I'm not sure yet how to find my way around the forum, but I will work on it. I have recently been diagnosed with bladder cancer and I'm trying to find out more about it, preferably from someone who has/had it. Three and a half years ago, I had a colon re-section for cancer and almost a year ago, I had a lung re-section for cancer. I'm told that this bladder cancer is not related to either of those cancers. I don't know if that's a good thing or a bad thing. I need to communicate with other people with cancer so I can better understand how things work. I hope I can offer support on this forum as well as receive some. Thanks for reading my post. Lorraine
Welcome to this friendly forum and thanks for telling us about your experience with this awful disease. My cancer was prostate cancer from which I have made a good recovery and I have also lost three close female relatives including my mother to breast cancer. So I do not have any knowledge of your cancer types. I like and admire your attitude in that you say you also hope you can also offer support to others on here. We can all use our experience of cancer to try and help support other travelling this hard and rock pathway..
Take care Lorraine, sending best wishes you way, Brian
Welcome to Cancer Chat. I know that we have a user here on the forum who has experience of bladder cancer and you may like to post on his thread here to make contact.
We also have lots of information about bladder cancer on the Cancer Help page that you may find helpful. There is of course also the option to give our team of specialist nurses a call and speak to them. They are available Monday to Friday 9am to 5pm. The number is 0808 800 4040 and is free to call from a UK landline. I'm sure that they will be able to help you with some information and answer any questions that you may have.
Cancer Chat moderator
Thank you Brian for responding to my first post. I am glad I found this forum because it is helpful to be able to correspond with others who are also living with cancer. I also heard from the moderator who has provided some helpful information that I can tap into. I hope to hear from you from time to time and perhaps learn a little bit about you and your challenges.
Thanks again and take care. Lorraine
Just wanted to add my welcome to this very friendly forum. Am happy to see that Brian and the Moderator have already given you support and some helpful tips. Though personally I do not have an experience of bladder cancer (my husband has mesothelioma - lung membrane cancer due to asbestos exposure) I am sure you will find some lovely support here and its wonderful that you would like to return the favour. As you find your 'feet' amongst us I hope you will continue to let us know how you are doing in the coming weeks of your treatment and I wish you all the best with that. Best wishes Jules54
Thanks for the reply. I am pleased that Jules has also made contact for she is a lovely lady. Getting information about our cancer is in my opinion a good thing so I am pleased that Moderator Jenn has posted a link for you. All the moderators on here are lovely people and are always helpful. I would just say that I would restrict searching on the Internet to the Cancer research site and the Macmillan site. When I was diagnosed I, much like you wanted to find as much information as possible. I did find a whole lot of info but some of it was well out of date and some was downright misleading. Some of the American ones were the worst because they were run by medical companies. So now I restrict my search's to well know sites like the ones I have mentioned.
Take care, will talk again soon. Best wishes, Brian
Thank you Jenn, I did go to the site that you suggested and there is good info there. I'm the kind of person who likes to know what's happening to my body. I don't like surprises and even if the knowledge I have is not really what I want to hear, it still is better than worrying about the unknown.
Thanks to all the others who responded to my initial post also. Once I learn my way around this site, I hope to be more involved. It is reassuring to have company on this journey that people certainly would rather not be on, but it would surely be really lonely to do it alone.
Welcome to cancer chat, I am sorry I haven't responded before but have only just seen your posting.
Getting a diagnosis of cancer is a shocking thing. Having virtual friends on here to go through your journey with and know others can empathise is reassuring, as you say at least your not doing it alone. Getting help and advice from others who have gone throught the same or similar can be exceedingly helpful.
I wish I could help you with your bladder cancer but I don't have that experience( Mine is womb cancer) but I do want to say I am here to listen and chat anytime.
Glad it was of help Lorraine. Don't forget that you can call the nurses to pick their brains if you have any further questions or want any other information. They really are a great source.
Please do let us all know how you get on.
Cancer Chat moderator
Hello Lorraine, im sorry for your diagnosis. Its a horrible time and hopefully this forum will help, i think it will. Im afraid I dont have any experience yet of your paticular situation, but just want to say hello and you are in my thoughts, bless you, clare
Have just noticed you say you are in Canada. My father lives in Calgary and I have three sisters and two brothers living in various parts of Alberta. My wife and I visited my father about twenty years ago and I have to say, I fell in love with your great country and it's people. Everyone was so friendly and there was no rubbish about. I was so proud when one day we were walking in a park in Calgary, and my dad spotted some paper someone had dropped and we walked well out of his way, picked it and put it in a rubbish bin.
He married my mother when he was over here in the early part of the war. When he returned from fighting in Italy, we were supposed to follow him back to Canada but I got laid up with very bad bronchitis and not having the drugs we have now, it took a long time for me to recover. It all fell apart although I don't know much detail but my mother got divorced and eventually remarried.
My father was ill end of last year/begining of this; he is 91 years old. He keeps on at me to go and visit him again and allthough I would love to do this but my wife could not travel and I cant leave her on her own as she has lots of health problems. My father and I are so alike.
Anyway I have rambled far too much for one day.
Please take care, Brian.
Hi Brian, so you have visited our lovely country in the past. It is a very nice place to live also, and you really should come again. Your father is actually on the opposite end of this country from where I am. He is on the West Coast and I am on the East Coast, Nova Scotia to be more exact. Calgary is a beautiful city, but Halifax, Nova Scotia is a much more relaxed way of life, much smaller than Calgary for sure and I don't like to brag, but the people here are more friendly, which is more likely because it is smaller.
Brian, I've read some of your posts in other categories here and you are so supportive to the other posters. I think you are a real asset to this chat forum. I have been "lurking" in some of the different topics and everyone seems to be very sensitive to each other. I am so glad I found this site. I had my 2nd BCG treatment today and I'm told I likely will start to experience side effects with the 3rd one next week. I'm trying not to cross bridges before I get to them. I really appreciate all the responses I have received to my initial post. It sure helps to communicate with others in the same or similar situation.
I will certainly stay in touch and look forward to reading the posts of everyone on here.
Hi Kittensmittens, I like your handle. I love pets too and you likely saw that with my "picture". I have a dog, a sheltie, and I plan to put his picture on here as soon as I get organized. His name is Toby and he is my baby for sure.
Thank you for your reply and even though you don't share my particular issue, you took the time to respond and I appreciate you doing that. I will post as often as I can and hope that I can be a support to others on here as well. I look forward to hearing more about you as we go along.
Hello Annabel, I'm glad to meet you, but wish none of us had to be on such a site, considering what the criteria is to be on here. I don't know much about your cancer either, but perhaps as time goes on we will be sharing more info. We have so much to learn from each other and so much support to share in the process. Thank you for replying to my post and I hope to hear more from you as time goes on.
Dear Jules, thank you for taking the time to post a response. I am sorry for your husband having to go through this. My dad had lung cancer and it was very difficult to watch him go through that. I'm sure it is difficult for you too. I am very grateful for having this forum to communicate with other people who are dealing with cancer. It is a lonely journey if one has to do it alone, and only someone who is on it, really knows what its' like.
Thank you for responding and I wish peace and comfort for you and your husband through this process.