I was diagnosed terminal with 6/8 months to live. That was back in 2013. This was following a left upper lobe removed. I was in remission in April 2013. My brother was diagnosed 5 months previously. It transpired we both ended up with the same oncologist. He thought it rather unusual and bizarre treating two members of the same family. My brother and are are from a large family of 7 children altogether. I am the second eldest but the eldest girl. My brother he was exactly the middle child with only 4 years between us. He was just 50 when he was diagnosed type 4
left lung cancer, it had spread to his kidney, shoulder and it was making it way to his right lung and brain. Up until my brother we had a family had not known of a singe person within the family on either side my mum or my dads nor did our parents know of anyone else having ever having cancer. Eventually after my brother and I had a few extra test we where both told it was a genetic twist we where we both told it was a genetic twist we told our siblings who all said the rather would not know, a good few months ago my elder brother who lives in Malta has been in touch he now ha cancer himself. Exactly the same as my first brother and myself. It’s also strange all 3 of up it stated in the left lung. In some ways he was fortunate and in another way it was a tragedy how they diagnosed my elder brother. He retired to Malta after servings in the Army fir 22 years. My brother took a boating pilot lessons I am not sure joe that works al I know he’s now a fully fledged boating pilot. One day coming into dock his friend let go of something leaving this thick metal wire loose on a coil it caught my brother and because of speeds he ended up losing his left hand and severely twisting his left arm during a scan to see the extent of damage it had done to his arm to see what they could do. On the scan they had caught part of his left lung. It was on that scan they my only saw the extent of his damaged arm that’s when they picked up his cancer. I was distraught. What a way to find out, plus him having lost his hand that same day. I can’t describe how I felt let alone him.. he’s had some chemotherapy and things were looking goof. Then last week he contacted me to tell me it was back. I should have died yet there’s something for some bizarre reason that I have totally baffled the cancer world because I am still here. I hope the bloods I let them take for cancer research they find why. Yet I feel bad for my brothers the younger one he passed away a year and 12 days after they found it. I know some people do not get a year. My brother who passed away did so a day before my birthday. Not that the birthday bothers me. He was 51 I just want to know why him and why have my brothers not developed whatsoever it is that’s keeping me alive. Also had I known then what I know now. Apart from them removing the biggest part of my left lung. There’s no way on gods earth would I have put myself through chemotherapy. Not a cat in hells chance. I also had immunotherapy which is a different thing again no poison involved. Again I lasted 7 months with a good reaction to it. If I had have know the gradual affects it was to have on my body I would never have had that either . I know my last scan still showed I still had metastatic cancer, however immunotherapy has killed some but it now back on the move. I have gone no further treatment. Although I do know my oncologist has said if I had immunotherapy again for only 6 months it would give me more time, and if we did that every time it starts moving again and we do that every time then perhaps I could get a extra 5 years. Oh and that’s only untill the immunotherapy stops working. It might not work the next time round. Am I prepared to take that risk. NO NO NO I really know their are lots of people out there who would literally give everything they had to be in such a rare situation and have the extra life. I wish I could give them my whatever it is keeping my alive I genuinely do. It one reason I have given so much if myself to cancer research with the hope they can find out exactly what it is and they have said if they can replicate it, it would give thousands upon thousands extra life. To give someone a lot longer prognosis would be amazing. I have also said they can have my body to take whatever tissue they need after my death. I know me saying no further treatment was a bit of a blow because it’s transpired the longer I live the better for cancer research. So now having found that out I am stuck between a rock and a hard place. I do not want anymore treatments. Especially how it’s left me, but please someone help or do I continue despite what it’s doing to me have more treatments to help hopefully to give other people a far far longer life. ??????? Anyone have any suggestions would greatly appreciated.