Me too, I await an oncology appointment. I am4 weeks postop from an anterior resection. All went well, no lymph node spread and it has just gone through the bowel to the veins outside. I feel so fortunate. I have had superb care from all hospital staff and from my lovely husband and family. I know no details yet about the chemo, but am told it is nowhere near as bad as that I had for breast ca 8 years ago.
No hair loss, no feeling really ill and likely to be tablets rather than iv. It will of course suppress the immune system, but again not as bad as the breast ca chemo.
i feel this is very good news. I was expecting far worse. I hope you have a similar journey ahead of you.nWith all good wishes.
Hi Seaspirit, I am 5 weeks post op and also had an anterior resection. Interesting to compare notes. I am now waiting some further test results to check for microsatellite instability (MSI) which also helps to inform the type of chemo and indeed whether chemo might be indicated at all.
I currently feel really well and the thought of having chemo and compromising my immune system doesn't sit very easy with me.
Would you keep in touch and let me know how you get on please? Where are you having your treatment?
Hi Jo, I would like to keep in touch. The thought of chemo, again, was very daunting to me at first, but I am just so pleased that lymphnodes were not involoved that I can accept it. Just glad I have a reasonable prognosis!
My op was in an NHS hospital as the surgeon thought the postop care would be safer. The care I had was absolutely superb. My op was supposed to be April 6, but it was cancelled as I was waiting to go to theatre, as there were no beds in HDU. That was awful, but no fault of the hospital--just not enough beds. I'm very sad about the lack of funding for the NHS. Do let me know how you get on. S x
Hi Jo, I too am having testing for MSI, and may not have to have chemo. I find out on July 25th.
I've had a bit of a hiccup though. I am currently in hospital with small bowel obstruction possibly due to adhesions. They are waiting and watching with an NG tube and a drip, hopefully no surgery.
I had a 20 cm vertical incision, so I guess adhesions more likely than keyhole, which I believe you had.
Good luck with your MSI test.
Seaspirit xx
Hi seaspirit, sorry to hear you are back in hospital. Let's hope things work out without the need for more surgery.
I have my oncology appointment tomorrow afternoon. I have mixed feelings about chemo. Part of me thinks yes please, give me chemo just to be sure, the other voice in my head says noooo, no chemo, the risks might outweigh the benefits!
Glad you know one way or the other. As far as I can tell this chemo is not as bad as others, no hair loss, snd you don't feel as ill. You get immunosuppression, but again not as bad. You may get some tingling:numbness in hands/feet, and sore hands and feet. If you need a moan please feel free, I'm here. I'm still in hosp, but it seems slowly ti be resolving. Can have a cuppa and ice cream Do keep me posted, and good luck, Seaspirit x
