Hi

i saw that no one else had replied and even though our circumstances are very different to yours, I thought I would add a comment 

You referred to maintenance and "ALL", which are not terms with which I am familiar. 

When my partner had chemo in her veins, like most people her hair dropped out. The first regrowth of hair was a strange white colour and the texture was dense and wiry. This then dropped out/grew out and the new hair was a light ginger (closer to her original colour) and had waves in it. The back of her head had ridges of hair across it. Over time these have softened. 

Alrhough the experiences are not exactly the same, what we found was that the second growth was closer to her original hair type. Obviously your experience is different, but I just hope this anecdote might reassure your daughter.  .  

Thank you so much for replying. I think maybe I should of  posted on the leukemia forum as she has Acute Lymphoblastic Leukemia.

I hope everything is going good for your partner and I appreciate the response.

Hi Lisa, welcome to the forum, but so sorry to hear that your young daughter has cancer. Having a child with cancer in my mind would be so difficult and I can't imagine what this must be like for you. I can't speak to the issues your daughter is having with her hair, but I wanted to let you know that people on this forum are very caring and supportive. Anytime you feel the need for emotional support, or just a place to vent from the emotions of caring for your daughter, come on here and other forum members understand. Perhaps your daughter's treatment team can answer your questions about her hair. To a young girl, I'm sure this is a very important issue for her. My heart goes out to her and to you, and your family as you take this journey with your daughter. I hope that all goes well for her as she travels a road that no one would ever want to be on.

Take care and sending hugs to all of you.

Lorraine 

Hi,

Sorry to hear about your daughter. I currently have ALL also. The effect treatment has on people's hair depends very much on each person and how their body respondes to which ever treatment they're having. 

However, I lost all my hair in my second month of treatment (February 2016). It then began to grow back very thin over the course of three months. I believe it was very thin and patchy as I was still going through chemo. In June I had high dose chemo and radiotherapy in preparation for a stem cell transplant and lost all my hair again. 8 months post transplant and my hair is thick all over and stopped falling out! 

So it's possible your daughters hair may continue to grow then become thin again, depending on her treatment. I completely understand how distressing and upsetting it can be. Please tell her from me, that her hair will one day come back for good. And I'm sure she looks absolutely beautiful with out it anyway. Sending your family all the luck. 

Also, she may be interested in the Look Good, Feel Better scheme. Google it - it gave me the world of confidence. 

Tanya 

My 15 year old daughter also just finished her mainanence phase of leukemia in July. In June her hair started to suddenly fall out again. It's been devastating. It's still very weak and she has many bald spots. I don't know why this happened to her especially when her hair was growing and getting so strong when she started her maintanence phase. Have you found out any answers? Has your daughters hair started to grow back? It's been so stressful. 

Hello, Thank you for posting on this topic. My son was diagnosed when he was 11 and has been in treatment for two years and two months. At about the two year mark he had a couple of back to back viruses and a sinus infection, and, subsequently, experienced terrible bone and muscle pain with that round of steroids and vincristine, and that's when his hair started to fall out, again. He hasn't completely lost his hair, but it is rather thin and continues to fall out. Did your daughter's hair continue to fall out over the remainder of her last 8 months of treatment, or did it stop falling out and grow back? My son has been very sensitive to all the treatment, did your daughter experience many ill side effects? Congratulations on being done with treatment. Could you share a little of what that feels like? My son has another 14 months of maintenance left. Thank you. 

Hi, i have the same problem with my son. He is in maintenance cycle now and his hair fall up to very thin and regrow again.

One thing noticeable during his hair loss is that he will lose his appetite

He is 4 now