Fed up

Hi has anyone else had to wait a long time before there treatment started.im getting so fed up waiting not really knowing what's going happen .I was diagnosed with bowel cancer august 24th then had CT scan results show had spread to liver .then had MRI .then last week I had pet scan of body .been told liver takes priority over bowel and my local hospital refer me to a hospital which specialises in liver cancer which is where I will go if surgery is the plan .my local hospital say could be chemo first then operation or other way round then after recovering operation and possible chemo for bowel at local hospital .but so fed up waiting .I do phone my nurse but she can't help . because there waiting for instructions from the specialist hospital .I'm going phone her tomorrow .this just feels like never ending .I'm now starting to feel unwell.just think fee bit better once I know what s happening .

  • Hi there... wer all with you on feeling how hard the waiting is ... I’m sure if you phone your drs tomorrow, you can ask them to chase up your results etc ... your oncology team may want to get all the info together to know which way to go .... there’s help lines on here and McMillan... I used them when I was waiting and feeling , angry , crying, and going “what if “ and you talk to a trained nurse, and it sure helped me ...  so hang on in there ... sending you a big hug Chrisie xx ️

  • Hi thanks for your kind reply .I have spoke to McMillan before they were very nice .will phone nurse  tomorrow .I should think they have all scans they need now 

  • Hi  tiger cub  how are thing going  treatment

    must have started by now  think I waited about 3-4 weeks  all the people involved get together and discuss results of tests b 4 starting treatment do hope your ok post when u are up to it best wishes x

  • Hi thanks for reply I emailed hospital yesterday .I was on list for today's MDT at liver hospital then hopefully they talk to my local hospital and they have there MDT tomorrow and they should phone me tomorrow .this last week been really hard .you feel so crap you shouldn't have chase up your own treatment .so fingers xx should soon have idea what's going on and I feel bit better .odd isn't it all these people making decisions about us and we don't know what's going on xx

  • Ask for copies of letters sent to yr GP from hospital. Has all the info u can check it out with nurses on here Don't forget you are in charge

    i had chemo today  refused blood pressure as left arm swollen to elbow huge lol no pain phew

    had right breast removed 7years ago preventative  / convience. ,  drove me mad with one breast  so have to a bit careful of it blood drawn and chemo also   get help making your decision    but You decide   Power to u it's your life  not theirs it's only their job   most do it very well. Good luck grabbing back your life hope all goes smoothly  keep posting X

  • Hi I'm glad you're doing well you sound very positive person .I suffer from high blood pressure so regular check on that anyway surprised it not sky high .good advice of letters .I have got one detailing things at beginning of this .I don't doubt the treatment and care I will receive will be very good .when it starts .take care