you all the best for your surgery and hope things settle for you soon

    xxxx

     

  • Thank you so much for your reply, I know it's a waiting game, but it is great when you get replies from people who say that they are further on with their treatment or have come out the other side. I think I will speak to the BC nurse tomorrow as you say she or he might put my mind at ease, thank you again x

     

  • Hiya! I’m 2 days post lumpectomy. Mine is stage 1 possibly upgrading to stage 2 depending on pathology. They said they would removed 2 lymph nodes depending on what they looked like and they’ve ended up removing 4. Also warned that I may have to go back in to have the rest of the lymph nodes removed and possibly more tissue.

    your arm pain is probably stress, I had pins and needles in my fingers and pain all the way up to my shoulders and neck while waiting for results so try not to worry about that!

    surgery wasn’t half as bad as I thought either. 

    We can all tackle this together ️

  • Thank you so much for your kind reply. I suppose when you hear that horrible word every little ache and pain has you questioning is it associated to it. Good that you op has went well I bet you feel that's another step forward. I am one step behind you my op tomorrow. Let me know how your result go keeping my fingers crossed for you that all is well 

    sending good thoughts you way ️

  • You will be completely fine! I know it’s hard but try not to worry. One step at a time!

    good luck for tomorrow thought just take a book and try take your mind off it.

    ive got an appointment at the genetics in a different hospital tomorrow for testing so that’ll be another one ticked off the list!

    all the waiting time in between is the hardest. We should get our results around the same time too sonplease do keep in touch and let me know how you get on xx

  • hiya good luck for tomorrow and a speedy recovery do let us know how it goes mine is next Friday 11th October 

    best wishs marie x