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Hodgkin's lymphoma "I might stop chemo"

10 Sep 2019 23:53

Hi I'm new on here, I got diagnosed about 3mths ago with Hodgkin's lymphoma. Since that day everything is moving so fast! I've not time to take anything in. Anyway to the point of I was to stop chemo and went on the tablets to prolong things, how long wud i have left? I just don't think I can keep doing this I'm so sick of this life, I don't want this life. I want things back to how they was before the big C crashed into my life, changed things....

Hodgkin's lymphoma "I might stop chemo"

11 Sep 2019 10:54 in response to Helz79

Hello and thanks for posting on the forum,

I am so sorry to hear about the difficult time you are having.  You sound like you are having a horrible time.

It is very important that you are able to share how you are feeling with the doctors and your friends and family.  It is a very difficult thing to go through on your own and it is important that you let people know. 

Hodgkin lymphoma on the whole can usually be very successfully treated but I do know that the treatment can be very harsh.  There are different medications that can be used to help  with any side effects you maybe experiencing but it is important to let your doctors know that you are not coping.

We do have some information on our website about tips to help cope with Hodgkin lymphoma.  Have a look here

I am not sure from your post what age you are and any impact it has had at college or in your job.  Depending on this I am happy to signpost you to different organisations.

Have you been given a specialist nurse?  If you have been given one do talk to them about you situation and your difficulties you are having.

The NHS have some information about how you can help cope when you are feeling a bit low.  It has tips on how you can help manage this.  Have a look here

I am not sure where you are living.  There may be support groups in your hospital or you may have a Maggie's near you.  You can read about Maggie's Centres here

There is a section at the Maggies centre which you may find helpful as it has a link on peoples experiences with lymphoma.  Do have a look here.

They run different support groups and  some run yoga and meditation classes.  it is important to try different things to try and help you get through your treatment. It maybe helpful to try and connect with people who are going through a similar experience.

I hope that this has helped a bit. You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Take Care,

Catherine