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Breast Cancer

3 Feb 2020 15:46 in response to Mich8

Hi again 

My first one I had antibiotics with temp but not sure where the infection was which was strange  . Glad to hear they have started working for you . 

I started my second Chemo on 28th and this time started with a different anti sickness 'Emmend' much better to stop the nausea but this time having terrible acid reflux and my gums have started to recede in 3 places  .. I have appt tomorrow with the dentist so really hope it is reversible.  My weekend has been awful with feeling really washed out, emotional, terrible acid reflux pain and feeling quite jittery inside.. So slept for most of it    However PIC flush day today and started feeling slightly better and hoping it starts improving... Just one more of the strong doses again on 17th so can't wait until they are behind me ...

It's really difficult explaining to people who have not experienced this treatment or symptoms so chatting on here does help me knowing that you know exactly what I'm talking about and there are others feeling zombified too .

Not sure what taxol is but if it makes you feel good I want some ..

Good luck with your next 5 . It sounds great to be nearing the end 

Take care xxx

Breast Cancer

5 Feb 2020 15:20 in response to Babs56

Hey Babs,

Yeah sure does knock the stuffing out of you and so nice when you feel relatively normal again.  My anti sickness is Akynzeo and have been fine on this one.  The drugs i am on now are so much better than the first lot, i hardly have any symtoms (err touch wood).  The taxol gives me acid reflux and nose bleeds but not too major and then every 3rd week they combine it with carboplatin that makes me a bit spacey but managed ok this week after Friday.  Yeah i find myself quite emotional once the steroids have worn off.  I'm like a duracel bunny and then next minute no energy and balling my eyes out haha!  We've all gone through it.

Today i went for a walk around the harbour and coffee, was good to get out but rather tired now.  I have an appointment with oncologist tomorrow to discuss my last scan and then being zapped again on Friday. 

Hope you are managing being zombified, most evenings i feel like a right space cadet!

Hugs

xx

Breast Cancer

5 Feb 2020 15:50 in response to Mich8

Hi . 

Just read what you put about taxol and I have that after this one.. I am already having acid reflux and now on omeprazole for that as it was awful . Just hope it stops the acid reflux tho as only started it 2 days ago... I was hoping the taxol was going to be a bit better . 

I am still having the bone pain from the filgrastim and having to take regular analgesics especially in the afternoon but seems to come on a week after the chemo so looks like my bone marrow is working overtime..

I am definitely getting used to being zombified so I suppose I will have to put up with it a bit longer . Do you have this one every week ?

I see my Oncologist next week too just hope my White cells are up do I don't get delayed 

If you having nose bleeds are you anaemic ?

Big hugs from me and best wishes with your treatment 

xx

Breast Cancer

5 Feb 2020 19:34 in response to Babs56

Hi,

It's nice to find a recent forum from other ladies dealing with triple negative. I am only 29 and had 1 chemo session so far. I have been extremely scared as I am suffering with back ache and waiting on results from a CT scan. Did anybody else kind of feel like they weren't in their own body after their chemo drugs. Like I'm there but I'm not really there. 

Xx

Breast Cancer

5 Feb 2020 21:51 in response to SR90

You are describing exactly how the majority feel, you have brain fog and feel a bit zombified for a short while until the effects wear off and then it starts again on the next session..  Its nothing to worry about and try to relax ..

I had terrible back pains and couldn't understand what was happening to me until I was told it was the filgrastim injection to boost your white cells . This makes your bone marrow work harder to reace the white cells and it can give you really bad back pain in your bones .  I take Co cidamol / codeine and brufen for this which does relieve it and also a hot weety bag or I sit with my back on the radiator . It does help . I wonder if this is the pain you may be experiencing as its not nice . 

I did have cancer at 32 so I understand how frightened you must be but I am 63 now so try and stay positive it is the best medicine 

If I can help in anyway please let me know . Chemo is not nice but we can all get through this together with each others support and experience 

I have acid reflux too . I have started omeprazole for this which has helped no end 

Big hugs from me 

xxxxx

Breast Cancer

6 Feb 2020 06:29 in response to Babs56

I havnt had those injections I don't think and the back pain started before I was diagnosed. Yes it is a scary time but it is nice to hear of people who have got through this.

Breast Cancer

6 Feb 2020 08:58 in response to SR90

Hi ..

Really sorry you have the back pain and hope it clears up soon and they identify what's causing it . 

All the best with your treatment and you don't have too many reactions to it . 

I have had my second dose and did cope with it a bit better . I think it makes you stronger and more determined    We never look forward to the next one but it's great to say another one down  . My next is 18th which is the last BIG one and then 12 weekly ones

Good luck and big hugs from me 

xxxxx

Breast Cancer

6 Feb 2020 22:48 in response to Babs56

Hey Babs,

Taxol is deff kinder on my body than the EC, having my next dose tomorrow.  Last Friday i had th combo with carboplatin and still have neruopathy pain today so little fragile but not too bad.  I have 1 more of the combined drug and 4 taxols left Happy

I saw my oncologist today and tumours are responding so looking on track for treatment yay.  Then the next hurdle of the opp, but one step at a time eh.

The nose bleeds are a side effect of taxol as it dries your nose out.  Luckily just had 2 nose bleeds and only bleeds a bit when i blow my nose.  Might have something to do with not having nose hairs too haha!

Yeah good luck with your appointment next week.  How you feeling otherwise?  It was lovely here today, nice to get out and walk.

 

 

Breast Cancer

6 Feb 2020 22:53 in response to SR90

Hey SR90

How you doing today? It is all very daunting and scary but does help chatting to other lovely ladies on here going through the same.  

Yeah my first chemo was rough, quite a shock to the system.  Really felt weird and zombified, it lasted for a  few days then started to feel better.  As you are triple negative too, are you on EC drug?  They may give you injections with those to help your white blood count.

Let me know if there is anything you would like to know?  I'm still going through chemo and then will have an opp and radiotherapy.  some of the ladies we chat to have had the opp first, however they needed to shrink my tumours first, so it does vary and quite personalised.

Big hugs

xx

 

Breast Cancer

7 Feb 2020 00:37 in response to Mich8

Hi Mich

So glad to hear your tumours are responding to the treatment . Great news, keep it up 

I am feeling really good today and have my grandson staying tonight . Its lovely cos I get lots of cuddles . 

My cancer was completely removed as I had mastectomy but as I had cancer 3 times now they advised chemo to be sure to be sure so had to go with it .  

I keep looking at myself and feel like I resemble fester out of the Adams family Happy . but I have a couple of lovely wigs and no one can tell they are

I do have to have another 3 ops for reconstruction so got that to look forward to when I finished chemo 

Weather is getting a bit warmer so I intend going for a walk tomorrow and get some fresh air 

Big hugs from me xxxxx

 

Breast Cancer

15 Feb 2020 00:06 in response to Mich8

Hello Mich8

 

Thank you for thinking of me and sorry for my slow reply.

My first chemo went ok, the nurse who performed my procedure (it all had to be hand syringed into the canula/saline) was really nice, calm and patient. She explained everything as we went along.  So that was very reassuring. It knocked the stuffing out of me for about a week and then I had a couple of good days. But I caught a viral respiratory infection and had to be admitted to hospital. It was quite scary just how ill I felt and how quickly it all escalated. But the Bexley team were fabulous and had me in IV antibiotics in no time at all. It nearly jeopardised my 2nd chemo, as my bloods were only just in range. So I am now having 5 days of a tummy injections to help my white blood cell count. So with that and the antibiotics, the 2nd chemo seems to be going better. 

My scan is on Tuesday morning, so I am praying hard for a positive result, though it actually feels like its got larger and its consistency/texture changes day by day, which is really weird. 

I also did a 'sponsored hair loss' for The Little Princess Trust, so far I have raised £825 and as my hair was start to go (and it was matting a little, as I have long curly hair) my hairdresser shaved it all off. So 4 huge 22" plaits are on their way to The Little Princess Trust, to make wigs for children with cancer. It felt good to do something positive for others Happy I now own a long & curly 'brown sugar' wig in 'oil slick violet' (purple n blue) which is fab. And most people seem to think I've just dyed my hair, which is quite funny Happy Plus 3 of my friends are also having their haircut for The Little Princess Trust, which just fills my heart with love and pride. 
 

So, that's me all up to date, how are things in everyone else's world ? I pray you are all doing good, and are strong in health, heart and hope x x x x

Breast Cancer

18 Feb 2020 00:19 in response to Babs56

Hi Babs,

I am in total awe of how you are managing this terrifying disease. You sound so resilient and strong. I truly want to be like the way  you are about stuff but I am in fact pretty much a weakling!! 

I was diagnosed in October 2019. Grade 2 Lobular breast cancer (left side) Not in lymph nodes and an Onco score of 9. Lots to be thankful for but I  don’t always see it like that in all honesty. Cancer isn’t for sissy’s is it?  

I started radiotherapy last week so now done 6 sessions and 9 to go. Did your skin get burnt and did you have to do the special  breathing to ensure the Beam didn’t touch your heart or your lungs? I am trying to keep my life ‘normal’ whilst having treatment. I am 67 and retired but I know many people need to work so they don’t get a choice about how they manage the radiotherapy. 

Sweet dreams. I of course wish you well.

Kebbs x  

 

 

 

 

Breast Cancer

18 Feb 2020 23:19 in response to kebb

Hi Kebbs 

You are not a weakling at all it is a very big life changing experience and we all go through lots of feelings about why, will I cope, what am I going to do, what will happen to me and more.. I was 32 when I had my first and just had the radiotherapy.. No it didn't burn my skin.. I bathed in water only and used simple soap lightly as I was told and didn't have any burns.. My second cancer was at 42 and had both radiotherapy and chemo and used the same again.. No signs of any burns.. They didn't do any special breathing patterns only breathing in and holding your breath when the light went on and the buzzing started.. I was OK with that one.. It was my first I had problems due to how it was done all those years ago in 1988.. The technology and equipment is so much more advanced now....

This is my third cancer at 63 and I don't have to have radiotherapy as you can only have it once apparently in one area but I am going through chemo, which is bearable now I know how to manage my nausea, bone pain and acid reflux...

I wish you well with the radiotherapy.. My only side effect I had was it made me tired so used to go bed when I got home to chill and sleet p for an hour.. 

You are not supposed to use perfumed soap, spray, bubble bath or anything scented as it could affect your skin.. 

Take care and big hugs and positive thoughts from me 

Babs xxxxxx

 

Breast Cancer

18 Feb 2020 23:35 in response to Babs56

Thanks for the info Babs. It’s very helpful and reassuring. 

So far no sign of burns but I have 8 sessions to go. So we will see. 

The breathing IS difficult for me for some unknown reason. As soon as I get up on the table I can’t breathe?!! Anyway the team there are so supportive. In the end I calm down and manage it. Ridiculous going’s on really.    

I feel this site is such a big help.Very informative about specific situations and treatments  but more than that. People generously saying how it is for them warts and all. It’s very heartwarming. Babs you are a star.  

Sending healing love to one and all tonight. We ARE worth it and we WILL get there. 

Much love,

Kebb ❤️

Breast Cancer

19 Feb 2020 12:57 in response to kebb

Hi Kebb 

So glad you haven't got any burns from your radiotherapy and it's really helpful that the staff are understanding of your breathing.  

It's not a nice time for anyone and everyone deals with different side effects and anxieties.. 

I attended a Health and Wellbeing Event last week for Cancer patients arranged through our local hospital by the Douglas Macmillanthat focuses on different topics.  I am not sure where you live but I am sure other hospitals will run similar things and I found it really helpful, supportive and it was nice to talk to other patients too going through the same...

The hospital area I have mentioned is Staffordshire area. 

Take care and good luck with the rest of your treatment.. 

Hugs from me 

Babs xx