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If you are daunted with Stage One Breast Cancer

28 Aug 2019 18:06

Call me a diva, but I have gone through the worst days of my life, this last 4 months. Posting tonight, not to congratulate myself, but could help others. For back ground, diagnosed early May, lumpectomy and lymphectomy, early June. Completed rads today. No chemo. Tamoxifen and other orals for seven years. If you are reading this and wondering how you will get through, here is my advice:

1. Scream, shout and cry as much as you need to, but never forget to laugh too.  Be kind to yourself.

2. If you find yourself developing a 'cancer sense of humour,' go with it, its healthy as long as you keep it in check. 

3. Your rads team are highly experienced experts, and although it might feel like they have only one focus, ( your boob)  they are actually looking out for you, and looking after you in multiple ways. They will get you through the slog of rads. 

4. It's OK to be scared, tired, and every other emotion going. All that matters is YOU.

5. As daunting as it seems, you'll get through it. 

Good luck everyone. Plum.

If you are daunted with Stage One Breast Cancer

28 Aug 2019 18:12 in response to VPlum

Hi 5 Vplumb...

I think your 100% right ... none of this holding feelings in .. let it all out .. then take it on again ...

Here's to kicking cancers butt....  Chrissie x

If you are daunted with Stage One Breast Cancer

28 Aug 2019 18:37 in response to VPlum

Hi v welcome back again, good I'dea putting you thoughts in writing, it'll certainly help others with some problems, as you'd say been there done that,, have you heard about DAVEK, some good news for a change,, best wishes plum,,. From Billy 

If you are daunted with Stage One Breast Cancer

28 Aug 2019 18:37 in response to Chriss

Hi Chrissie. Glad to have your approval. Hope you are well. Plum x

If you are daunted with Stage One Breast Cancer

28 Aug 2019 20:16 in response to VPlum
Hi Plum, You are so allowed to be a Diva!! You’ve been successfully through a journey none of us wanted to....but you’ve now come out the otherside Cancer Free!! I’m 3 weeks post lumpectomy and waiting now to see Oncologist but no appointment yet... Please can you help me with the Radiotherapy as I’m absolutely petrified of going through it plus the years of being on tablets that sound awful..... Hats off to you and your amazing happy news!! Go you love Jackie xxx

If you are daunted with Stage One Breast Cancer

28 Aug 2019 23:33 in response to Jackie77

Jackie (77), have private messaged you, but want to post about rads for any lady following this thread. Without doubt, first day is daunting, but trust your rads team! They know how scarey it is for you. They are trained to not only do the science, but to make things as easy as possible for you. In short, they are amazeballs! You will be shown into a big room. Strip from waist down ( no surprise there) but your dignity and modesty will be respected. The 'bed' looks scarey, but you'll get used to it. They will pop your legs into a mould type thing, which is actually really comfy. Then they will gently guide your arms up above your head. They will be with you constantly other than when the machine is on; but it's only for a couple of minutes and they will give you a break mid way. They can see you even when they aren't in the room (cameras) so if you were panicked they would stop the machine and come back into the room to reassure you. All in all about 30 mins, maximum per day. Most time is 'lining up', which you'll soon get the hang of. It's nothing more a  few marker pens and rulers and the team calling out numbers to each other.  I found it fascinating. As it gets easier ( as they get used to your measurements)  they will have more time to chat to you. It will be like second nature after a few days, promise!!! Top tip: don't focus on the machines, focus on the wonderful people who operate them. They will get you through. Plum. x

If you are daunted with Stage One Breast Cancer

29 Aug 2019 12:46 in response to VPlum

Hi Plum,

Thank you for all of that information,was thinking maybe I could wear listen to music so I don’t hear the machine and wear an eye mask... lol 

Does the machine really only go for a couple of minutes?

 

If you are daunted with Stage One Breast Cancer

29 Aug 2019 12:58 in response to Jackie77

Hi, certainly in my case just a couple of minutes. You'd probably need to ask about eye masks and headphones, just in case that would hamper them. Are you certain you are having rads Jackie? Its possibly putting yourself through a lot of angst over something that might not be going to happen. Some ladies get away with no rads or chemo. 

If you are daunted with Stage One Breast Cancer

29 Aug 2019 13:06 in response to VPlum

Hi Plum,

Consultant said 15 sessions and meds,My lumpectomy was a grade 1 but after operation the biopsy said grade 2 but lymph nodes all clear!!! 

I think they said radiotherapy to insure completely gone,Margains are good but it was ER+ other 2 negative.

If you are daunted with Stage One Breast Cancer

29 Aug 2019 13:36 in response to Jackie77

Hi there I was diagnosed a couple of months ago. Had biopsy then lumpectomy. Waited four weeks for the results then told some invasive cells in the lumpectomy tissue so had sentinel node biopsies done in a separate op two weeks ago. Will get my results of this on 12 September to se if it has spread into the lymph glands. Bit nervous about it all.

Been told I will need radiotherapy and don’t know anything about the procedure so would appreciate any advice about RT.  Also will need to take some sort of meds for five years.

Thanks in advance

Mary xx

If you are daunted with Stage One Breast Cancer

29 Aug 2019 14:42 in response to MaryT19

Hi Mary, sorry you have had complications. I'm not a medical professional, so really my post was around not feeling daunted about having the RT, as it's really easy once you get used to what happens. In my case the exact same everyday, so you soon get the hang of things and as you will probably have the same therapists every day ( I did) you will probably find there's time for a quick chat about pets, what's on telly or such like, which makes it all feel very 'human' and normal. Maybe if you want specific details you could ask the nurses on this forum. I think for sure it is very scientific and done with pin point accuracy. I know the therapists have special uni degrees and undertake years of training. You'll know what I mean when you are being lined up and everything is done literally to a millimetre. Fascinated me listening to them work. Really just trying to share a positive experience and give a bit if comfort to others. Hope this has helped. 

If you are daunted with Stage One Breast Cancer

29 Aug 2019 16:56 in response to MaryT19

Hi Mary,

lm in same position as you,have got all my results now and going to see Oncologist on 16th September to chat about Radiotherapy and meds’ I guess..... just going to have a pad handy to jot down all the questions I may want to ask if not covered by her!! 

Sorry you’ve had it a bit rough but everything crossed for you....

Much love Jackie xxx

If you are daunted with Stage One Breast Cancer

29 Aug 2019 17:00 in response to Jackie77

Hi there Jackie I think taking a pad and pencil is a good idea. There’s always so much to take in at the appointments isn’t there. I have found the Macmillan nurses are brilliant at explaining things to you and answering questions.

Hope your appointment goes well. Think I will feel better when I know a definite plan to work to. Keep in touch won’t you.

Love Mary xx

If you are daunted with Stage One Breast Cancer

29 Aug 2019 17:04 in response to MaryT19

Hi Mary,

it’s the waiting that gets to me.... and Plum said a lot of sense to me along with my Consultant to cry and cry then let smile!! And laugh!! 

Definitely stay in touch xxx

If you are daunted with Stage One Breast Cancer

29 Aug 2019 17:13 in response to Jackie77

Know what you mean about waiting. This was picked up on a routine mammogram so a complete shock. Got the initial biopsy appt within a week then 3 weeks to wait for that. After that came the lumpectomy op with a four week wait for results then week after that the sentinel node biopsy with another four week wait for results. Feel like I have been waiting all summer to hear something . The team I am under are totally amazing all of them.

i haven’t cried at all (yet) just feel unbelievably lucky this was found by a routine X-ray. Goes to show how vital it is to get mammograms done regularly.

Lots of love

Mary xx