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enlarged lymph nodes - worried!

28 Jul 2019 10:12 in response to Miks77

Hi there all ,just come across this post and it's of great interest to me. I had a feeling of something in side of my throat for weeks , got reffered to a consultant, he did nasal endoscopy  couldn't see anything but sent me for mri scan and CT scan , then he sprung on me I had enlarged tonsil which he even said good chance its cancer in there, and an enlarged lymph node 11mn on same side. I had tonsillectomy and part of my tongue taken too for biopsy. I was initially relieved as he said no sign of cancer,  but now I'm booked for needle biopsy of that lymph node, I'm back to worry mode. I can so relate to everyone on here.. It's so incredibly debilitating the anxiety going through procedures and waiting for results..my biopsy is on Tuesday, I'm beside myself again with worry about there being cancer in this lymph node   can anyone comment or help with thoughts or experiences of this please 

enlarged lymph nodes - worried!

28 Jul 2019 23:11 in response to AndyL

Hi Andy,

Having had 2 bouts of breast cancer in the past 10 years, I know just how worrying it can be waiting for the results of tests.

I hope that your biopsy on  Tuesday  goes well and doesn't show up anything untoward.. I know that this is a scary time and there is no easy way to get through it. The only advice I can give you is to keep yourself busy to distract from the wait and to stay away from Dr Google, as this will only scare you further.

I shall be thinking of you on Tuesday and will have my fingers crossed..

Kind Regards,

Jolamine xx

enlarged lymph nodes - worried!

29 Jul 2019 09:19 in response to Jolamine

Hi Jolamine thanks for the reply.. How did you cope with all the anxiety and stress of all the tests, surgery, waiting for results? I'm told it's the waiting that's the worst, even if you get a bad diagnosis at least then you have a plan and you feel better for it,   is that what happened with you? Personally I'm a bag of nerves and have been really for 4 months while I've had so many tests. I've lost weight , missed work, been sad, angry ever emotion going.. My biopsy is tomorrow but then it'll be yet another agonising wait for results, this in itself must put a strain on the body. I've tried so hard not to worry , but how is it possible. Thanks, Andy 

enlarged lymph nodes - worried!

29 Jul 2019 09:35 in response to AndyL

Hi Andy

i can understand how you feel I had this worry for over a year and had many tests then finally a biopsy on my biggest node which came back as nothing specific! I hope you can get some answers after your biopsy and that you feel more relaxed easier said then done I know! It’s been nine weeks since my biopsy and I have s lump in the same place in my neck feels like it’s the same lymph node! I thought maybe it was from the surgery but it’s been nine weeks so I’m not sure what is going on!I’m trying not to worry but am back to my ENT dr on Thursday to check what it is ...I’m telling myself surely they didn’t take the wrong lymph node out but it feels like the exact same lymph node so I am again feeling a bit anxious too!!! Wishing you all the best and hope tomorrow goes well for you! 

Take care 

Miks 

enlarged lymph nodes - worried!

29 Jul 2019 16:51 in response to Miks77

Hi Miks, did you have your tonsils removed? And showed an enlarged lymph node? You mentioned surgery  what surgery did you have? Well must of been great news for you at least at first though That must be so frustrating for you as you thought you had it all sorted.. Surely they wouldn't of tested the wrong node on you  from what I've read lymph nodes do react quite a lot to things.. Now your going through the process again.. Well I'm having my needle biopsy tomorrow morning, so we'll see what it shows.. Probably won't get the actual results for a few days.  Regards  Andy 

enlarged lymph nodes - worried!

29 Jul 2019 17:40 in response to Miks77

Also Niks, did you ever feel like there was something pressing inside your throat? Also how bad did the anxiety make you feel, as my energy and appetite are on the floor at the moment, I'm hoping this is just due to the worry. Thanks again  Andy 

enlarged lymph nodes - worried!

29 Jul 2019 19:38 in response to AndyL

Hi Andy

i didn’t have my tonsils out I had an excisional biopsy so had a general anesthesia to remove a node.( surgery) There was another node smaller next to the biggest one and I’m really beginning to think they took that one! I also had no appetite at all and felt so many more aches and pain’s during all this stress....anxiety can play a lot of tricks on your mind! I noticed this as once I received the “ good” news everything stopped aching!!! Now I feel like I’m back to square one! Hoping I’m wrong !Lets see what Thursday brings for me I guess an ultrasound at least to have a look!Best of luck tomorrow will be thinking if you!

keep us updated and take care!

Miks 

 

enlarged lymph nodes - worried!

29 Jul 2019 21:55 in response to AndyL

Hi Andy,

I fully agree that this is a particularily scary time, but I am glad to hear that your biopsy is tomorrow - the sooner it is over the sooner you'll get the results. 

You are quite right. You will feel better once you know the results either way. At present, it is fear of the unknown that is so frightening. The best advice I can give you is to keep yourself busy to try and distract yourself from the wait.

I hope that all goes well for you tomorrow and that you don't have too long to wait for the results. Please stay in touch and let us know how you get on

We are always here for you.

Kind regards,

Jolamine xx

enlarged lymph nodes - worried!

9 Aug 2019 19:15 in response to Jolamine

Glad I've found this particular thread having had about 4 months so far of worry. Started with a very very bad case of tonsilitis (confirmed need removing) - however since then have been generally unwell. Doctor describes it as virally unwell - I have hot flashes, fatigue and nausea - and swollen (and quite sore/achy) lymph nodes in my lower and upper legs, and relatively palpable ones in my abdomen which cause the nausea. Nausea and general illness seems to come and go in waves week by week - but Dr has now requested the a whole raft of tests.

As a curve ball, my symptoms tend to correlate with right sided facial pain and loss of taste - which has this week been confirmed as an impacted wisdom tooth requiring extraction... maybe I'm just wishing it's all linked, but the lymph nodes are worrying me at only 28!

enlarged lymph nodes - worried!

10 Aug 2019 01:48 in response to JPS

 

Hi JPS,

Welcome to our forum.

I am so sorry that you have had this worry for the past 4 months. I am not a doctor, but can assure you that general malaise often accompanies tonsillitis. Have you got an appointment to get your tonsils removed yet?

I am glad to hear that your GP has requested a whole raft of tests. If you are so aware of your lymph nodes, it sounds as if you may need a biopsy to get these checked out.  Ask your GP to refer you for this. It may just be that they are up because of the inflammation in your tonsils, but you'd be better to get this checked out.

At only 28 you still have a lot of living to do, so here's hoping that nothing untoward turns up for you.

Kind regards,

Jolamine xx

 

 

enlarged lymph nodes - worried!

12 Aug 2019 13:27 in response to Jolamine

Hi everyone,. I'm new here (in the sence that this is my first post but I've been reading for quite some time).

I've been reading this thread recently because I have some enlarged lymph nodes.

I first noticed one on my neck torards the back but still in the side. I knew about the waiting 2 weeks to see if the go down so booked an appt for 2 weeks time (early June). My GP happily referred me for a scan.

Scan was done mid July and after seeing my GP he said the scan showed several (but also said 3) reactive nodes and rescan in 6 weeks.

Of course my mind is in overdrive. Like many others I have health anxiety and have thought I've had many serious diseases, most recently before this I thought I had diabetes. I had physical symptoms - tingling of fingers and toes, sensitivity here and there on my arms, and I don't have the best diet. As soon as I got the all clear, these stopped.

Since my scan I have felt like I can feel the nodes in my neck most of the time, aches and pains etc. I can now feel 2 nodes next to eachother. And feel they may have gotten bigger. Only 5 or so minutes ago I fel one on the opposite side near my collarbone which I now can't find so am unsure what I was feeling.

I don't have any symptoms such as weightloss or night sweats.

I'm already 95% sure I have cancer even though I don't have other symptoms. Other than the pain and almost swelling feeling in my neck but I don't know if this is anxiety or real.

I'm not sure whether to see my gp and ask for my scan to be brought forward on the basis they've grown or to wait for my scan in 3rd September.

And what if they are found to be reactive on the scan? Will they just leave them? And if they have grown I imagine I'll need further testing but I don't know what. Can reactive nodes be cancer?

I hope everyone is well x

enlarged lymph nodes - worried!

12 Aug 2019 20:22 in response to Khammy87

Hi Khammy87,

My ENT specialist said (back in April) that several reactive nodes in my neck and under my jawline were likely to be reactive (due to them being tender) but referred me for an Ultrasound anyway. The US confirmed them as being reactive and not even worthy of a biopsy. I’m not saying the system is infallible (and mistakes are made), but they usually take a biopsy if there were any concerns at all. The absence of night sweats and the fact they are tender (not a painless lump) should be a source of reassurance I think.

The consensus of opinion was that I had a viral infection that took a while to go away.

Dave

enlarged lymph nodes - worried!

12 Aug 2019 22:03 in response to DaveW1970

Hi Dave,

 

I'm hoping they are just reactive but will have to see in another 3 weeks. I'm worried what happens if they haven't gone.

 

They aren't painful at all though an never have been which worries me. I've not been ill at all so can't see a reason to come up, though that seems to be the case with some in here.

 

The discomfort I'm talking about is around the general area and to be honest I'm not sure if it's real or my anxiety causing this because I e had it before where I'm fine yet I was sure I've felt symptoms but once I have the all clear they've disappeared.

enlarged lymph nodes - worried!

15 Aug 2019 01:44 in response to Khammy87

 

Ive truly found comfort in this thread, it’s eased my anxiety but I’m still scared. 2 weeks ago I woke up with a dry scratchy throat as the day went by I realised when I swallowed I could feel a lump inside my throat when I went to touch my neck I felt a fleshy lump on the outside which was hard and swollen. After a day or 2 I couldn’t feel the lump as I swallowed but the lump on the outside was still there. I went to the GP 5 days after he felt the lump and said he was going to refer me to the ENT doctor for an ultrasound FNA. A couple of days after I noticed the lump was getting smaller and it was kind of moveable however, I also felt a pea sized hard lump underneath the original lump (this is now 1 week) which doesn’t move I don’t know if it’s a enlarged lymph node which has appeared suddenly or if it was hiding under the first lump. I felt fine when the lump first appeared and I haven’t been losing weight I did feel lethargic the week before the lump appeared but I believe that was because I was so busy at work. I’ve been going to work everyday, sleeping fine and waking up early. I just haven’t been able to go gym because I’ve been feeling lazy and demotivated. I did go once though and it was fine (I usually go gym 3/4 times a week)

I’ve been inspecting the lump and keeping notes everyday to show the doctor when I go for my scan, I even drew a circle around the first lump everyday but a rash appearead because I think I was using eyeliner so I stopped. On Sunday evening just gone my throat became really itchy and on Monday I developed  a really bad itchy sore throat. I managed to go gym and I spent an hour in there I felt proud because I was able to do my routine with a couple of longer breaks (1-2 minutes rest) which I thought was normal because I haven’t exercised consistently in 2-3 weeks. I also struggled to sleep because my nose was blocked and I had a headache so I took paracetamol to get myself to sleep. I woke up on Tuesday with a headache and when I went to the bathroom I coughed up really dark basically black phlegm. I was petrified I then coughed up a small amount of browny/ yellow phlegm with red specks. I called 111 and ended up in my GP again. My GP told me to say Ahhhh and said he couldn’t see I had a chest infection so I should just wait for my ENT appointment which is basically today (Thursday). He didn’t even feel my lump (located on the right side. It also moves as I swallow which means it’s fixated) he  just checked under my jaw for swelling. I asked him if he thought it was serious and he said he thinks it’s a virus but he wants to be sure. I was in there for 2 minutes before he sent me away! On Wednesday I’ve been coughing up phlegm but it’s either been white or really yellow, no blood which is good. 

I wont lie I keep googling my symptoms as I think it’s getting worse. When I noticed the lump I felt absolutely normal now I have a sore throat and coloured phlegm I keep seeing throat and lung cancer floating around when I google I know I shouldn’t. When I lie down my nose gets blocked which could explain why I struggled to sleep. I went gym on Wednesday and worked out for an hour again but I tried boot to over do it as my throat was hurting and I think exercise may have made it worse. I’m a very anxious person and I work myself up so I have been crying on and off since my first GP appointment last Monday. I can’t explain how scared I am, I’m only 25 and I’ve only told my sister because she had cancer 6/7 years ago and she’s now a nurse she keeps telling me to relax and I probably just have an infection or virus but I can’t. I wouldn’t know how to deal with it. I have no one to talk to and I’m absolutely scared. I’m going to try and sleep and so I can feel rested for my ultrasound. The blocked nose isn’t that bad tonight or should I say today! Sorry for the very long post!!!!

SA

enlarged lymph nodes - worried!

27 Aug 2019 11:15 in response to SunshineEm

hi sunshine em I was wondering about how you are now if your ok and your symptoms went or are the lymph nodes still there sorry 

I know your probably trying to live on from this