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Dysgerminoma Ovarian Cancer

10 Jun 2017 07:14

I'm 25 and have been suffering with bloating and stomach pain for a while, after many blood tests and scans,  I've got a Dysgerminoma which is a rare form of ovarian cancer. Which is contained in my left ovary that has grown huge. They're going to operate in a few weeks and remove it and take biopsies. If it hasn't spread that will be all the treatment I need but will just have check ups. If it has spread I'll have to have chemo but not an aggressive type.  Really hope it won't come to that. The doctor said it's an excellent success rate so hopefully  be fine. its just really scary and also the fact they've been telling me I've got ibs since October I wonder whether it's been this all along. 

Re: Dysgerminoma Ovarian Cancer

12 Jun 2017 09:09 in response to Recca24

Hi Recca, 

I'm sorry to hear about your diagnosis but I'm glad that surgery is an option and that the doctor has informed you that there is an excellent success rate when treating this type of cancer. Many members will understand how scary it can be to find out about a cancer diagnosis, especially after being told it may have been something else to begin with, and hopefully some of them will be along soon to offer their support and advice.

Do you have a date for your surgery? I hope you don't have too long to wait and that the cancer hasn't spread so you won't need any more treatment.

Kind regards, 

Steph, Cancer Chat Moderator

Re: Dysgerminoma Ovarian Cancer

13 Jun 2017 01:08 in response to Recca24

I'm sorry to hear this news, you seem like you are being very positive and optimistic. It sounds like you are in for a bumpy ride. Keep talking as it's still not nice to have cancer. It's still a big deal for you even so.

I hope your surgery goes smoothly and that it's removed with clear margins. 

Re: Dysgerminoma Ovarian Cancer

14 Jun 2017 12:08 in response to Moderator Steph

Hi Steph,

Thank you, the doctors and nurses have been great. I don't have a date for the surgery yet but I'm hoping to find out next week so shouldn't be too long




Re: Dysgerminoma Ovarian Cancer

14 Jun 2017 12:09 in response to Laraine1

Thank you Loraine 

Re: Dysgerminoma Ovarian Cancer

2 Jan 2018 20:10 in response to Recca24
Hi Recca, I just turned 26 and I had a dysgerminoma tumour removed in July and it was stage 2 ovarian cancer. I hope your results didn't come to that. Its the first time in my whole journey that I heard a similar story to mine and the same age. I kept getting told I had an infection, hence the pelvic pain. I really hope everything went well... Allison

Re: Dysgerminoma Ovarian Cancer

3 Jan 2018 09:10 in response to alli-starr

Hi Allison,

I too had mine removed in July and, went through egg harvesting and then had 3 cycles of BEP Chemo from August.  I haven't found anyone with a similar story either. I've just been given the all clear in December with checkups every three months from now on.  It's hard to not worry it is going to come back though.



Re: Dysgerminoma Ovarian Cancer

27 Mar 2018 21:47 in response to Recca24
Hi ladies just I know it's not a new post but I've just came across it. I had this same cancer when I was just 13( was the youngest in Britain at the time. I had one ovary removed along with the 10lb tumor day was attached I'm now 31 and have had no problems since. I also have had 3 gorgeous children. Hope u r both well and was just a postive wee message. Xxxx

Re: Dysgerminoma Ovarian Cancer

17 Apr 2018 14:23 in response to lindy31

Hi Lindy, 

I just saw your post and wanted to give you a warm welcome to the forum and thank you for sharing your wonderful story with us.

It's so nice to come across a story with a happy ending Happy

Do continue to share your experiences with our other members on the forum when you can Lindy as I'm sure they would love to hear from you.

Kind regards, 

Steph, Cancer Chat Moderator