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Hello..... new, and a little confused

14 Nov 2017 12:20

I had a long awaited Drs  appointment  last week after having many symptoms that started over a year ago. Yellow eyes then jaundiced then swollen abdomen and ankles and feet which increased about four months ago when I started losing my strength and muscle mass rapidly, eating all day, feeling very weak and tired. Started all the doctor visits to find hypo (not hyper) thyroidism and started meds which made me pretty much unable to get out of bed. I was so tired I found myself falling asleep riding my bike. On to the symptoms I had, they did an ultrasound and found a mass on my liver. All he said is that it could be cancer and had me do an ct scan and bloodwork,referring me to the liver center, and telling  e no drinking andlower salt intake if there was a chance of a transplant. So.......given the research I've done and the symptoms I have it sounds to me like it is .ca cer and pretty advanced. I don't see him again for 3 weeks and I'm so anxious. I know you cannot diagnose me but I'm just looking for opinions on this. I have a history of a mass on my pancreas that they starved and it shrunk, a "sludgy" gallbladder, and non alcoholic autoimmune liver disease for about 6 years now. Thank you for your opinion on this in advance, and I WILL NOT consider it a diagnosis......just more of an idea of what is going on.

Re: Hello..... new, and a little confused

16 Nov 2017 14:23 in response to Loreleicity

Hi Loreleicity and welcome to the forum.

I'm sorry to read about the symptoms you've been experiencing over the last year or so but it's good you finally been able to see your GP and tests are now being carried out to find out what the cause may be. 

3 weeks can seem like a long time, especially when waiting for results, as many of our members here know and hopefully some of them will be along soon to offer their support and advice. In the meantime try not to self diagnose if you can as that can make things seem worse than they may be and stay busy as it does help time to pass that little bit quicker.

Do come back and let us know the results when you get them Loreleicity, we'll have our fingers crossed it isn't anything sinister.

All the best, 

Steph, Cancer Chat Moderator

Re: Hello..... new, and a little confused

16 Nov 2017 17:12 in response to Loreleicity


I wish I could answer your questions but all I can advise is that you write all your questions down and ask the specialist at your next appointment. Don't hesitate to ask dozens of questions and don't forget to write the answers down as you hear them. I once read some research that said that most patients remember less than 40% of what they've been told verbally during a stressful consultation - especially if the news is bad. 

Waiting for a diagnosis is just about the worst part of this experience. 

Good luck


Re: Hello..... new, and a little confused

23 Nov 2017 12:18 in response to davek

Thank you for your response. I will let you know. I am alone in all of this so it touched my heart that someone took the time to reach out....thanks

Re: Hello..... new, and a little confused

23 Nov 2017 12:19 in response to Moderator Steph

Thank you for replying. It really means a lot. 1 week to go!!