Hi
This is quite long but I will try keep it as short as possible. My dad got cancer on his lip which they removed but had spread, he then has lymph nodes removed but it had spread again to his liver.
His only option was immunotherapy. He has had 4 sessions and then had his scan. The scan has shown it has spread again to his lungs and bones. (It was around 5 weeks before he started treatment though so this could have happens before et he immunotherapy therapy I'm not sure).
On the phone with the results he was told he has 5 months to live but they will carry on with 3 more treatments of immunotherapy anyway but not optimistic.
My dad decided to ring them back a week later (this was yesterday) and ask for them to cancel the treatment and to sign papers so he could get his life insurance early to make sure my mom is ok. They said they would.
10 minutes later he gets a call to ask why his not having the treatment. He explained it's pointless so he doesn't want to be messed with. He was then told (by the same person who rang him with the results a week earlier and giving him 5 months to live) that over 50% of people in his position the treatment works the 2nd time!
This has already been a huge rollercoaster and as much as this is good news and give us hope I can't believe it. Is this true? Why on earth wouldn't they have said that before. We were told from the start it was less than 20% chance it would work but now it's over 50% after it's spread so much.
I want it to work more than anything! But we also want the truth as we are all in shock and being told so many different things is making us all ill.
Has anyone had a similar experience and been ok? Or is this so my dad can get the numbers up in the research or be a Guinea pig.
I sound harsh and I don't mean to be but this is destroying me not knowing what the hell is going on. Same for my mom and dad. It's horrific.
Any advice would be great thank you