Hi All, I am new to the community and after searching forums wondered if anyone has had a simiar experiance - my dd was diagnosed with ALL in May 2015. She is currently well into the maintenance phase and, since dec, her hair had grown back very thick and beautiful... however, as of 3 months ago, it has started to fall again and is now at the point of her needing to once again wear scarves.
My question is, has anyone else experianced this much hair loss during maintenance phase after regrowth? She is finding it very distressing this time around as we were not expecting so much to fall, thin yes, but not complete loss again!.... is this what she can now expect until treatment finishes (July 2017)? Its so hard to give her an answer as i can't get my head around why when the treatment has been the same since dec, the hair grew but has now mainly gone again!
Hope that makes sense? Thanks so much for reading, This has been the hardest 18 months of our lives.