2 chemo cycles ago, the steroids they give me with my chemo in office made me constipated, which incidentally led to the first hemorrhoid I've ever had in my life. also pretty sure I have anal fissures because it feels like shards of glass every time I poop. I absolutely dread going to the bathroom now, and regularly use prep h and anusol. unfortunately, I have 1/2 a colon so I go to the bathroom more often than most people. I am so depressed because it feels like I just can't catch a break. not only am I fighting cancer and dealing with the awful side effects of chemo, but for the past few weeks going number 2 has been agony. I'm afraid one of these times when I go to the bathroom, I am just going to faint from the pain. I've never experienced anything like this in my life. has anyone else ever had this problem? does anyone have any advice? this is literally ruining my life. I almost want it to end just so I can be free of the pain and subsequent sadness this is causing me.
Hi, I don't have exactly the same problems as you but I did suddenly start suffering from terribke constipation about 3 months ago and it has caused so much pain. Mine is combined with a bladder that doesnt work very well and causes me terrible pain that brings me to tears also. I cant sleep for more than an hour and am up most of the night - I dread going to the loo. Have your doctors given you any help - mine haven't!
Hi Discordia and Pauline
How utterly miserable for you both. Hubby had constipation and the resultant piles (and though a non cancer sufferer I have myself suffered with both). His consultant was aware and he was prescribed laxatives to take daily to counteract the constipation (side effect of his chemo) and used a a prescribed cream (really sorry cannot remember it's name) which gave better pain relief than the over the counter pile suppositories/creams. I also found that 'slapping on' barrier cream just prior to going to the loo helped but you may have to check with nurse/oncologist/GP or pharmacy if its okay to take alongside any other medication (my barrier cream was normally used for baby's bottoms). Take care ladies, Jules x
Hi Discordia and Pauline,
I really feel for you both, although I don't have quite the same problems as you.
Discordia, I had 25 sessions of pelvic radiotherapy and thiis caused immense pain when going to the toilet - as you describe, like passing glass! I was given some creams to help called Diprobase and Flamazine, though I'm not sure whether these can be applied internally. I was also prescribed laxido to help with the constipation. Not sure if this info is any good. Do you have contact details of a specialist nurse? Or your Oncologist's secretary to let them know just how much you're struggling.
Pauline, like you, I'm having bladder problems - brain and bladder not communicating! And I have to sit for ages before I can pass urine (have to run the taps too!) and rock backwards and forwards!
I've seen a Urologist who prescribed medication to 'relax' my bladder (Solefenacin) and he also put me on 3 hour toilet stops! Had to put an alarm on my phone! Most recently, I've been taught how to self catheterise, but unfortunately, I'm not a natural at it! Could you ask to be referred to the urology team?
I hate to think of you both suffering. Sending you both a big hug, Jo xx
I am so sorry you are going through this Pauline!! I feel your pain. my doctors haven't been too much help. they prescribed me anusol, which can only be applied externally (which doesn't solve my problem as the shards of glass pain is inside) and I can use the prep h inside and out but I found for me it doesn't help with the pain. I see my oncologist in a week so I am going to beg him to do something or send me to someone who can help. This is just horrific.
thank you for your response Jules! I will definitely be asking my oncologist again about this issue again when I see him next week. especially with the chemo making it harder for my body to heal, I hope there is SOMETHING, anything they can give me to help!
Hi Meerkat, I am SO sorry you've had to go through radiation, and so much of it! I'm glad you know what I'm talking about though, most people just nod like they understand when I say it's literally like passing shards of glass, but most I don't think have experienced it. I'm going to see my oncologist next week and I'm going to beg him to help. I'd even do a surgery at this point, if it would help! although I'm sure that's out of the question because they told me before they have to stop my chemo for 6 weeks before my upcoming 3rd major abdominal surgery. CANCER SUCKS!!!!!!!!! words cannot even describe my hatred for it and the havoc it's wreaked on my body.
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Hi, Jo, I spend half the night walking round the house, sitting on the loo, taps running and feel sograteful for the occasional thimble full. But the pain, my God, its excruciating. Does this Solefenacin work? I was told by one doctor that my peritoneal cancer has affected my bladder and bowels and there will be quite serious consequencies soon. The next doctor said because of my age (71) this would have happened anyway. I don't believe that. How are you now with the help in place? With everything else going on in your life it must be so hard, sending my love and best wishes.
Oh Pauline, bless your heart. I'm certainly nowhere near the agony you're going through.
At first, the Solefenacin seemed to help - I was on 5mg per day, but after a week I noticed the same bladder discomfort returning and the urologist increased the dosage to 10mg per day. A couple of months down the line, if I'm honest, I'm no longer convinced about its effectiveness.
The urologist has discussed the option of being permanently catheterised, but as I'm 'managing' the incontinence issues and certainly not experiencing the pain you're suffering, I'm holding out on that option for the time being. Is this an option you may be able to investigate / consider? Sorry, I don't know if this would be possible with your type of Cancer.
At my last appointment, an ultrasound showed I was within 'normal ranges' for emptying my bladder, but as we've discussed, it's such a battle to wee!
My pain nurse is referring me to the community nurse team so that I can call them out at any time, 24/7, to catheterise me should I need it.
Pauline, you too have so much going on in your life and I really wish you were getting the medical support I seem to have been offered.
You offer so much support to others on the forum; I so wish I could take your pain away! Sending you a massive hug sweetheart, Jo xx
Pauline, I've just checked why the Solefenacin was prescribed for me and it was actually to help with bladder incontinence! So sorry I've given you false information - it was to 'relax' my bladder, but with the intention of helping with the involuntary incontinence I experience! Apologies! X
We are in exactly the same boat. After my 6th chemo I ended up with hemerrhoids and fissures. Pooping shards of glass is exactly how it feels! I have been climbing the walls for 4 weeks now. I did much research on it and found the best treatment is nitroglycerin ointment and sitz baths after every movement. I too have many movements a day that is why my pain last up to 10 hours a day. I just got my prescription yesterday and am praying this pain will cease and soon. As you said, it's bad enough we have to deal with all the chemo issues, this just feels like hell. Hope you feel better soon.
Chilly, PLEASE let me know if the nitro works for you! I was given anusol hc suppositories, and sadly I have to have my dear husband put them in for me. it's so painful for me to even do much down there. as of today, I can't even use my go-to wet wipes after a bm - the skin around is so torn up and inflamed, so now instead of wiping, I prepare a little sitz bath right after and just sit in that, dirty and all, because I can't handle the pain of wiping. even putting in the suppositories is an agonizing process, again because the whole area and inside is so inflamed. basically just sit there writhing in pain. this is seriously affecting my quality of life, which is already affected because I've been fighting this cancer for 2 years and every year it seems I get more bad news and more organs removed from horrendous surgery.
This happened to me. My third cycle of chemo coincided with the death of my Father. THe very next day a toenali came off and I had my first hemorrhoid and it was agony. I took my mother's advice.
I got suppositories and hemorrhoid cream. I would insert a suppository at least 3 times a day and use the nozzle of the cream tube to shove up as far as it would go. As I retracted the nozzle I would be squeezing the cream gently allowing the cream to sooth all the way down. At the very bottom I would massage the cream in.
If you can insert as many as you can at times when you can lie flat for about 30 minutes afterwards to ensure the suppository doesnt slip down.
It takes ages to get rid of a hemorrhoid. It is four months later and I'm still a little sore.
Another piece of advice from my Mother, keep up the routine, even if you think you are better. Wait until you are totally pain free for a few weeks before you stop entirely.
Hi, have just read your message and all the repleys while waiting for hospital to ring me back. I thought l was the only person with this problem because of my surgery (so wrong). I had my large colon removed along with part of my rectum. My small colon then joined to my rectum. The hospital said all found cancer removed but to be on safe side it would be better to have eight sessions of chemo tablets. I am in the middle of fourth one. The pain is just how you and your readers have and like all of you don't get any relief from anything l do. The difference with me is that l do not get pain every time l go. Some times it may give me no pain for two or three days. But like now l have had four solid hours of pain and have decided to ring hospital and stop chemo. Drastic measure BUT l am only taking it in case any cancer cells escaped and. L don't think. L can take an6more. I really hope you and every one else is able to get over this dreaded thing.