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Confused and I don't know what to think?

13 Apr 2019 13:47

Hi everybody. This is a follow up post from one that I did last week, it's here if you want to read it. https://www.cancerresearchuk.org/about-cancer/cancer-chat/thread/treatme...

I finished my second cycle of my treatment today and I had another scan. The reuslts weren't what I was hoping for. The scan showed that there has been no progress at all and everything has stayed the same again. (This is what I've been told for the last four weeks now) 

Becasue of that, I did end up having to have a meeting with my consulatant and my medical team to discuss next steps. My consultant is confused as to why everything has come to a standstill and he doesn't know if it's the treatment just not doing it's job or if there is something else going on, so on Monday I've got to go and have some 'investagetive' tests done. 

He also said depending on what the tests show is whether my treatment will carry on as normal, or if it will have to be completly switched up. 

It all just feels like a massive slap in the face, I'm just not happy. 

Confused and I don't know what to think?

13 Apr 2019 18:05 in response to Beingme45

Hi ya ...

What a disappointment... l can imagine it must really make you feel low, to go through all that and no change ...  cancer sucks ... 

The thing on here is there's lots getting those who have set backs ... your not alone ... so hang on in there .. fingers crossed your next results will be kind ... I'm so glad there's a few on here now with your diagnosis... so hopefully you can all help each other through ...

Maybe an idea to start a thread on here about your journey ... then others could see ewings sarcoma as a title and join in ... I'm sure you could help many others ....do updates and it could become a great thread like "the good and bad" is for us breast (and other) cancer lasses .. 

Chrissie x

Chrissie x

Confused and I don't know what to think?

13 Apr 2019 18:36 in response to Chriss

Hi Chrissie 

Yeah it's very frustrating and annoying to be honest, it's really not what I wanted to hear today. 

Yeah there aren't many people on here that have my type of cancer (I've only seen about three people) because it's not one of the 'common' ones. I have made a few threads and started some off but I've had very few replies. Hopefully though, somebody will see them becasue I would like to talk to more people who have Ewing's Sarcoma as it would really help me out. 

Thanks for replying, take care 

Confused and I don't know what to think?

15 Apr 2019 14:59 in response to Beingme45

Hi you said everything still same has treatment stopped it though or is it still growing. Mine isn't same cancer as yours but when I had kemo it stopped it spreading any further its been over 2 years now and still OK

Billy 

Confused and I don't know what to think?

15 Apr 2019 15:55 in response to Billygoat

Hi, 

Yes it essentially stopped growing because there hasn't been any progress (spread, growth or change) for a month now. I was at the hospital this morning having some tests done to see if it's just a case of the treatment isn't working or something else is going on that hasn't been picked up yet. I'm just wating to get the results back of those