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Living with prostate cancer

10 Apr 2019 13:12

Hi again, i just realized my beloved dad has prostate cancer and spreaded inguinal area and iliac lymph nodes, i really do not understand those terms could somebody try to explain to me please? In an article it says inguinal nodes are distant ones?? is it true, i have been trying to be calm but that information has made me start to worry. He is on injection last 3.5 years (seems doctor said might work 2-3 approx) so i am worried that injections will stop working soon and he is gonna get worse Sad At the moment he his mobility getting worse. He has diagnoised with pc approx 9 years ago with 3+4 score so since then actually he was doing great. His bone scan always came clear (so far so good), so has anybody had similiar spreading area and what to expect next, how pathway could be? Also he is gonna see his doctor sometime in July and wanted to ask if it worth asking his doctor if he could have an operation and get rid of the cancer, some people say it s possible some people say not? By the way in his letter it says his ca T3/T4? 

Thanks a lot.

Living with prostate cancer

10 Apr 2019 13:39 in response to severalproblems

Hi those first words are for around the groin area for lymph nodes & muscles in groin area is he thinking of treatment. I've had C for over 3 years now started in prostate, then lymph nodes, bones (pelvis, ribs, and spine) & 1 lung they found it Feb 2016 had kemo June 16 psa 1581 gleason 4+4=8 grade 4 I have hormone injection and tablets twice daily psa went down low coming up again if you want to check on me check on billygoat good luck with what ever treatment he has.

Billy 

Living with prostate cancer

10 Apr 2019 16:57 in response to severalproblems

Hi severalproblems.

I am not a doctor; however, I am a prostate cancer survivor. I had surgery for prostate cancer back in 2010. 

Unfortunately, the surgery ("radical prostatectomy") is only a realistic option for early stage cancer which is either contained inside the prostate itself, or has only just begun to spread to local lymph nodes. That means T2 and some T3 cancers. Once it has spread further (T4) then it is too late for surgery to be effective, and since it's a major operation, it would simply be putting your dad through a traumatic procedure which would not have any effect on his lifespan. He would be facing a period of post operative pain and then at least 6-12 months incontinence. 

Living with prostate cancer

11 Apr 2019 14:18 in response to severalproblems

Hello and thank you for your post,

I am very sorry to hear about your dad's situation.

In relation to where the cancer has spread to the lymph nodes in the inguinal area relates to the groin lymph nodes.  The iliac relates to the lymph nodes  in the pelvic area probably close to the prostate. 

The stage of someones cancer relates to its size and if it has spread. With prostate cancer staging you need to take into account the size of the cancer (T), the involvement of the lymph nodes (N) and if it has spread to another part of the body (M). Because your dad's cancer is a T3/T4 and has spread to the lymph nodes it looks like it could be a stage 3 or 4 cancer, but I really cannot know this for sure. Only his specialist doctors can say what stage it is. You might find it helpful to read our information about prostate cancer staging on our website, click here to see it.

The hormone treatment  he is having can control the growth of the cancer, and many men find that it can do this for many months or years. But, unfortunately  no one can predict how successful it would be.

I think it is very unlikely that surgery  could be an option for your dad. Surgery to remove the cancer is usually only possible if the cancer is only affecting the prostate and if it has not spread outside of it.The decision to do surgery is very individual so only your dad's urologist can say if this possible.

I hope this has been of some help to you. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take care,

Caroline

Living with prostate cancer

11 Apr 2019 14:53 in response to Billygoat

Thanks a lot for the information, i hope you will recover quickly as i can see how strong you are on your posts. I could not have a chance to check all your posts yet however i will as soon as possible. Any idea if inguinal lymph nodes and preprostatic lymph nodes are same meaning? Becasue my dad mentioned that his last ct scan shows disease progression with an enlarged preprostatic lymph nodes..

Living with prostate cancer

11 Apr 2019 14:55 in response to telemando

Thanks a lot for the information, well there must be extra things rather than injections only, will talk to him today saying he should ask propely his doctor for the options.

Living with prostate cancer

11 Apr 2019 14:58 in response to CRUK Nurse Caroline

Thanks a lot for the information. I keep checking the link you sent me but still confuse however i am sure i will find the answer in one way or another. By the way any idea if inguinal lymph nodes and preprostatic lymph nodes are meaning same thing? Becasue my dad mentioned that his last ct scan shows disease progression with an enlarged preprostatic lymph nodes.

Living with prostate cancer

11 Apr 2019 15:02 in response to severalproblems

Hi yes the two lots of lymph nodes just tell you we're they are in the body I'm afraid I don't know we're that is but probably around the prostate area (I. I'm only guessing).most C go from prostate then to lymph nodes then bones. Hope it helps.

Billy 

Living with prostate cancer

15 Apr 2019 11:51 in response to severalproblems

Hello

I think you mean periprostatic rather than preprostatic.  Periprostatic means the lymph nodes right next to the prostate gland.  In his situation, when the doctors already know that he has spread to his iliac and inguinal lymph nodes, knowing that the periprostatic ones are also affected doesn't really add anything in terms of understanding what might happen next.

But because he has spread to the lymph nodes in his pelvic area generally, this means that surgery wouldn't be helpful.

So I wouldn't focus too much on precisely where the lymph nodes are that are affected.

I hope that helps

Martin

Living with prostate cancer

15 Apr 2019 12:03 in response to CRUK Nurse Martin

Hi I've got a friend who had prostate cancer he had prostate out and some lymph nodes as well I'm afraid I don't know where they took them from, if there is a risk they should be able to take them out (you here of them being taken out all over the body) good luck with what ever treatment he has.

Billy