Together we will beat cancer


Cancer diagnosis confusing

13 Aug 2019 19:06

I had blood in my poo for around 2-3 months and I kept ignoring it thinking it must be something to do with what I ate , but then I was having to go pop about 3-4 times a day so went to the GP who fast tracked referred me for endoscopy and colonoscopy the same day . The endoscopy and colonoscopy was done on 8th August where the head nurse called me and my sister and looked very worried and said things like “it did not look good”...”take one day at a time” and “prepare yourself” so basically right after the colonoscopy she said I have malignant tumour and the ct scan and mri will determine how bad it is but all she can say at this stage is it is bad. Obviously I walked out of the hospital crying and worried sick for my life so want to know how bad it could be and if anyone else has gone through a similar experience. I am scared and don’t want to die Sad

Cancer diagnosis confusing

13 Aug 2019 19:23 in response to Jas4sister

Hello Jas4sister, this being left in limbo is very distressing but unfortunately until they have All the results they cannot give you the full picture because its guess work.  From being told my husband had cancer it was another three weeks before we had a proper diagnosis.  It's not a nice position to be in but it all takes time by the NHS staff dealing with you to know what is wrong.  Everyone on this forum have gone through this, we've kept busy, got on with life because worrying gets you precisely nowhere.  Post again if you need more help.  Kind regards, Carol 

Cancer diagnosis confusing

13 Aug 2019 20:05 in response to Jas4sister

Hey there,

I'm sorry you're going through this.  I hope it helps to know that waiting for your proper diagnosis is one of the hardest parts of this journey.  When my wife was diagnosed with appendix cancer, the surgeon who removed her burst appendix was not a specialist and whilst telling us an initial diagnosis, was quite negative.  Her treatment team were far more positive about potential outcomes, because they specialise in that type of cancer. The not knowing is one of the hardest parts and I'm afraid  it takes time to get all the results you need, but once you get more information, see your treatment team and get a treatment plan in place, things start to feel more manageable.  

I could tell you not to worry, but I know from personal experience that it's not something you can necessarily switch off.  Something that helped me was mindfulness, I use headspace but there are many more free apps out there.  

Just try to keep yourself busy in the meantime, take your fear, sadness or whatever you're feeling with you when doing activities, you might find they start to take your mind off it for minutes at a time and slowly, over time, you'll start thinking less and less about it.


Keep posting here, there's lots of support, keep us updated with how you get on.


Cancer diagnosis confusing

13 Aug 2019 20:40 in response to Dor06

Thank you Carol, knowing there are others here who would’ve had the same kind of period of unknown makes me feel I am not alone .  Sorry to hear about your husband’s diagnosis... hope he is beating cancer and winning at that.

thank you for your words of encouragement.

Cancer diagnosis confusing

13 Aug 2019 21:36 in response to Jas4sister

So sorry you are having to wait for your diagnosis. It really is the worst thing in the world. Sending all my best wishes to you and hoping that you get the results soon and if it’s not the best news that you start the right treatment ASAP. Fingers crossed for you