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Hey Guys ;) Sharing my happy ending!

2 May 2019 16:15

Hey Guys,

I've been  away from this forum for so long! Is time to update Wink

In resume: In 2015 I had a severe relapse and I was consider terminal but I satarted nivolumab two weeks later and in only 5 weeks two of the monsters had gone and otlhers had decrease a lot. Almost a year after i was in total remission Wink I'm out of any treatment since june 2017 and kept a total remission ( so total remission since 2016!)!

I come here to share my happy ending!After so many years struggling it seems a miracle to me: I recurred 5 times between 2011-2015. anything worked. 

Well, my life is finally normal: I finish my master, could start working, had my first job at age 28 and I'm now 30! and I'm also engaged! 

Last month I leave a company where i worked 18 months because didn't like my job and I'm starting devoloping my own project as psychologist. I want to support (virtually, through a website) patients and families, also healthcare providers. Making psychology appointments and patient advocate service. What do you think about it?

I've been helping a lot of people who found me because an article published about me in NewYork Times (https://www.nytimes.com/2018/02/19/health/ovarian-cancer-immunotherapy.html) but I found it's really hard to give them support and being working 8-10 hours a day in a company. So I want to dedicate my time entirely to this, tha's why i'm trying to be a professional!

You will find out my first name is not Sofia Happy but I can assure you Sofia is one of my main name Wink

You also can see me in the link before in an interview last year Wink

https://vimeo.com/265372062

 

Sending all my love to all of you! Hope all here who struggling now had believe a bit, sometimes is so so dark..it was also for me. At some point in my journey I thought i wouldn't be healthy again and now, i'm here. Almost 8 years after my first diagnose and so many recurrences! Looking for those doctors who listening and be aware of new treatments, it's my advice for you.

Hope I update you soon about my project progress!

Hey Guys ;) Sharing my happy ending!

2 May 2019 16:50 in response to sofia

Oh wow! This is such good news.  Brilliant!

Hey Guys ;) Sharing my happy ending!

3 May 2019 07:48 in response to sofia

Hi congratulations three times being in remission, getting engaged, and a job you like doing, hope all keeps going well for in all three things good luck and best wishes. 

Billy 

Hey Guys ;) Sharing my happy ending!

3 May 2019 14:23 in response to telemando

Hi Telemando, thanking for the reply.

Just read your profile "surfing on the sites". Hope you feel well coming here, I'm sure you feel. This chat helped me so much Wink

Hey Guys ;) Sharing my happy ending!

3 May 2019 14:24 in response to Billygoat

3 thanks Happy The job I didn't like, but I'm working to have one that I like Wink

Hey Guys ;) Sharing my happy ending!

3 May 2019 14:39 in response to sofia

Wow.....we love good news here....high five xxxx

Hey Guys ;) Sharing my happy ending!

3 May 2019 16:09 in response to Marlyn

Thank you Marlyn!

Hope one day soon would be you sharing some Wink

Hey Guys ;) Sharing my happy ending!

3 May 2019 16:15 in response to sofia

Hi

 

That is fantastic news , so pleased for you and this gives us sufferers great hope for the future.

Well done and I wish you every success for the future.

Will think about your progress when I am feeling low for sure!!

 

Thanks for sharing your news with us all!!

 

Hey Guys ;) Sharing my happy ending!

3 May 2019 16:21 in response to Libra59

Thank you for your kind words!

Sometimes it seems impossible, but as some brand says "impossible is nothing" Wink

all my love anf good vibes Wink

 

Hey Guys ;) Sharing my happy ending!

3 May 2019 16:53 in response to sofia

The impossible we do at once.

Miracles need two working days. 

Laugh

Hey Guys ;) Sharing my happy ending!

3 May 2019 18:12 in response to telemando

ahaha we also have a quote in portugal saying "life are 2 days Carnival are 3" ahahah

Time enough to miracles! Don't loose your faith Wink

Hey Guys ;) Sharing my happy ending!

11 May 2019 19:42 in response to sofia

Fantastic news, Sophia, so pleased for you!   Hope the work project develops well.  God bless, Hazel xxx

Hey Guys ;) Sharing my happy ending!

3 Sep 2019 20:04 in response to haze44

Thank you so much! I'm working on it! I will let you know when I've all the things done Wink

xoxo, Sofia

Hey Guys ;) Sharing my happy ending!

5 Sep 2019 06:10 in response to sofia

Hi Sofia @Shellbell10 ‍, been try to find your string and couldn't so I've tried this to help her @Shellbell10 ‍, she's trying to find something that might help her, thanks for your string, it shows there are survivor's,.. Billy 

 

Hey Guys ;) Sharing my happy ending!

5 Sep 2019 08:13 in response to sofia

Wow that's amazing! So nice to hear someone has beat that dreaded disease. Enjoy your life Hun, well done. Love Shelly.xxx

Hey Guys ;) Sharing my happy ending!

5 Sep 2019 11:50 in response to Billygoat

Hey Billy, you got me ;D ! I will talk with her ! Thank you

Hey Guys ;) Sharing my happy ending!

5 Sep 2019 11:55 in response to Shellbell10

Hi ShellBell, thank so much for your kind words!

I'm so sorry, I'm not coming here so often because I was so busy...hapilly I have more time now Wink

Would be a great pleasure chat with you  Wink

Love, S.

Hey Guys ;) Sharing my happy ending!

5 Sep 2019 19:28 in response to sofia

Hi Sofia, your very welcome.

I am so happy for you, bet you can't believe it. Not many people can say they were terminal then go into full remission. I think your an inspiration to everyone. 

The work your going to do, being a psychologist is a fantastic idea. It will help loads of people. Talking is the way to go. Finding this forum and the breast cancer forum has helped take my mind off just everything. When your alone with time to think, you just think about all the bad things and what's going to happen. So I wish you all the luck in the world for your new little venture. You'll be fantastic.

I have secondary breast cancer with bone, liver and omental layer mets. I may have it in the lining of my lungs as well, got an appointment on 1st October for a scan. I got ascites weeks ago and they drained 10 ltrs from my stomach. 3 weeks later it was back again and got the same amount out. They've put a permanent drain in now and the district nurse comes everyday to drain it. 

I asked about immunotherapy to my oncologist and she said they didn't do it at that hospital. I might look to see what hospital offer it. The only problem with that is getting there. I'm going to mention it again, I see her on the 12th. My oncologist isn't the easiest person to speak to. She seems to dodge the questions you ask her.

Anyway, ill say bye for now. Wish you good luck with everything you do. Hope you remain in good health. Lot of love Shelly.xxx

Hey Guys ;) Sharing my happy ending!

9 Sep 2019 11:34 in response to Shellbell10

Hi @Shellbell10 Laugh,

So sorry to hear you are passing through so much. About your doctor “not being easy to talk”, unfortunately that is a common complain. I feel that sometimes they are not prepared that people are informed, other times they thought there are anything more to do and are afraid that the patient are spending time and resources on treatments they think it will fail.  On my own experience, we should ask and try to obtain response…and even look for a 2nd opinion. There are a lot of different approaches, different places and doctors, sometimes the doctor just be allowed to offer that treatment on that haspital. Unfortunately, I can’t assure you that immunotherapy works on you, we never know, but for many who doctors thought it wouldn’t, it worked!

About terminal people who survived, well despite I consider myself as a survivor, I still have afraid, not a 100% of sure, as you can imagine. But yes, I’m hopefull!  During my process I was inspired for a lot of people with incredible stories and I felt they open my mind and gave me a sort of orientation. Ben Williams is one of my role models. He wrote Survival to a terminal cancer, also have a documentary easy to find on the internet Wink . It doesn’t mean I did what the others did, but I became a believer: I convinced myself that have options! And I was lucky enough to have had it.

 I will never know if my new behaviors contribute that much to improve my health condition, but they make me feel a kind of empowered/a bit in charge: I started working out on a regular basis; eating better, sleeping more.

About my project:

Thank you so much for supporting me on my project. My project called Dealing with cancer- psychological support. The website is almost done in Portuguese, and then I will translate it English. The thing you said about the support on chats is so true! Unfortunately for some has a negative side, because may put down some people who are not prepared to read other stories that make themselves feel more insecure. The idea is through psychology people explore what is happening in their life and explore the best strategies to face it.

I feel a mix between enthusiasm and afraid…moving forward into the unknown creating my own job; on the other hand I feel I have a “PHd on the unknown” Laugh !  The point is, cancer change us and I feel I changed a lot, not only outside but also inside, I don’t feel I want any career which wouldn’t be meaningful for me. Cancer made my route to be psychologist much more complicated…since had to postpone my master 5 times. After my Master’ s degree I could only exercise psychology after a year internship recognized and accepted by the entity which regulate this profession in Portugal. I found an opportunity in a company (you may guess that were not super easy to find a job after years fighting against cancer… Recruiter ”what did you do all this years till you finished your studies? Because I can see a gap between them, on your cv” me: fighting against a cancer”… Not the answer they want to heard) were I worked half time in a Human Resources department, half time as psychologist…didn’t like HR that much, not even felt it was good to my lymphedema’s leg being like 8-10 hours sit …

 I was thinking on psycho-oncology since 2013 and patient advocacy… My afraid is that despite my prices won’t be super high, people can’t pay or don’t look for this kind of support once is paid, or not having enough patients… unfortunately I can’t live as volunteer, if so, I would love it!

Take care Wink 

Sending love and good vibes, S.

Hey Guys ;) Sharing my happy ending!

25 Sep 2019 09:59 in response to sofia

Hi Sofia, this will only be a quick one. I've been in hospital for a while now. Had a bad reaction to chemo. Blacked out and had a seizure. Then it's been one thing after another. They've given me weeks to months to live. I'm just not in the mood to chat for long. Thank you for replying to my post. And I wish you all the luck in the world. You can do it. Speak soon. Xxxx

Hey Guys ;) Sharing my happy ending!

25 Sep 2019 10:41 in response to Shellbell10

Hi Shellbell, 

So sweet from you answears me, please don't apologize for write a small text, you maust be exhausted! You are such a cute lady, hope you are surrounded by love.

I'm so sorry for what you have been throught and for that awful news! My fingers are crossed for your recover from this bad side effects and for you feel good enough to live much as you can feeling confortable and loved. No one can predict our life, you are lovely enough to beat odds;) See you soon Wink All my love S!

Hey Guys ;) Sharing my happy ending!

25 Sep 2019 22:27 in response to sofia

Hi Sofia, thank you so much for those lovely words. I will try and pull myself round to reply properly to people. Speak soon Sofia, and thank you again. Xxxxx

Hey Guys ;) Sharing my happy ending!

25 Sep 2019 22:36 in response to Shellbell10

Hi again ShellBell10,

You are replying so well but it's ok if you don't feel mood, if you are sad or mad! It's just ok if you come here and scream with everybody (here you may scream through caps lock! :)).

Give yourself time to make what you want do to. Nobody need to pretend anything!But obviously you are such a nice person which make are always sweet. When I'm ****** of I'm really awful, believe me!

We are here for you, no matter what!

Love, S.