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19 Oct 2016 08:48

I was diagnosed with neck cancer when a lump appeared on my neck. The biopsy was positive but after many scans and tests the primary sounce couldnt be found. I had my tomsils out as Dr. thought that could be the source. It wasnt. I then had chemotherapy and radiotherapy which I finished at the end of July.My neck is still very painful today and I still find it difficult to swallow. The pain seems not to be going. That is my only issue at the moment. I was wrong about the recovery as I thought that the pain would go after the treatment and all would be good quickly. I would like to know from anyone how long before the neck pain may go.

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19 Oct 2016 09:31 in response to ianwoody

Hi Ian,

Welcome to Cancer Chat. I would suggest you contact your medical team or your GP if you havent done so allready. When I finnished my radiotherapy for prostate cancer, I was told if I had any problems to contact them. It may that the recovery may take longer but this way you should at least be able to put your mind at rest. Hope things improve quickly, but please keep in contact, Brian.

 

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19 Oct 2016 13:06 in response to ianwoody

Hello Ian, and welcome to the forum.  I have to agree with Brian - I assume as you only finished treatment in July you are still under the hospital team, so please contact them for advice.  

I would just like to suggest that if you change your heading to include 'neck cancer' you will be more likely to get replies, I know there are several chaps on here who have been through a similar prognosis, treatment and problems who will I'm sure be in touch. 

As Brian says, please keep in touch and let us know how you are getting on, meanwhile I hope you can get your pain sorted and wish you all the very best.

Take care, Hazel x

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19 Oct 2016 21:12 in response to ianwoody

Hi ianwoody

Welcome to the forum, the one that people would rather not join. Congatulate yourself for completing the radiotherapy course, it is the hardest thing I've ever done, many folk posting here were unable to  complete it. Hazel asked me to reply to your post. At 10 weeks post radiotherapy you will just be beginning to get back to normal, if you lost your sense of taste it should be returning, the salty metallic taste should have gone. Your external burns should have healed by now although your mouth and throat may still be raw and tender. The thick saliva may be becoming more normal. Your hair beard will take a time to grow back again. I don't have to shave half of one side of my face anymore but the hair on my neck has grown back. Swallowing will always be a problem, you should have been given a set of swallowing excercises to do a few times every day by the speech therapist it is essential to keep these up forever. Also you should be doing some neck stretching excercises to keep your neck muscles from seizing and to help with oedema if you are suffering this. My neck still hurts 18 months on but not as much, I also have the benefit of having had surgery, so much of my neck has no sensation as the nerves were severed. I still need to carry a water bottle everywhere for dry mouth and lips and throat.  Foods like bread and chocolate are still very tricky. I use duraphat high fluoride toothpaste to protect the damaged tooth enamel. Other than suffering fatigue I lead quite a normal life and enjoy every day. Ive just had some tests to find out if my thyroid gland was damaged by the radiotherapy which may be the reason for tiredness. I've had further treatment since, the most recent a couple of months ago but Im hoping this will have arrested the spread now. If you need any help just post here and Ill try to answer your questions, good luck with your recovery. Kim

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20 Oct 2016 15:06 in response to ianwoody

Hi Ianwoody,

Thanks for posting.

I am sorry to hear about your situation.

It does look as if you have had some very helpful advice from the other guys on the forum. Other than to encourage you to contact the doctors at the hospital I don’t think that there is anything I would add.

I do hope you continue to get support from the other forum users.

Take care,

Deborah

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22 Oct 2016 03:02 in response to woodworm
Brian thanks so much for your positive comments and continual support to everyone on the board. I was naive to think the pain would go straight after the treatment finished. The radiotherapy dose a lot of damage but the repair work is being carried out now. Thank you.

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22 Oct 2016 03:02 in response to CRUK Nurse Deborah

Thank you Deborah.

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22 Oct 2016 03:05 in response to kimchoson

Kim thank you so much. You have covered so many subjects in this post that I really needed answers too. Your post was excellent. Thank you. Each day is different during the recovery process. Some days are better than others. I thank you Kim.

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22 Oct 2016 03:08 in response to haze44

Hazel thank you. I will mention the neck cancer in future posts. I have been given some great advice to which I am so grateful indeed.

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22 Oct 2016 22:49 in response to ianwoody

Hi Ian I was diagnosed with with cancer last year I also had a large swelling on my neck, I was diagnosed with base tongue cancer and my lymph nodes were also affected. I had radiotherapy and chemotherapy I finished my treatment on 21 st august last year. The pain I experienced did go a little worse when I had completed the radiotherapy but about 8 weeks later it had gone . Even now my neck still aches quite a bit but having 8 weekly checkups and all is well. Things do get better

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24 Oct 2016 01:05 in response to Tigger08
Thanks Tigger08 for your feedback. Sounds very similar to my condition. I have had a lot of difficulty swallowing but that has become easier in the last week so perhaps Im turning the corner. Ice cold water has been a godsend for me. Soft food such as eggs congee and custard has been great. Mate thanks for your comments they are greatly appreciated.

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24 Oct 2016 01:07 in response to ianwoody

Tigger 08 my doctor has suggested 3 month check ups for the first year and my first check up in on nov 3rd. MRI SCAN and blood tests.

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25 Oct 2016 04:04 in response to kimchoson
KIMCHOSON, Thank you so much for your post. You taught me so much in a short time thanks again. I am still working out what I can eat and not eat. But ice water is still my best friend. I find the pain comes and goes. One day is better than the other. Some times its hard to sleep because a dry cough comes on and it effects my sleep. Sorry just things that I notice as times go by. Your comments are great. Swallowing things are a day by day thing, depending on the neck pain. I dont want to keep taking pain killers but sometimes I need them. Is this common. Thanks so much KIMCHOSON.

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25 Oct 2016 04:07 in response to haze44

Hi Hazell, thank you for suggesting to KIMCHOSON to reply. Her comments were great. Have a wonderful day.

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25 Oct 2016 04:59 in response to ianwoody

Morning, Ian, can I just whisper it to you that Kim is a feller?   Knowing him I don't think he'll be too bothered, it's an easy mistake but just to set the record straight!  

Glad his input was helpful, as I knew it would be, and I'm so pleased to hear that there is some improvement.  Hang on in there, it's early days yet.   

Good luck with your check up and scan - I have my own 3 monthly check on 8th, so fingers crossed for us both, eh?  (Mine is ovarian)

Take care, Hazel xx