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Coronavirus and cancer

We know it’s a worrying time for people with cancer, we have information to help. If you have symptoms of cancer contact your doctor.

Read our information about coronavirus and cancer

Living with Stage 4 Breast Cancer.

18 Aug 2020 22:17 in response to lulabelle39

Hi Lullabelle

It's not club any of us want to join is it?

Well done you for being so proactive in doing all you can to research the best possible treatment for yourself - I admire your reliance at such a tough time

Please continue to post to keep us updated if you feel able to.

We must all hold on to the fact that great strides are being made all the time in secondary breast cancer research and even in the last 5 years we have access to drugs now that we would have not had had then.

Rooting for you all the way

love Julie xx

 

Living with Stage 4 Breast Cancer.

18 Aug 2020 22:46 in response to JulieD123

Hi Julie,

it's absolutely not I hope there comes a time where no one has to join!!

I just realised my medical team aren't that invested in my outcomes I'm one of many which is fine they have a job to do so it's upto me to keep ahead of the times and ask for everything or do it myself where I can. We all respond differently to different treatments and have different tumours, metabolisms, immune systems, body's and minds which will all effect different treatments. 

Exactly I mean who would have thought even five years ago immuno would be available for breast cancer especially TN or that stem cells mixed with immuno is even in a trial form at Yale and could be a possibility as a second or third line treatment in metastatic cancer. I spoke to my aunt about it today and she said it's like something out of a sci fi film! 

I will keep you all posted I have my first scan in just over a month to see how it's all going so all the positive light going to that!!!

Love

Lucy XX 

Living with Stage 4 Breast Cancer.

23 Aug 2020 17:48 in response to lulabelle39

Hi Lucy

 

 I wish you the very best with treatment and your next scan

 

love Julie x

Living with Stage 4 Breast Cancer.

19 Sep 2020 10:26 in response to mare

Hi Mary. 

I'm being messed with here with my new meds.i was told have a blood test three days before i finished my 28 day course i got dates wrong did it early but doesn't matter next day I should phone up and order next lot to be sure i phoned up day early told I'd get callback nothing,.

Tried next day nothing last day of tablets tried calling again no call back, tried next day reminding them I'm out for tablets nothing, yesterday tried again kept phoning explained weekend coming up finally got a call back saying tablets ready at chemist BUT nobody to deliver them can i pick them up. So had to go round friends and neighbours asking if someone could take me because i as feeling rough. Then find someone to look after bren got sorted,

Got back home 6.30 with tablets "hurrah" started second session two days late, so going to have to get something sorted for next time so it doesn't happen again..

Hope things are going well with you Mary. I know sometimes nothing going on so nothing to write, 

Oh nearly forgot i like tomatoes. And sometimes there's odd seeds in the washing up water when i throw it on the garden this year I've got eight two foot high tomato plants with loads of flowers and six baby Tom's up to now, only trouble it's front garden anybody can see them and pinch them but so far so good. 

Keep positive and keep fighting and keep safe. 

Love Billy xxx 

Living with Stage 4 Breast Cancer.

19 Sep 2020 15:23 in response to Billygoatt

Hi Billy.

What a pain to have to fight with medication mix ups and blood tests etc. It's not a time any of us want to be traipsing around with all this Covid stuff going on is it!

I'm glad you've got people locally who are willing to lend a hand when you need it. I bet things can get a bit tough what with looking after your wife too.

Things here are going well thank you. My recent scans showed that my disease is still stable thank goodness!

I love your tomatoes story, it makes me laugh! Gardening (and growing herbs) is one of my favourite things to do whenever I can. I hope you're enjoying this spell of sunny warm weather?

Carry on carrying on my friend, 

All best wishes to you from here,

Mary xxx

Living with Stage 4 Breast Cancer.

26 Sep 2020 08:48 in response to mare

Hi Mary 

Spoke to my oncologist wed, I've been struggling for a couple of weeks blood pressure going low can't eat or drink much before I'm full, light headed. 

I said is it new tablets straight away she said no it's my steroids for my addisons,. I felt a right idiot, I'd had these problems before but with just starting these tablets i forget about it, anyway checked with Dr and specialist both agreed increase dose which i have and getting better slowly. Cancer count is much better but she wants another bone scan and Mri to double check. 

If i could I'd kick myself. 

Really glad about your results, did you celebrate. 

Love Billy xxx 

Living with Stage 4 Breast Cancer.

26 Sep 2020 10:58 in response to Billygoatt

Hi Billy,

I'm glad you're able to keep in good close touch with your oncologist. In this Covid environment I need to hear reassurances that I won't be forgotten, so it's good to know that you're still accessing good treatment. Thank you.

I do hope you get on top of the lightheadedness very soon. It must be horrible for you Sad

Yes I celebrated after the latest scans, but I find I am always a bit numb. I prepare myself for bad news every time so it takes me a week or two to adjust again.

Love and best wishes,

Mary

Xxx

Living with Stage 4 Breast Cancer.

26 Sep 2020 16:05 in response to mare

Hi mary

I quite understand what it's like I'm same especially with my cancer count rising lately, even though its going down still got scans yet to check other places.. 

Like we all say keep positive and keep fighting. 

Best wishes and lots of love Billy xxxxxxx 

Living with Stage 4 Breast Cancer.

29 Sep 2020 14:01 in response to Billygoatt

Hi all,

I said I'd come back after my first scan and here I am.... my professor was bouncing around as I have responded very well to the chemo and immuno six more chemos then maintenance immunotherapy if all continues as it is. She said it's barely feel able as she said with how mine is the scan would she spread but she prefers a feel to know what happening. I have a low thyroid but that means the immunotherapy is working as it dose in lung patients.

tentatively happy and praying it continues to do so for many years!!!

Thank the lord and all the modern advances!!!

lucy xx 

Living with Stage 4 Breast Cancer.

2 Oct 2020 18:48 in response to lulabelle39

Oh that's such wonderful news Lucy!

Yay! Xxx

So pleased.

You've made my day!

Xxx

Mare

Living with Stage 4 Breast Cancer.

2 Oct 2020 19:04 in response to mare

Thank you Mare,

 

I'm very pleased  

 

As with us all it's a tentative happy but it would be nice to not have to worry for a while

 

xxx

Living with Stage 4 Breast Cancer.

3 Oct 2020 12:29 in response to mare

Hi Mate,

 

I read your post from 2 years ago and thought I'd drop you a line. I've also read your website and find you so inspiring.

 

I have stage 4 inflammatory breast cancer that has spread to both lungs and liver. I've decided I'm too young to die ( I'm 51) My grandbabies are still in the future so I have to stick around for them. Plus my husband and son's will be lost without me.

 

9 years is amazing but I still selfishly want more so I'm concentrating on diet, supplements and fitness. I'm incredibly positive and so determined not to die. I start chemo next week. It's been a long time coming and I'm desperate to begin my fight. 

 

Let's hope we have many more years ahead of us.

Barb xx

 

Living with Stage 4 Breast Cancer.

3 Oct 2020 14:08 in response to Barbm

Hello Barb!

Yes, that is something I always said (it is like being at a birthday party when everyone else is being offered a big slice of cake (40 years maybe) and I'm being offered a few crumbs), and it's not selfish.

Like you, I want it all! And I continue to do my best to help my treatment along with diet and exercise.

But I have put on an extraordinary amount of weight again through lockdown and with a hip problem - it needs urgent attention! :o

Good luck with your chemo next week. I think your attitude towards it is an excellent one (that the chemo will be working for you). I found it too easy to slip into sad mode and feel like a victim of side effects. It became easier for me when I pictured the chemo destroying the tumours like a battle. Then it became a positive experience and my feelings about it became constructive and healthy again.

Thank you so much for reading my posts. I incredibly grateful to still be here and, after never allowing myself to even hope to reach 50, or have any grand children, I am 54 next month and my sixth grandchild is due in November too! So, if I can give a bit back I'm really pleased.

Glad you're raring to begin!

You're always welcome to pm me, and I do often check on here. I will always reply if I see a message or post on here.

Lots of huge hugs (socially distanced of course!) and best wishes,

Mary

Xxxxxxx

Living with Stage 4 Breast Cancer.

17 Oct 2020 21:35 in response to mare

Hi Mary. 

Finally starting to get sorted i hope been struggling to do anything without being short of breath head felt like it was full of cotton wool couldn't remember anything, bren had to keep reminding me about doing things, been keeping check on BP since going on those new meds still low so Dr and told me to increase to one more tablet daily luckily my mind was working just then had reminded them that my prescription wanted changed or I'll run out very quickly, Dr was supposed to be coming out to see me instead got a phone call and told to come to dr for a blood test, talk about being messed around,. 

Any way hopefully I'll be sorted next few weeks., oh got another bone scan 6th Nov that's 5 this year hopefully I'll still have a radioactive glow at Xmas so bren can hang a few trimmings on me.

Hope things are going well with your household, haven't seen you on lately then noticed you'd replied to some earlier. 

Please let us know how things are going always wonder. 

Love Billy xxx

P.s was definitely struggling to keep going but back to normal routine positive and fighting again 

Living with Stage 4 Breast Cancer.

18 Oct 2020 09:46 in response to Billygoatt

Hi Billy,

I am glad you are back to your more positive and fighting self again - life is definitely interesting isn't it.

Good luck with the bone scan, I shall have fingers crossed you get good news. Please let us know how you go.

Life here is trundling along nicely at the moment. My middle son has moved back in to save money. He is a jazz pianist so the house is full of music again. I love it!

My daughter is due to have her second baby in November so I'm quite excited for that. I haven't hugged her since February; gosh how I hate Covid!

I have put on weight over Covid lockdown, and was cheating dreadfully at the diet, but am sorting myself out again slowly. Bearing a lot of weight is not supposed to be good for cancer is it, and I'm bearing tonnes!

You always make me laugh with your posts on here, and this last one was no different, but I do hope the radiation dies down quicker than Christmas!

Good to stay in touch,

I'm always about,

Love and socially distanced hugs,

Mary

Xxx