I guess this subject has come up before but I was hoping I could get some reassurance from others living with cancer. I was diagnosed with myeloma (bone marrow cancer) 5 years ago at the age of 44. I had stem cell and have been lucky in that I have a cancer that can be pushed back.
However, I have to live with knowing it will come back and not knowing when. Every health issue since then has resulted in scans and tests, I am lucky if I go 6 months without a referral. Again, I have been lucky and they have been false alarms. My count has gone outside the normal range but at present it has stabilised so I could stay healthy for a lot longer.
The problem is that nobody around me gets what that is like. The fear of cancer at every test, every mention of someone you know being diagnosed or somebody with your condition dying. People think while you are healthy you are not living with it and I feel completely isolated.
My close school friend also had cancer, we supported each other because we knew what it meant to live with it. She died in November and I miss her support terribly. I don't have my own family or parents, many friends have not stepped up and it makes me feel like I am not valued. I wish they would think to ask me how I am but because my treatment was 5 years ago they do not think to ask any more. I am suffering from anxiety and finding it really hard to cope.