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Dysgerminoma Ovarian Cancer

Recca24
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I'm 25 and have been suffering with bloating and stomach pain for a while, after many blood tests and scans,  I've got a Dysgerminoma which is a rare form of ovarian cancer. Which is contained in my left ovary that has grown huge. They're going to operate in a few weeks and remove it and take biopsies. If it hasn't spread that will be all the treatment I need but will just have check ups. If it has spread I'll have to have chemo but not an aggressive type.  Really hope it won't come to that. The doctor said it's an excellent success rate so hopefully  be fine. its just really scary and also the fact they've been telling me I've got ibs since October I wonder whether it's been this all along. 

  • Hi Recca, 

    I'm sorry to hear about your diagnosis but I'm glad that surgery is an option and that the doctor has informed you that there is an excellent success rate when treating this type of cancer. Many members will understand how scary it can be to find out about a cancer diagnosis, especially after being told it may have been something else to begin with, and hopefully some of them will be along soon to offer their support and advice.

    Do you have a date for your surgery? I hope you don't have too long to wait and that the cancer hasn't spread so you won't need any more treatment.

    Kind regards, 

    Steph, Cancer Chat Moderator

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    I'm sorry to hear this news, you seem like you are being very positive and optimistic. It sounds like you are in for a bumpy ride. Keep talking as it's still not nice to have cancer. It's still a big deal for you even so.

    I hope your surgery goes smoothly and that it's removed with clear margins. 

  • Offline in reply to Moderator Steph

    Hi Steph,

    Thank you, the doctors and nurses have been great. I don't have a date for the surgery yet but I'm hoping to find out next week so shouldn't be too long

     

     

     

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    Hi Recca, I just turned 26 and I had a dysgerminoma tumour removed in July and it was stage 2 ovarian cancer. I hope your results didn't come to that. Its the first time in my whole journey that I heard a similar story to mine and the same age. I kept getting told I had an infection, hence the pelvic pain. I really hope everything went well... Allison
  • Offline in reply to alli-starr

    Hi Allison,

    I too had mine removed in July and, went through egg harvesting and then had 3 cycles of BEP Chemo from August.  I haven't found anyone with a similar story either. I've just been given the all clear in December with checkups every three months from now on.  It's hard to not worry it is going to come back though.

     

    Recca

  • Offline in reply to Recca24
    Hi ladies just I know it's not a new post but I've just came across it. I had this same cancer when I was just 13( was the youngest in Britain at the time. I had one ovary removed along with the 10lb tumor day was attached to.it I'm now 31 and have had no problems since. I also have had 3 gorgeous children. Hope u r both well and was just a postive wee message. Xxxx
  • in reply to lindy31

    Hi Lindy, 

    I just saw your post and wanted to give you a warm welcome to the forum and thank you for sharing your wonderful story with us.

    It's so nice to come across a story with a happy ending :)

    Do continue to share your experiences with our other members on the forum when you can Lindy as I'm sure they would love to hear from you.

    Kind regards, 

    Steph, Cancer Chat Moderator 

  • Offline in reply to Recca24

    Hi Recca, 

    i was has the same treatment back I 2010 when I was 15 year old I never got chance to harvest my eggs I’m not year on and currently having issue I have a hospital appointment on the 10th to check k everything o can always answer any questions regarding treament. I’m now 25 and seem healthy. I’m open to any questions anyone may have 

    sophie 

    xxx 

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    Hi I know that your post was a while ago but I had this German oma in 1982 and I'm still kicking

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