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Leaukemia

29 Dec 2017 23:23

Hi I had acute lythoblastic leaukemia would be 13 years ago in Jan, but now my 53 year old dad has got the same but chronic, I just can't belive it I really don't know what to do or say when I see him i just avoid talking bout it at Xmas day. I think I know how he feeling but I was quite lucky as was only 19 when got it had no finatual worrys as was still at home. I nod hoe 3 lovely young children which was told might not b possible and am healthy but this is bringing it all back up and am struggling  my dr can't belive this as happened never heard of it but if go back to him I don't want tablets, my mum is in peices too as she was by my side all time why my dad worked to keep everything going. I am lost 

Re: Leaukemia

30 Dec 2017 01:15 in response to jko

Hi jko

My brother in law has had a chronic form of leukemia for many years. It is well controlled and causes him no major problems. Sorry, I don't know the type. 

Perhaps all is not doom and gloom, and with appropriate management your dad can do as well as my brother in law. 

It might be worth reading up about this form of cancer on the Cancer Research web site.  My recommendation is to avoid US sites for medical information. 

Re: Leaukemia

30 Dec 2017 08:24 in response to jko

Hello jko and welcome to our forum although I'm sorry for the reason that brings you here.

Telemando gave some good advice when it comes to reading information on our website so I thought I might stop by and send you the link to the page we have on the different types of leukaemia. I hope this can be of some help.

Also, feel free to give our cancer nurses a call if you feel like talking to someone medically trained might help, they're available on this phone number 0808 800 4040, Monday - Friday between 9 a.m. - 5 p.m.

Warm wishes,

Renata, Cancer Chat Moderator

Re: Leaukemia

30 Dec 2017 09:37 in response to telemando

Hi thank you for a quick reply, I had ALL he has CLL   

We are waiting for his scan results he had scan yest that will give more info I am very worried by mount of weight he lost and everyone saying oh u do look yellow I with I could speak for people who are around him n re word there words as I know people don't realise how it hurts. I have been reading leaukemia is heditory i now worry for my 3 children. After 12 years I though this word as gone but not so long ago I met my youngest son best friend mum they are 3 to find the mothers brother was the boy who died from ALL when I was in hospital