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Concerned Newbie

26 Mar 2018 15:59

Hi everyone.  I’m new to this site looking for a bit of support.  I am very anxious.  I’m a ‘worse case scenario’ person. I’ve just had some polyps removed from my womb and a biopsy taken.  The doctor said the lining looks suspicious and I was so shocked I didn’t ask what he meant.  I think I’m still in shock.  I know that this is not the long journey that some of you have been on but I could do with some thoughts of people further down the line.  Please say hello to me and offer your thoughts. They would be much appreciated.

Concerned Newbie

26 Mar 2018 21:43 in response to Sundial

Hi Sundial,

I saw on another discussion that you said you were a bit down as no-one had replied to your post yet so I thought I would stop by to welcome you to the forum and let you know that our members are a very supportive bunch and will hopefully be along soon to offer their support and advice Happy

Realising after your appointment that you've not taken much in is quite common, so rest assured you're not alone. If you want clarification on what you were told the best thing to do would be to get back in touch with your doctor or medical team and discuss anything you have questions or concerns about.

Some members like to write things down so do have a pen and paper handy when you chat with them again so you can make a note of what is said. Others have found having someone with them at appointments can be quite helpful too, so this may be worth considering, especially as they can ask questions and make notes on your behalf.

I hope this helps somewhat Sundial and that you have good results when they come through.

Kind regards, 

Steph, Cancer Chat Moderator

Concerned Newbie

26 Mar 2018 21:55 in response to Moderator Steph

Hi Steph

thanks for your reply and good advice.  My husband was set to come with me but was unable as he had an ulcerative colitis flare up probablly due to my stress.  I’m usually very good at remembering things but shock can do funny things to your brain. A notebook and a willing scribe seems a great idea.  I feel much happier now. Thank you.

Concerned Newbie

28 Mar 2018 22:40 in response to Moderator Steph

I’ve come back to your comments today and reread them.  I agree that getting in touch with the doctor and team at the hospital would be a good idea.  I tried because I also felt very nauseous after the hysteroscopy.  First of all I tried the NHS number they gave me to be told it was closed and to ring 111.  I tried the hospital number they gave me to be transferred to the docto’s secretary who told me to go to my GP. I tried my GP surgery Who did not answer. When I tried them again an hour later, they were closed. I had forgotten they close at 1pm until the next day. Consequently I am still anxious.  I’m sure there is a way to find answers but I haven’t found it yet.

Concerned Newbie

29 Mar 2018 09:08 in response to Sundial

Hi Sundial, 

I'm sorry you've had so much trouble trying to get in touch with someone. Maybe you could give our cancer nurses a call? You can explain your situation and see what they suggest? They're lines are open today between 9a.m - 5p.m (closed over the bank holiday weekend) on 0808 800 4040.

I have my fingers crossed you'll get through to someone who's looking after you soon and get the answers you're seeking soon.

All the best, 

Steph, Cancer Chat Moderator

Concerned Newbie

31 Mar 2018 22:34 in response to Moderator Steph

Is it usual to get a copy of information sent to your GP before biopsy results are given. I’ve today received such a letter containing information i wasn’t told at my hysteroscopy.  It mentions polyps being friable. I have no idea what this means and whether it’s cause for more worry. I’m reaching tipping point at the moment. I know others find the waiting difficult and I’ve tried some of their ideas to keep calm. These were working somewhat until I received this letter.  How long should it take for biopsy results to be available?  Any answers would be appreciated.

Concerned Newbie

31 Mar 2018 22:49 in response to Sundial

Hi Sundial, 

Unfortunately I can't help with this but your GP or medical team will be able to give you this information so once the bank holiday weekend is over do get back in touch with them or our cancer nurses (their phone number is in my previous post) to find out.

I'm sorry I can't be of more help but do keep trying to implement those ideas for keeping calm and distracting yourself during this anxious time.

Kind regards, 

Steph, Cancer Chat Moderator

Concerned Newbie

31 Mar 2018 23:10 in response to Moderator Steph

Thank you Steph.  It is so frustrating that I cannot get in touch with anyone for information.  Cant be helped I know.  Just impatient.....

Concerned Newbie

1 Apr 2018 00:18 in response to Sundial

Hello Sundial; sorry you are so worried.  Isn't it just the way that when you want people to be around to answer your questions you run into a bank holiday weekend.  I cannot be of much use knowledge-wise   having never been in a position like yours.  I took a look at previous posts of a similar nature; so many people have been in your position of worried waiting; it appears that many of them don't post again so I am guessing that their results were not as bad as they feared.   Keep yourself busy in the meantime and if you cannot sleep there are various tricks I use.  One is to think of five girls (or boys) names beginning with A, then B, then C - you get the idea.    Another - if you are a reader - is to think of a book you know well or have recently read and again think of a character whose name (first or second name will do) beginning with A, B, C etc.  You can do it with anything - names of animals or anything in which you are interested.  Best wishes.  Annie 

Concerned Newbie

1 Apr 2018 08:53 in response to Annieliz

Hi Annie

thanks for your post.  It was lovely of you to respond even though you can’t answer my questions,

i just feel overwhelmed at the moment.  I’ve had a rough six months. My husband was hospitalised three times and my brother passed away unexpectedly.  This recent development has just knocked me for six! Now, this morning I’ve woken to hear my grown up son who has been holding us altogether being violently sick.  That was it. I just broke down.  I can’t even find a doctor to give me something to help.

the worst is I know there are people in far more difficult circumstances and I feel guilty for feeling like this.  I know worrying won’t change the outcome but....   I’m normally a very sensible person who sorts out the practical things and I generally keep my worries to myself so my family know that this is unusual for me.  My husband is very stressed and this is showing in his health situation. I really don’t know what to do.  Just carry on I suppose as I normally do.

sorry for the rant but I do feel slightly better for putting it in writing.  Thanks for listening.

 

sundial

Concerned Newbie

1 Apr 2018 10:41 in response to Sundial

I am pleased I found this correspondence.  Sometimes, especially at bank holiday weekends when a lot of people are away, with families or friends, there can be quite a few posts coming in; as you say it is a time when you cannot get your usual medical help so easily and people do get understandably worried (I have done myself). The kind moderators do their best to at least say "hello" to people and give what help they can but for like yourself it is easy to feel that the rest of the world is having a good weekend while your various issues are weighing heavily on you.  And you certainly have been having a rough old time.  By the way, is your son - who was vomiting - okay?  It can be difficult when your support systems are falling apart too! 

Sometimes, and I know it isn't just me, I read a post and think "I know nothing about that" and leave it for a while to see if somebody more knowledgeable picks it up.  Eventually I or somebody else will return to an unanswered post just to say hello and if possible provide a link to relevant information or try to find a previous post which relates to a similar situation; it does take a couple of days sometimes though to get there.  And - secrets of the trade(!) - that brings the post back to the first screen so somebody else might see it and be able to say something useful.  So please don't feel ignored!  Annie

Concerned Newbie

1 Apr 2018 11:58 in response to Annieliz

Thanks again Annie for a lovely post. It is appreciated.  Yes my son is ok. He thinks it’s  something he’s eaten.  He’s gone back to bed for a while. Trouble is he has to go to work at 2!

ive had a short nap as well and I feel a lot better. Hubby been out and bought me a Costa coffee so even better still.

 

thank you for your thoughtfulness.