Hello Navyman,

I'm sorry to hear about your husband's pain and the challenges he is facing. 

If possible, it might be a good idea to contact his medical team to seek further clarification about the cause of the pain and to explore additional treatment options or adjustments to the current pain management plan. His team can provide tailored advice based on his individual situation.

Hearing from others who have experienced similar challenges can provide insights and support so I hope some of our members who can relate will come along shortly to chat with you.

The other thing I wanted to mention is that on our website we have some information about the side effects of chemotherapy that might be useful to read if you have a minute. I hope this helps.

Best wishes to you both,

Renata, Cancer Chat Moderator

Hi there

i had an unbearable burning pain in the bottoms of my feet for a very long time following chemotherapy & immunotherapy treatment.. it was like walking on fire and often left me in floods of tears (and I'm a rather unphazed male)

I was told it was more than likely to be neuropathy and there was almost nothing really that could be done to treat it, was just advised to try over-the-counter topical painkiller and whatever I can to ease the pain.

it's a very unfortunate after effect which thankfully is much better now after some time.. I hope your husband heals soon 

sean

Thank you for replying. helpfull to know.

Hello Navyman,

                        l was left with permanant nerve damage in the feet from chemo,like your own experience the pain kicked in hard at the end of the fourth cycle. Unfortunately lwas being treated at a stand off island location with consultant mainland based.The consultant had retired mid treatment and the temporary Locum was loathe to change the following two cycles.

l am in no doubt that the dose was very strong and perhaps the degree of damage could have mitigated to temporary by lowering the strength on the following courses.

You say nobody has indicated this may be nerve damage, but have you highlighted the issue to your consultant?, since it may be possible to moderate the treatment and make some finer adjustments that might help.That said alower level of grief is not worth thehaving if it lets the cancer off the hook

The chemo is aggressive, by the very nature of the challenge it seeks to overcome.It doesen't so much as take you to the cliff edge, but instead can throw you over and seek to catch you before you hit the deck.

l hope your husband can soldier on through this and look back over the passage of time at a successful treatment that was worth the pain,

                                                                        David

Hi

Thank you for your reply. I am sorry to hear of your experience. I have since seen the doctor at the hospital who says pain is nerve damage. I have been prescribed pregablin which is for nerve pain. The chemo is finished now and has shrunk the tumour this is not a cure but a reprieve for a time. I will now be having immunotherapy on its own. Tablets not working yet and some doubt as to whether I can stay on them due to other meds,

The lung nurse mentioned that there are lots of meds they have to help with the pain. Have you been given this help?

I hope things ease for you in time and wish you luck in this ongoing battle that we all face

Regards Phil