Hello,

I'm so sorry for what has happened.

I can't offer any words of wisdom or experience.

My grandfather was diagnosed with Mesothelioma two weeks ago. He also never worked directly with asbestos. The only thing that the Hospital did for him was discharge him before he was for well enough to go home. They sent him home with C Diffe and MRSA and he was backk in hospital 3 days later. 

I understand your anger. 

My grandfather has also been reserved with the truth. However, I don't blame him. He informed the consultant that he didn't want a biopsy and didn't want to know he had cancer. However, On readmission, a  junior doctor decided to ignore his wishes and told him he had cancer and was dying. His wishes were not respected and he was told he was dying with no family members there for support. I think the hospital is a disgrace for doing this.

From what I can gather there are some areas in England where support, treatment and symptom control for mesothelioma is reactive. This is unacceptable and isn't good enough. 

I plan to complain. It won't help my grandfather but maybe it will help others.

You have every right to feel angry.

The nurse from Hasag was really informative and helpful. Have you heard of them? 

Also Mandy who replied to my post on here was great too.

Please blog and offload if it helps.

I'm sending you my best wishes.

Chanel.

Hi Chanel,

Thank you so much for your reply and I am so sorry about your Grandad. That is so frustrating and upsetting. Why the hell don’t these doctors and nurses communicate with each other? We had the same thing. We saw so many different people and they all said different things. We were all so confused by the end of it. They really don’t understand the stress they put everyone through.

I have to say it has helped coming on here and hearing other people’s stories and support. I sometimes find it easier talking to strangers than I do my friends and family.

My parents are in touch with Hagas, yes and they are helping them with claiming compensation. It won’t help my Dad now but it might support my Mum.

Sending you hugs.x

So sorry to hear what you are dealing with, illnesses caused by man made things we come into contact with are the worst. My Dad died of Mesothelioma 7 years ago. He contracted it in the Royal Navy when he was 18 working in the boiler room where all the pipes were lagged with it. My Dad lead an extremely healthy lifestyle and was a Fireman for 34 years. His Consultant told him he had never seen anyone live 63 years after coming into contact with asbestos and put it down to the fact my Dad was very fit. The only reason he succumbed to it in the end was because he needed a hip replacement the year before and whilst his immune system was low the Mesothelioma took hold. He died within 8 weeks of diagnosis.