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dermatomyofibroma

21 Sep 2019 07:41

I have got two lumps appeared in a sudden last year after a foreign trip. One on my neck ( around 0.5cm), one on my chest (around 0.2cm). The lump on my neck changed color and shape this year. I went to see specialist and had biopsy of both. The results suggest the lump on my neck is a rare benign lesion called dermatomyofibroma. The lump on my chest is scar tissue even though I don’t know why there could be scar in a sudden. My question is if I need to get a second opinion (can biopsy results be wrong sometimes?) I am told I don’t have to remove the lumps as they are benign and not grow. My friends told me it’s better to remove it. I wonder if a benign tumor can turn cancerous in future or cause more complications if it grows? The lumps don’t seem grow since it appeared, but then I only judge it based on my fingertips measurement, not real measurement. Thanks for reading 

dermatomyofibroma

21 Sep 2019 08:49 in response to Jane2019

Hi,

A dermatafibroma is completely benign and can't turn cancerous. I have several where I have been bitten by insects whilst on holiday. They do eventually sink into the skin and disappear but it takes a few years. They are absolutely nothing to worry about. I have attached a link to the British Association of Dermatologists who explain exactly what you need to know https://www.bad.org.uk/shared/get-file.ashx?id=78&itemtype=document

Best wishes,

Angie

dermatomyofibroma

21 Sep 2019 10:03 in response to AngieT

Thanks a lot for your info, Angie. It’s very helpful. My lump is apparently a very rare one, called dermatomyofibroma. 

dermatomyofibroma

21 Sep 2019 15:01 in response to Jane2019

Sorry for my misunderstanding - I had never heard of this before. I looked it up and found how rare it is and there are only medical studies available to read but this one may be of interest to you https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5312187/

Thankfully it does say that it's benign and there has been no reports of malignancy, recurrence or metastasis. I think any complete removal really depends on if you are happy to accept the consultant's diagnosis or not. You are completely entitled to a second opinion if you feel unsure.

dermatomyofibroma

21 Sep 2019 18:21 in response to AngieT

Thanks Angie. It’s on my neck so that I am a bit hesitating what to do with it. I hope biopsy results wouldn’t be wrong  and benign would remain benign. the fact something so rare (as 100 cases only globally as reported in that paper) can happen to me is daunting. 

dermatomyofibroma

23 Sep 2019 11:47 in response to Jane2019

Hello and thanks for posting on the forum,

I am sorry to hear that you are feeling worried.  It is good to know that the lump on your neck is benign.  I am sure that if the doctors were at all concerned then they would have removed it. The pathologist can get a good idea by looking at the cells under the microscope and if in doubt they will get a second opinion from another pathologist. This is something you can ask about. 

I came across the same medical journal article as Angie did, so I don't think you need to worry,  but if you do notice any changes then do go back and get it checked again.

It might be helpful to go and talk through your concerns with your GP.  They may be reluctant to recommend a second opinion if the pathologist  seemed so sure about your diagnosis but it is okay to ask. We do have some information on our website about getting a second opinion which you can look at here

Doctors don't usually want to remove things without good reason, but again, there is no harm in asking. 

If you would like to have a chat with one of the nurses on the helpline then do give us a ring.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

Best Wishes,

Catherine