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Hodgkins lymphoma warrior

7 Feb 2017 10:34


Diagnosed with classical hodgkins lymphoma in November...stage 2b after over a year being misdiagnosed. Currently on my 3rd chemo and doing bad symptoms anymore. Feeling good and lucky so far.

Would love to chat to anyone to share stories...good/bad days...laughs...get in touch Happy

I Have not stopped laughing since a good cry on the first day of diagnosis (but I knew I'n my gut for a long time i had it and i was falling apart ) i decided to trust my doctors when they said it's cureable and made the choice to embrace the journey and decided my medicine was laughter...can't recommend it enough. My daily pains are aches from memories so far are the banter it's caused between friends and family and I have ripped myself to shreds about all the negatives of treatment...the outcome is I feel cured all ready...happier than I have for years after the suffer i went through with type B symptoms. I already feel better...look everyday..I trust it's down to the laughter. Who knows what's next but I'm ready for it....I feel like a warrior for all I have got through so far. Everyone who knows me comments on how good i strong im being and how im an inspiration. Im so glad thats what they are getting to feed back rather than negative.

I'm fully aware peoples stories are auntie has aggresive breast cancer but she's also being strong and positive and laughing and it helps. Let's help each other...don't give up...and try laugh! Better than any chemo can give you Happy 

Re: Hodgkins lymphoma warrior

9 Feb 2017 15:30 in response to Juliejules1983

Welcome to Cancer Chat Juliejules1983!

I’m happy to hear that you and your auntie are keeping positive in spite of the challenges you both are facing at the moment and that you are feeling good so far. But what I really would like is to say a huge thank you for offering a helping hand to our community through your encouraging words and support!

I do hope you will meet many of our lovely members who I’m sure will be popping here soon to share with you their stories and experiences.

With my best wishes to both you and your auntie,

Renata, Cancer Chat Moderator

Re: Hodgkins lymphoma warrior

14 Feb 2017 08:42 in response to Juliejules1983

JulieJules, great you have a wonderful attitude and you inspire others to fight hard. Good on you buddy and keep up that positive attitude. A good cry is good for everyone. Now keep smiling. Regards Ian.

Re: Hodgkins lymphoma warrior

14 Feb 2017 15:00 in response to ianwoody

Thanks's helped so much to cope with all the negative

Re: Hodgkins lymphoma warrior

14 Feb 2017 18:02 in response to Juliejules1983


so happy to hear your turning a negative experience into a positive. I had stage 3 and stage 4 hodgkins lymphoma (diagnosed twice) and felt that laughter was so much better and positive for me but it did confuse those around me that couldn't understand why I wasn't in a corner crying but it worked for me and made my time easier if you wanna chat feel free to message me. Take care 


Re: Hodgkins lymphoma warrior

21 Apr 2017 16:51 in response to sara28

Sorry I haven't replied to this message. For someone who is good with technology I just can't get the hang of this page at all...on how to reply and find new messages  how are you? Would be great to share our stories of I can work out how to

Re: Hodgkins lymphoma warrior

22 Apr 2017 08:55 in response to Juliejules1983


i Would love to chat I've just been rediagnosed again but now been told in on watcand wait so remaining positive is annoying. 

Hope everything going well I will send you a friend request 


Re: Hodgkins lymphoma warrior

22 Apr 2017 09:08 in response to Juliejules1983

Hi Juliejules1983, 

I saw you mentioned you were having a bit of difficulty using the forum so I just wanted to make you aware of our topic area help using the forum. It has many discussions there which explain how to navigate the forum including how to find the most recent post on your discussion.

I hope this helps Julie but if you find you are still struggling let me know and I'll explain you in more detail.

Kind regards, 

Steph, Cancer Chat Moderator

Re: Hodgkins lymphoma warrior

23 Apr 2017 15:09 in response to Moderator Steph

Hi Steph.  Thanks for the message. I did wonder is there a downloadable app for this page rather than opening as a web page? I just find it hard to follow discussions or find replies after singling in. It's probably just me....chemo is causing me all sorts of confusion

Re: Hodgkins lymphoma warrior

23 Apr 2017 21:12 in response to Juliejules1983

Another member recently asked about a Cancer Chat app too. There isn't one available at the moment Julie and, as Moderator Sarah explains here, or any plans for one in the foreseeable future. 

What device are you using to access our website? I tend to use a laptop so if you haven't tried via a laptop/computer it may be worth giving it a go just to get your bearings then once you're a bit more familiar with the set up you could then return to using other devices to access the forum maybe?

Good luck with the rest of your chemo Julie and if you need help with anything else just give me a shout Happy

All the best, 

Steph, Cancer Chat Moderator

Re: Hodgkins lymphoma warrior

24 Apr 2017 11:02 in response to Moderator Steph

Thanks Steph. I'm using my mobile. An app would be a great idea as this is what everyone uses these days or maybe a facebook page? I'm finding private messages is easier to chat to people for now.