Just been diagnosed, BC - triple negative

Hi there,

I joined the group a couple of weeks ago after my scan and biopsy and found it useful and supportive reading what everyone is going through and their advice whilst we all face the C word!

I've now received my diagnosis and plucked up the courage to say 'HI!' :)  I'm still reading up on all the booklets i've received. A strange feeling really counting the days down to your appointment like a holiday without the excited feeling and now coming home with loads of booklets and not holiday brochures.  i feel strange that i have a sense of relief but a strange relief as I do have cancer and not the all clear.  Does anyone else have these mixed feelings?

I've been diagnosed with stage 2, grade 3 and triple negative.  Well from my understanding, i'm waiting for the confirmations to all come in the post.  I remember them saying 18 weeks chemo, 5cm tumour, lymph nodes, masectomy, radiotherapy....

I still feel very detached and like they are talking about someone else as i dont feel ill.  I was hoping to be pregnant :( so feel very sad tonight that is unlikely to happen now with my diagnosis and that i'm 42.

So mixed feelings all around tonight. 

Mich x

 

 

  • HI, yes I have all the same feelings and mixed emotions. I am having my first chemo session today and am terrified. I was supposed to be going in at 8.30am but I got a call yesterday putting my appointment back to 11.30am as they haven't got approval yet even though I have already signed the consent form. I am praying that my chemo doesn't get delayed. 

    It is really hard to stay positive but I am really trying. Good luck with everything, have you got a start date for your treatment? I found that the hardest bit, waiting for my appointment and praying nothing gets any worse whilst waiting. 

  • Hi SueBea

     

    Urgh I'm not very clever I've just typed a message to you and did something wrong when sending and lost it, doh! I'll blame movement of the train! 

     

    Thanks for your reply a d good to know we all have these mixed emotions. At the moment it feels like it's not me a d was someone else they were talking about. As I don't feel ill and haven't had any letters etc. I was diagnosed on Tuesday so early days still. Think they said chemo in about 4 weeks. 

     

    Aww sorry your appointment has been moved, I hope they don't keep you waiting too long. Good luck for today, I'll be there soon needing some encouragement.

     

    Mich x

  • Hi, I'll let you know how I get on. I'm sure it won't be as bad as I fear. It is frightening feeling well but having cancer. Take care and I'll be back in touch soon

    Sue

  • Hi Sue, 

    How did it go today? Hope you feeling OK.

    I had a nice day at work with colleagues, taking my mind off things. Felt a lot better than yesterday, so like everyone says one step at a time eh. 

  • Hi Mich,

    Thank you for asking. Yesterday was a long day, my chemo didn't start until 3pm and I eventually got home at 8pm. Yesterday was ok but I had a bad night with neasea and severe headaches. I came home with loads of meds for sickness so hopefully that will sort out the problem. Having said that, I don't feel too bad otherwise and I have heard that the first week is the worsed and then things  improve.

    Everyone in the chemo unit are really lovely and the other patients are really encouraging. You are also given emergency phone numbers so you are never on your own. Be warned, it is really boring being in the hospital for so long so take a book, music or i-pad.

    let me know how you get on.

    Sue x

  • Hi Sue 

    Ah bet you are relieved day 1 is over. That is quite late you got back too! Hope your next episode will be earlier.

    Thanks for the recommendations u she a couple of books I've been meaning to read. I've got a note book now too, so I'll make notes to help me get through. 

    How was your weekend? Hope you are feeling better. I've got my ct scan on Saturday so one step closer, just waiting on my oncology appointment.

    Were you offered clinical trial at all? I've made a note to ask. 

    Hope you having a relaxing eve

    X

  • Hi  Mich,

    I am hoping the worsed is over as I am feeling a bit better today. The neasea and headaches have thankfully eased. 

    I wansn't offered any clinical trials, first I've heard of it.

    Let me know about your CT scan and oncology appointment. I felt much better once the Chemo started as I felt I was in limbo before not knowing if the cancer was growing. It's not easy but it is doable.   

    Look after youeself and just take each day as it comes.

     

    Sue x     

     

  • Hi Sue, 

     

    How's it going? Are your headaches better? I'm a migraine sufferer and on preventative medication each day to help, so little worried they may get worse with treatment.

    My oncology appointment hasn't come through yet but have the scan on Saturday and now I have a bone density scan on Tuesday. Guess I'll hear after these. 

    I've heard about clinical trials, so I'll ask. Are you TN too?

    Hope u enjoying some of the sunshine  

    Mich x

     

     

  • Hi Mich,

    Yep, I am TN too. Over the shock and ready to fight now! You are in the best hands, it's not easy but it is doable. Let me know how you get on at the scan and Oncology appointment.

    The headaches have gone, just slight nausea now and I feel drunk all the time even though I haven't had a drink since treatment started.

    Sue xx

  • Hi Mich,

    Good luck today xx