I can’t stop crying

Hello everyone, me again.. feeling still lost and so low, I can’t stop crying my breast is getting worse and I feel like doctors are just misdiagnosing me, my breast now ontop of all the pain has a rash underneath and a few spots around the breast, I can barely move out of bed, my armpit and shoulder are in pain to, I’ve had 2 ultrasounds and been told I have dense breast tissue in that breast but I know how easily ultrasounds miss imflammatory breast cancer, no pain relief is helping and everyday I feel even more unwell, I’m looking online constantly (I know I shouldn’t) at survival rates and now I’m in my own head planning my funeral, I’m so sorry to anyone who’s going through this type of cancer if I’m coming across rude without an actual diagnosis but I believe myself that I have it, I don’t know where else to go or what else to do, I feel weak I can barely get out of bed, all I want to do is cry. I keep pushing everyone around me away, everyone thinks I’m overreacting but the proof is right there on my breast, my veins are prominent, it’s so painful and itchy, I can’t even make sense of myself right now. I feel so unwell, I feel drained in every way possible and I don’t know if just leaving myself here to suffer is my only option now. I just want help and a diagnosis :( that is it, it’s been half a year now and it’s getting worse. What do I do 

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    Hi Scaredbeyondwords,

    I am sorry to hear that you are still having trouble with your breasts. Everyone is entitled to a second opinion.

    Obviously, nobody knows your body better than you and, if you are still worried, you can request a second opinion. Why not have a word with your GP?

    I don't mean to trivialise your problems when you mention a few spots and pain. Are you sure that it's not a fungal infection? This would tie in with pain, itch and rash under the breasts. I have had this in the past and know just how sore and itchy it can be.

    I hope that you can find some answers soon.

    Please keep in touch. We are always here for you.

    Kind regards,

    Jolamine xx

  • Hello hun, thank you for commenting. I appreciate it everytime I really do, I was prescribed fungal cream the other day although the doctor couldn’t actually look at my breast as there wasn’t a female chaperone present but he said to try it in case for the rash. But I just couldn’t imagine this much unbearable pain inside my breast and all around my armpit and shoulders due to a fungal rash but it could have came up and made things worse. I just so badly want to know what this is it’s ruining my life, my friends had to step in and help because I can barely move from my bed because of the pain and I feel so low and dragged down :(. I don’t know where else to go, as no one seems to have heard of IBC so I don’t feel they’ll even realise it, I mention it everytime and they look baffled it’s sad that I know more about it than a qualified doctor that scares me :( I just want it all to stop I want to be a good mum again, I feel so useless. My breast feels so heavy and uncomfortable right now :( the pains awful. I’ve booked a private consultation myself this Wednesday and the cost for the consultation alone is £250 and it could go all the way up to £3,000 depending on what tests are needed. I honestly don’t have the funds for this but I feel I have no other option, I just want a breast MRI and a biopsy :( then I feel ill be at ease, it’s hard when doctors can’t give me an answers to my ongoing problems. I just want my life back. Thank you so much for responding and I hope you are well lovely x x 

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    Hi,

    I hope that all goes well on Wednesday.

    I shall be thinking of you and praying that you get some answers.

    Kind regards,

    Jolamine xx

  • Things are worse my back now hurts to and I’m struggling to move with it, my underarm pain is now constant to and my breast and nipple are both completely dry. The pain is unbearable and I feel so sick :( I have another breast clinic app on the 3rd how can I push them to give me a biopsy because there’s something so not right here :( advice needed please

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    Hi Scaredbeyondwords,

    We haven't heard from you for a while. I was just wondering how you're getting on?

    Kind regards,

    Jolamine xx

  • You can revert back to the NHS for treatment if the consultant thinks you need further tests. I am currently waiting for results of a womb biopsy and I have had a bad chest and terrible pains in my back. I have convinced myself thanks to Dr Google that I have advanced cancer which has spread  to my lungs, and I have been in a weird mood where I just want to be by myself. Cancer is such a scary word that I think our minds run away with themselves.  If you keep prodding and poking your breast it can make it sore and inflamed, I know this from experience of when I thought I could feel a ridge. If you want peace of mind go and see the consultant and tell him/her your worries, I am sure they will help. Good luck

  • Hello Hun, thanks for checking up on me that’s so kind of you, things aren’t much better if I’m honest, I’m having severe itching and a rash on the top of my breast at the moment unsure why, the pain is still always here, just all the same really :( sadly. I’m unsure on what else to do at this point, feel I’ve tried everything. How are you x

  • Hello and thanks for your response I hope all comes back well from your biopsy and hope you’re well. Yeah I’m trying to continue getting more answers but I don’t seem to get anywhere I feel really stuck at this point x

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    Hi Scaredbeyondwords,

    I am so sorry to hear that you still haven't git a resolution to all of this yet. Where are you with all of this now?  Do you have any further appointments, or have you just been left high and dry?

    If you are still having problems, why not return to see your GP, or is there another GP in your practice who might be able to help you?

    I am fine now thanks. I had a melanoma scare a few weeks back I went with one under my eye and the doctor found another on my leg. Had biopsies on both and both were clear, thank goodness. The relief was immense!

    Have you been given any cream for the itching or antibiotics for the rash? I hope that you get things sorted soon.

    Kind regards,

    Jolamine xx

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    Hi Murray,

    Do you have any idea when you'll get the results of your biopsy back yet? You have been on this site long enough to know what we all feel about Dr Google. Do your level best to avoid him at all costs. If you have to look things up try and stick to a reputable site, like Cancer Research.

    Regardless of whether or not you research your condition, your mind will always run away with you at this stage. We nearly all seem to convince ourselves that it is a case of the worst case scenario. Fortunately, this seldom turns out to be the case.

    Do keep in touch and let us know how you get on with your results. We are always here for you.

    Kind regards,

    Jolamine xx