feeling low

I am in my 40s diagnosed for Grade 3, Stage 2 breast cancer in 2016. Had a lumpectomy, finished Chemo and Rads in November last year and now on tamoxifen for 10 years. I know I should be grateful that it hasn't spread and had the all clear at last check up. I had pain around my collar bone (cancer side) and I had blood tests in May for full blood count, calcium, kidney and liver and they came back  satisfactory with no cause for concern.  However I feel I am in this prison cell waiting for it to return.  Another family member also has cancer (diagnosed 8 months before me) but its terminal, found out Saturday that doctors has given him a year to live.  This has brought everything back to the surface when I thought I was moving on. I feel guilty surviving, its so unfair how this disease takes us.  Cried to myself at work over a silly remark, but my work colleagues don't want me to keep going on about cancer and how it affect us. I have to appear positive and grateful. They think they know how I am feeling, but they are not in that club. I can't imagine how people who's cancer is terminal feel, and I had cancer.  Do all cancers come back, I don't think I will live to my retirement in 20 odd years.  I have been feeling fatigue for months, still got chemo brain at times and now I can't sleep. Every pain  I have is a sympton or sign.  If I drink alcohol, eat bad food or don't exercise I feel guilty due to high risk of cancer returning and I am being selfish for having vices as I should be doing everything to stop it returning.   Why do I feel so negative when I should be feeling and acting positively,  be a good example to my children; after all life is too short, right? 

  • Hi,

    Two things - I have a remitting/relapsing cancer. After chemo I was told I was in complete remission, one of the 13% apparently, who go into remission without a stem cell transplant. i felt no elation and neither did my wife.It was just a case of getting on with the next stage of my life. My daughter, who was with us, was almost angry that we weren't yahooing around the hospital. I've since read of loads of people who felt no such elation, for various reasons, one of which is probably concern about the cancer returning. Some people appear to have a form of PTSD.

    Secondly, somebody else's ailments do not diminish yours. You are not responsible for the severity of anyone's condition and you are not responsible for the severity of your own. Don't feel guilty about your lifestyle. Anybody who's had cancer is entitled, in my opinion, to whatever quality of life they're able to achieve. If you feel like it, have a diet exclusively of cream cakes and gin.

     

    Best Regards

    Taff

  • Hi, I was diagnosed with lung cancer in July 2015. Right lung removed, chemo, and recovery. Same as you I've been cleared until now. I also find it hard to pick my old life back up and I know what you feel every pain is new cancer. People think that I'm strong but I ain't, I sometimes want to give up and just stay in bed but I need to go to work and keep going. I made a lot of "cancer friends" while I had my treatment but most of them died in the last two year and that gave me a guilty feeling and it keeps going on. And yes I'm tired all the time. I made one big mistake and that is that I never went to a help group like Macmillan or something else. I find that it is important that you can talk about your cancer with other patients or specialists. (I still want to go) Anyway, we must keep our head up, you won from cancer and life goes on. Do what you want to do and live your life as the best you can. You must leave your prison and look around you. PS: I still have chemo brain two years later and I thought I was making that up. Please stay well
  • Hi DodgyChick, First, live the way you want! For all the talk about the need for diet, exercise and positive thinking, the plain truth is that we are all fairly helpless, subject to the God of Statistics.  Which sounds negative to many people, but not to me. Realizing that things are beyond my control helps me a lot. If I am feeling low, I do not need to worry about how it is affects my chances of a recurrence, because I know it has no effect at all.  I am positive thinking, eat well and do a lot of exercise. But I am under no illusions that this will make any difference to my prognosis. Where being physically fit will help, however, is helping the body cope if you are unlucky and need further treatment. And thinking positively just makes life more enjoyable!

    All us cancer sufferers know the feeling that, after each ache and pain, we immediately think 'is that the cancer?' And it is something we all have to learn to live with.

    Will your cancer come back? Will you reach retirement age in 20 years? No-one can answer that definitely. But you can ask your medical team for a prognosis, if you want to know. This prognosis will always be a percentage chance. There are no certainties in this game. xx Harry

  • Hi. I often feel like this after nearly 8 years since diagnosis. To help myself feel positive I put my war paint on and dress up to go out even for work. It gives my confidence a boost and I feel I can face anything. The positive comments about looking good/ dressed up from people also gives my confidence  and  low mood a boost.

    Wear a smile and take your children on an adventure, laugh n make memories. Climb trees together, splash and jump in puddles/sludge, dance in the rain. It's a great way to improve mood without spending money and clothes wash. 

  • Hi. This is the first time I have spoken to anyone since being diagnosed with Breast Cancer 3 months ago. Just did what I needed to do because they said it was 'fixable' - had a mastectomy with hardly a tear and was all ready to start Chemo yesterday followed by Radio and tamoxifen. Everyone thinks I'm superwoman, including me. I've overcome so many horrible things in my life and keep smiling. I had a great job, ride horses and motorbike, left a horrible marriage at 50 and was just making a fab new life for myself and my daughters in our gorgeous new home. Then BOOM on Thursday I'm told after loads of scans I'm told I have secondary bone cancer in my head and no matter how positive, strong, fit, youthful, healthy I am it can't be cured. For a day it felt utterly ridiculous and today I am now looking at everything around me thinking I should get rid of that so it's less for my kids to deal with, every conversation about future events I'm asking myself What if I'm not there? I'm never a doom and gloom type person but I admit even I'm struggling to come to terms with this. I lost my Dad to cancer at 52 and my Mum at 62 as well as loads of Grandparents, aunts and uncles so I know only too well how this all goes and I can't protect my teenage daughters from it. I have made contact with the Macmillan people for us all to have some support. I hope it will help them by talking to other youngsters but I also don't want them to even have to think about it. Does anyone have any advice on helping your kids through all of this. They are not ready to be on their own and I'm terrified for them. One is doing A levels this year and she doesn't show her feelings or discuss it at all which is even more worrying.