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Lobular cancer

16 May 2022 20:06

Hi all 

I was diagnosed with the above 20/4/22, starting taking Anastrozole 23/4/22. Had my Merina coil removed 28/4/22 had my CT 7/5/22 & MRI 9/5/22 and being discussed at the MDT tomorrow !! But I feel totally calm about this all - I'm waiting for a full treatment plan before we tell the kids - 3 teenagers - when is reality going to hit me ??? 

Lobular cancer

17 May 2022 15:09 in response to MDon

Hello MDon and welcome to the Cancer Chat community.

I'm sorry to hear you've been diagnosed with Lobular Cancer but I hope it helps to know that many of our members have experienced that same feeling of calmness once they found out what they were dealing with, so you are not alone in feeling this way and hopefully you will receive some support and advice from them soon.

If you have any questions or would like to discuss anything that is playing on your mind with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

In the meantime, I hope it won't be long until you hear back from the MDT meeting and all goes well when telling your children about your diagnosis. Cancer is a difficult topic to talk about but I hope this information and guidance we have on talking to children about cancer will help. 

We're here for you MDon and we will do all we can to support you on your journey.

Kind regards,

Steph, Cancer Chat Moderator

Lobular cancer

17 May 2022 15:28 in response to MDon

It sounds cliché, but there is no right or wrong way or time to worry. If it happens, it happens, but it may never hit you like you expect it to.

My wife and myself never experienced that "oh ****" moment that you hear a lot of people talking about. Nor was the meeting with the initial breast specialist all doom and gloom like you see on tv, where your entire world crumbles. They broke her cancer diagnosis in increments, so there was no definite moment. Nor did they ever use the word "cancer". Used every other term, but yeah, it was broken in small stages to her, and she was relaying it to me via text (I wasn't allowed in the hospital due to covid). So when the day came to get the official "you have cancer" appointment, it was not a surprise at all. Those 2 weeks allowed us to come to terms with it in some sort of way. The hospital handled it very well. Can't fault them.

We had a small cry the next day, but that was it. They could have been telling us she had a broken finger nail, not stage 3 aggressive breast cancer. It was all a bit bizarre, but it's how we handled it.

I think what i dreaded most about it, my gran had lung cancer years ago, then got the all clear. But i began to dislike going to visit (i was only a young 16 ish at the time) as no one spoke to anyone. Everyone just sat there like they were waiting for death even though she had the all clear months, and eventually years previously. It was never like that before. She eventually passed away with something else, but i don't think she ever enjoyed life after that. That terrified me that this was the way it was. But for us, we still laugh, still do things and we're basically ok. Don't get me wrong, during the treatment, there were dark times, very dark times as her second type of chemo was killing her and making her really unwell, but she got through it and here we are. She got the all clear last week as she had a complete response to treatment prior to the op. Only the radiotherapy to go.